Joanne
04-13-2002, 03:29 PM
Ann has asked me to post this-
I am collaborating with Kendi Hubbard and Joanne Hageman on a lupus revolution so to speak. We are beginning our venture into non-profit with a book of stories, poems and support for public consumption!
We need your story; how you found out you have Lupus, when and if you were diagnosed, how your ability or inability to receive adequate care or an official diagnosis has affected your life and your families lives, how your lupus has effected your life. We are asking for personal history stories, poems, short stories and or jpg. photos of your art work, please don't forget to include your permission for Lupus Connections International to use your work for publication.
Kendi has called our mission Lupus Connections International,~ One Voice~One Cure. We aren't going to stop until we have found it either. We are rallying in Washington DC in October and plan to make some noise there.
Please send what you have before April 30th and Kendi, Joanne and I will ready it for editing and publication. Your story is a powerful tool for our mission! We hope to have our website running by the end of April.
Please pass this along to all your Lupus sites!
annablongo@yahoo.com
Momupwall4@aol.com
jhageman@infoblvd.net
Our goal for Lupus Connections International is to form a site that anyone, Lupus patient, doctor, or researcher can access and link to for information and support. We want to raise the level of awareness of Lupus so it is more commonly know of than alcoholism and we hope to effect the care of lupies around the world to raise the standard of care available.
This year...let them hear the cries of the wolf!
Ann Adams-Buettner
Lupus Connections International
~~~One Voice*One Cure~~~
Joanne
I am collaborating with Kendi Hubbard and Joanne Hageman on a lupus revolution so to speak. We are beginning our venture into non-profit with a book of stories, poems and support for public consumption!
We need your story; how you found out you have Lupus, when and if you were diagnosed, how your ability or inability to receive adequate care or an official diagnosis has affected your life and your families lives, how your lupus has effected your life. We are asking for personal history stories, poems, short stories and or jpg. photos of your art work, please don't forget to include your permission for Lupus Connections International to use your work for publication.
Kendi has called our mission Lupus Connections International,~ One Voice~One Cure. We aren't going to stop until we have found it either. We are rallying in Washington DC in October and plan to make some noise there.
Please send what you have before April 30th and Kendi, Joanne and I will ready it for editing and publication. Your story is a powerful tool for our mission! We hope to have our website running by the end of April.
Please pass this along to all your Lupus sites!
annablongo@yahoo.com
Momupwall4@aol.com
jhageman@infoblvd.net
Our goal for Lupus Connections International is to form a site that anyone, Lupus patient, doctor, or researcher can access and link to for information and support. We want to raise the level of awareness of Lupus so it is more commonly know of than alcoholism and we hope to effect the care of lupies around the world to raise the standard of care available.
This year...let them hear the cries of the wolf!
Ann Adams-Buettner
Lupus Connections International
~~~One Voice*One Cure~~~
Joanne