View Full Version : Living with lupus
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- Expert Patient Programme
- Has anyone read or heard of this book.
- what do i do
- Wanted a tattoo but once again.. something else I can not have
- just come for a moan
- Mother of all flares
- A few problems, just need advice
- finding help while in a flare
- i'm to see a chronic pain Dr.
- Undiagnosed?!?!?!!?
- Reducing my work has made me smile again
- feeling down
- How do I stop myself feeling guilty?
- Edema--Fluid Retention
- lots of questions on heart and liver
- White Blood Count Low
- Pulminary Hypertension
- update or as i say another chapter!!
- Will I feel ill all the time?
- A Benefit of The Lupus Site
- update at doctors app
- latest rheumy app
- !!!
- Changing things up for a little..
- Chronic Kidney Disease
- Reducing Meds for a baby ( HOPEFULLY !!!)
- New Treatment planning for baby
- Update on progress
- lupus and insurance
- In a flare......and I'm an eejit!
- Mad with my family Dr
- I hate hospitals
- First hot day and I am a mess
- Update rheumy letter to gp
- Sore head
- I am having a moment : (
- I'm struggling!!!!
- How do you get a flare under control
- can i have a little moan please
- Balance/Neurology
- Cns vasculitis and seizures
- I think I may be in Remission..
- Flares?
- Gp visit today results
- Lupus & Pneumonia = (
- Thrown for a loop
- Advice needed - preparing for having a family
- Rheumy and neuro visits + surprise dexa scan
- Advice needed - Holiday
- SLE and MS.. the difference?
- Ahhhh I Got Sunburnt!!
- seeing a new rhumey
- DLE and SLE
- Flaring again - MTX
- Just met a great GP-so happy!
- Pain Dr appointment
- where to buy sunguard in the uk
- Just realised I am really not coping alone
- Horrible Hospitals :( Rubbish Rheumys
- I'm not apologizing for being sick, I just need a little help
- methotrexate and antibiotics
- I FIRED my Rheumatologist today....and it felt good!!!
- Not posted for a while. Things not getting any better.
- anxious about Dr's appointment
- Exams :(
- Advice again please...is this a flare?
- Sulfa antibiotics got me down, what can I do?
- Brittle Toe Nails, losing them them!
- Quality of life?
- More to deal with
- Finding my way back
- Howdy do folks
- Around and around i go.
- Decided to forgo my meds for awhile...BIG MISTAKE
- Felt better today
- a difference.
- Thinking of a move?
- Crying over Pred weight
- Here to moan
- Much appreciation to all!
- I'm back
- The shot seems to be working
- How do I signal, "It's lupus (etc.,) please stop staring?"
- Book Suggestions
- Happy Birthday to me
- CNS Lupus...please share your thoughts with me.
- where is the crossover?
- A motivational Error
- Question on prednisone
- Yet another thing stolen by SLE
- hope everything is well :)
- When and Who do u tell that u have Lupus?
- Bladder issues
- Working & adjustments at work
- Travel Insurance
- When to see doctor or just get on with it?
- Chest is bad,...again
- Dry Eyes & Contact Lenses
- Tommorrow is my Neurologist appointment...
- Going back to work?
- Sunshine
- Random tantrum
- Silly me! Advice needed please x
- Can I tell you a happy story?
- Never ending flare
- Recommendations for UPF clothing
- connection between diabetes and lupus
- A whale of a time lately, I'm ready for some peace.
- Dental word of warning
- Consultant and Nurse Practitioner Appts
- Told My Daughters Last Night
- Having a bad day
- 4 1/2 hours in ER.
- Rheumy Visit was fine, but not good after all.
- Housework
- My Mouth Hurts
- photosensitive/well in the sun/piz buin allergies
- Control Issues with Food
- seen my rhumey again
- My Hands......Can you relate?????
- Skin and Itchy Scalp
- Vent
- Ludicrous
- lupus and it's unpredictability
- Good news - Finally
- Lupus,Pneumonia & Dislodged Fracture of 6th RIB = (((((
- Do your ANA results fluctuate???
- So Cross and so upset!!!
- Can lupus be passed through to children?
- Anti-depressants?
- Insomniac!!!
- Family Support or Family Frustration
- Weight Control - Help
- good day
- Pictures of lupus.
- London Bridge Hospital
- The experiment
- lupus profundus
- Any thoughts
- Sunshine again and again and again..............
- Symptoms with no 'disease activity'
- I need advice on staying awake!!!
- I feel so defeated.
- Over and out for me
- My Hands, heading out soon for a 3 hour MRI study...
- Bad Day . . .
- Internal Inconsistency ?
- Blood pressure issue
- crazy swelling
- My MRI results of my hands and wrists...
- letting go!
- Seizures Sleeping or awake?
- Lost more lung capacity and Tachycardia
- Bad back and a 9hr flight
- Ode to Lupus and Venting
- seen a new rhumey today
- Any one else with Lupus and a second illness ? in my case its COPD
- my 4 year old might have chicken pox
- Just clocked up another diagnosis of Fibro, was not expecting this today!!!
- I finally got my disability approved
- Back to the pain Dr tomorrow
- I'm so mad
- Upset About Flare
- living with lupus is really hard work!
- Stand back and take a look
- Question about taking a new medication.
- How do you do it (post, that is)
- swellling painful fingers
- Nocturnal Contact Lenses
- Lupus and conception, pregnancy and childbirth
- Hand Specialist tomorrow....YUP, this makes me happy.
- Giving up work/retiring due to ill health - any experiences/advice?
- Huge Flare. Huge.
- Changing jobs - how do you weigh the options...?
- resending mess on lupus and the menops
- How often do you "Flare"?
- The Lupus Life is a Rollercoaster!
- Dear Lupus
- What to expect from new rheumy?
- Anyone else suffering in the UK temperatures
- i dont believe my gp
- 3 days without fatigue
- Truth or Myth?
- Hospitalised with Lupus for 12 days
- Rheumatology appointment tomorrow and I am thrilled!!!
- Needing a shoulder to lean on..
- Nightmare of an afternoon at the hospital.
- Sunscreens
- Should I just stay on 7.5 pred?
- Update on my Rheumatologist appointment yesterday...
- Stand back and take a look - part deux
- Why can't I post a reply to a thread in the medications review forum?
- Any tips on applying suncream?
- New flare
- What to do now?????
- Family Pressure - Anyone relate, and how do you handle them?
- My son's er trip, and the week ahead.
- Neurologist appointment and letter - sorry I need to get this off my chest!!
- Do you feel guilty? How do you cope?
- My latest diagnosis, Rheumatoid Arthritis....I would like your opinion please.
- Do I call or wait?
- the weirdest doc appointment ever... but maybe it'll work!
- Diet Issues --Stevia
- Going on vacation
- A new flare
- Fit the Third
- Tattoo
- Wooops, Forgot My Meds
- I'm a different person
- Mind over matter? I am going Lupie!
- Help please
- Dr's next week.
- How do you know?
- Help
- P20
- Anybody take trileptal?
- Longest Time Out of Work From SLE Flare
- Advise me plrase
- How do you cope with outings?
- Getting sicker really quick...
- My rhuemy is leaving me :(
- Which consultant?
- Diet
- Anxiety
- So upset at my family Dr
- So tired of hurting
- Accupuncture
- Infrared therapy
- Tired and Getting Cranky!
- life insurance
- Trigeminal Neuralgia
- Florescent Lights
- Green tea and Vegetarianism?
- Going to the UK
- Discoid Lupus and Blogs?
- Ride!
- Lupus Support Group Meeting
- Remission
- Multivitamins
- Overdoing it and Paying the Price
- Clear Spray Sunblock
- V for Victory
- do you think this is normal?
- Lupus on tv
- Everything up in the air including diagnosis.
- Starting treatment for depression
- Terrible Time with Itcy Arms
- Menopause-Sweats-Herbal Treatment????
- Medical Alert IDs
- Clinical proteinuria
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