heavenly
09-12-2002, 10:51 PM
http://www.femail.co.uk/pages...._id=173 (http://www.femail.co.uk/pages/standard/article.html?in_article_id=137608&in_page_id=173)
I was told I had MS - but the doctors were wrong
(Read at the link for full article..here's just how it starts out)
Jeremiah Johnston-Sheehan, a successful architect, was devastated when told he had multiple sclerosis. But four years later, he discovered that he had been misdiagnosed.
In fact, he suffered from a treatable condition called Hughes syndrome. Recent research shows there could be thousands of people like him who have wrongly been told they have MS.
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Sannie, I knew you'd be glad to see this news article out to bring this condition to light more. You're so good at making us all aware of this. BTW, the more I think about my family's health & how when docs asked if autoimmune disease in family, I always said no...but I was totally wrong.
My ma has severe thyroid disease(autoimmune), raynauds, arthritis, neck disc spine problems. Her health stuff came on strong after having hysterectomy due to early cervical cancer.
My grandma (ma's ma) had 8 miscarriages, arthritis, migraines, raynauds, asthma, and allergic to about everything, bones broke easy, sick most of time, very weak, and then died young of back-to-back strokes.
My dad just told me that years back he had problems with legs & arms being harder to use, and felt yucky, and doc told him blood tests showed his blood was way too thick like thick oil, and that he was put on blood thinners for little while back then. He has not taken anything since. ?Takes meds for high blood pressure since.
And about 10 yrs ago, a doc tested me for a panel of antiphosphoilipid antibodies when most of my health problems first started, and at that time several of them came out mildly positive. I've never had that panel again...but do remember seeing that more recently a anticardiolipid antibody test came out fine. Hmm. When my stuff first started I had told my heart doc back then that my symptoms would come on like a stroke, but I knew it wasn't stroke...cuz it would hit both arms & legs. On one of my diagnosis sheets my neuro sends to insurance it says TIAs, but he's never said that to me, as he changed what he thought I had many times from MS to MG to seizures, to metabolic, but docs always know it's clear as day from my medical history and tests that there are disease processes going on, I just never had a doc to overlook the WHOLE PICTURE. But, this new intern medicine doc was a true GEM! He said it looked clearly like connective tissue disease and MS. So, does make me wonder about what you said before to me Sannie about possible Hughes? Hmm.
Hubby & I are just hoping & praying the diagnosis(s) are coming soon, so we can finally put NAMES to this stuff we've been facing all these years. ?http://www.thelupussite.com/public_html/iB_html/non-cgi/emoticons/smile.gif
I was told I had MS - but the doctors were wrong
(Read at the link for full article..here's just how it starts out)
Jeremiah Johnston-Sheehan, a successful architect, was devastated when told he had multiple sclerosis. But four years later, he discovered that he had been misdiagnosed.
In fact, he suffered from a treatable condition called Hughes syndrome. Recent research shows there could be thousands of people like him who have wrongly been told they have MS.
----------------------------------------------------------
Sannie, I knew you'd be glad to see this news article out to bring this condition to light more. You're so good at making us all aware of this. BTW, the more I think about my family's health & how when docs asked if autoimmune disease in family, I always said no...but I was totally wrong.
My ma has severe thyroid disease(autoimmune), raynauds, arthritis, neck disc spine problems. Her health stuff came on strong after having hysterectomy due to early cervical cancer.
My grandma (ma's ma) had 8 miscarriages, arthritis, migraines, raynauds, asthma, and allergic to about everything, bones broke easy, sick most of time, very weak, and then died young of back-to-back strokes.
My dad just told me that years back he had problems with legs & arms being harder to use, and felt yucky, and doc told him blood tests showed his blood was way too thick like thick oil, and that he was put on blood thinners for little while back then. He has not taken anything since. ?Takes meds for high blood pressure since.
And about 10 yrs ago, a doc tested me for a panel of antiphosphoilipid antibodies when most of my health problems first started, and at that time several of them came out mildly positive. I've never had that panel again...but do remember seeing that more recently a anticardiolipid antibody test came out fine. Hmm. When my stuff first started I had told my heart doc back then that my symptoms would come on like a stroke, but I knew it wasn't stroke...cuz it would hit both arms & legs. On one of my diagnosis sheets my neuro sends to insurance it says TIAs, but he's never said that to me, as he changed what he thought I had many times from MS to MG to seizures, to metabolic, but docs always know it's clear as day from my medical history and tests that there are disease processes going on, I just never had a doc to overlook the WHOLE PICTURE. But, this new intern medicine doc was a true GEM! He said it looked clearly like connective tissue disease and MS. So, does make me wonder about what you said before to me Sannie about possible Hughes? Hmm.
Hubby & I are just hoping & praying the diagnosis(s) are coming soon, so we can finally put NAMES to this stuff we've been facing all these years. ?http://www.thelupussite.com/public_html/iB_html/non-cgi/emoticons/smile.gif