amethyst
10-12-2002, 06:02 AM
hi everyone,
I've just been recommended to this site by a concerned friend. It has been most comforting to know that im not alone. Ive just been disganosed as having SLE after 6 months of joint pains and flaring. thank god my latest dr finally confirmed what the others wouldnt. so i'm now on some oral steroids but it's quite a large dosage as ive just started on it and i'm worried about the side effects. it seems that it'll make us more masculine? and i dunno if its the disease or the medication but my hair's falling out as well... sigh! worse thing is the meds are making my bones weak so i can't walk so much. even my fingers are a bit stiff today so typing this is taking an awful lot right now. the calcium and the vit B is helping a bit but emotionally am still very shocked that after all these years of being such a healthy young person i'm now stuck at home a lot and not being able to do all the things that i want to do. my family's been very supportive. everyone's always making sure i dont stress and that i take things easy but i still feel like it's so unfair that we have to go through this for the rest of our lives. i guess i'm still dealing and accepting with the fact that ive got this disease.. but i keep telling myself that life goes on.
anyways, just kinda needed to tell somebody all this stuff because i still feel like nobody around me really know how hard it's been. thanks for listening ?http://www.thelupussite.com/public_html/iB_html/non-cgi/emoticons/smile.gif
I've just been recommended to this site by a concerned friend. It has been most comforting to know that im not alone. Ive just been disganosed as having SLE after 6 months of joint pains and flaring. thank god my latest dr finally confirmed what the others wouldnt. so i'm now on some oral steroids but it's quite a large dosage as ive just started on it and i'm worried about the side effects. it seems that it'll make us more masculine? and i dunno if its the disease or the medication but my hair's falling out as well... sigh! worse thing is the meds are making my bones weak so i can't walk so much. even my fingers are a bit stiff today so typing this is taking an awful lot right now. the calcium and the vit B is helping a bit but emotionally am still very shocked that after all these years of being such a healthy young person i'm now stuck at home a lot and not being able to do all the things that i want to do. my family's been very supportive. everyone's always making sure i dont stress and that i take things easy but i still feel like it's so unfair that we have to go through this for the rest of our lives. i guess i'm still dealing and accepting with the fact that ive got this disease.. but i keep telling myself that life goes on.
anyways, just kinda needed to tell somebody all this stuff because i still feel like nobody around me really know how hard it's been. thanks for listening ?http://www.thelupussite.com/public_html/iB_html/non-cgi/emoticons/smile.gif