PDA

View Full Version : Shakey hands


Maxx
11-20-2003, 05:55 AM
Hi all,

I have this wierd thing happening.
I get the shakes in one of my hands really bad.
It is not all the time. When I open my hand to grasp something or just on closing my hand. One is way worse than the ther.

It is not the prednisone. I have been on that forever now and it is a very low dose.

If i use my hands to do anything it gets really bad afterwards.

Anyone else have this?

Deb

Jenlynn
11-20-2003, 07:01 AM
Deb,

I get the shakes from the pred after a time of taking it. I get shakes in my hands, my jaw (looks like I am ready to cry) . Kinda shook me up (pardon the pun) when it started. It is a side effect of pred, the doc told me.

Hope this helps.

Jenlynn

Phyl
11-20-2003, 07:05 AM
Hi

That shaking hand syd, was one of the things that appeared with the onset of my symptems. I can not say why but it comes and gose totaly on it's own time frame. No one has been able to expalain it. It has happened during thearapy and they just kinds watch and wait till it dies down. My hands become. unable to garsp or hold objects.

Phyl

carrie
11-20-2003, 12:56 PM
hi deb

ive had that for ages and i am not on pred.

should write that down really,dont think i have mentioned it to dr.

Dnabella
11-20-2003, 04:39 PM
I absolutely have the hand shakes ..its more prominent on my right hand!

I have brought this up to my doctor and he just sort of looked thru me on that one...so I just assumed it was all part and parcel for lupus.

lin
11-20-2003, 04:59 PM
Deb i get it in my right hand off and on, more off than on, i'm not on pred now iether, but if it is bothering you tell them, i just don't care any more lol

take care Linda x

Paul (WI)
11-20-2003, 07:08 PM
Hi Maxx!
What medications are you on? I will give a short history of my experiences. I have had shaky hands for more than three years. It comes and goes. I don't have any trouble grasping things or anything like that. I do have a lot of trouble turning the pages of a book, newspaper or magazine. I started taking Depakote in August. At first things were fine. Then the Depakote dose was increased. A week or so later the shaking in my hands got so bad that I had trouble getting food from my plate to my mouth, and, unfortunately I love to eat!!!!!! We got so concerned that we got an emergency appointment with my Neuro. He knew right away that the increased shaking was due to the Depakote. He said that it shouldn't get any worse, but he didn't say it would go away either!

songbird
11-21-2003, 02:01 AM
Hi there. I have tremors in my hands too, though I don't think mine are anything like yours. My rhuem says it happens to me sometimes when I flare and the inflamation lupus causes gets bad...my brain gets swelling around it (CNS lupus) so my hands don't do what I want. Bad reception I guess LOL. My hand will shake and shake and I have to get someone else to help me stop it or just wait it out...it will eventually stop by itself though it can take a while.

Angie E
11-21-2003, 04:33 PM
I do the same thing, only in my left hand, which is very frustrating since I'm left handed. If I try to close my hand or grip something, it does it. I've broken more dishes, the turntable in my microwave, measuring cups anything I try to grip with my left hand. It didn't stick around, but comes on more when I'm tired.

Angie E

Pandora
11-22-2003, 04:50 AM
Hi Deb

I started with the shaking hands, worse in my right, about a year ago. We tried to eliminate the drugs. It seems to be a CNS lupus thing. Mine gets worse with flares, though starts a bit after the other symptoms, and hangs on longer. It spread throughout my body now (somewhat embarrasing at times)

Maybe you can track when it gets better/worse?

Also, I think a chat with a neuro is in order....

Take care,

manthe
11-24-2003, 12:13 AM
I know what you mean myu hands shake also well my right one does also my right leg,I have gone to a neuro since my EEG showed siezures as well and he suspects MS so I am being tested for that it makes me feel better to see so many lupies posting that they have shaking hands abecause mabe that means that it is just lupus and not also MS. THats one reason I lobvae this site you find comfort everywhere it seems and you know you are not alone.
Shakey huggies. manthe

blueeyedcelticbabe
12-01-2003, 08:06 PM
I have searched all over the internet and in books and have yet to find why my hands are shaking. All my ?lupus? symptoms started in March ?03, but I have not been officially diagnosed. My rheumy put me on Plaquenil Oct. 14th, and I have felt wonderful since then. However, my hands were shaking BEFORE I started medicine, but not as bad as they are now. The doctor stated that Plaquenil is not known to cause tremors, but he had me stop the medicine for 10 days to see if my hands stopped shaking. It?s day seven now, and I don?t see much improvement.

I?m petrified of having a disease like MS. How come tremors aren?t mentioned anywhere in regards to Lupus? If my rheumy blows this off as nothing, should I seek help about this? This could be the start of something serious!

weedhopper
04-29-2006, 07:06 PM
OMG! I know this an old thread, but I was glad to see this here. Today my right hand and forarm has started shaking/jerking terribly! I just went to click the mouse and it started. This totally new for me. The shaking stops as long as nothing is touching my wrist or palm, but as soon as anything does it starts again. Its scared me some, as I have a realitive who has nerve/brain damamge from an accident and something simulaur happens to them from touch. Comforting alittle to see it happens to others here, maybe its just inflammation or something. I'll mention it to my dr. if it continues. take care

zara
04-29-2006, 08:01 PM
Wow, Weedhopper! You really dug up an old one!

I have a tremor in my left hand that comes and goes. It's annoying. Luckily i am right-handed.

weedhopper
04-29-2006, 08:18 PM
LOL. Zara.....I guess I'm lucky that I'm a lefty. style_emoticons/<#EMO_DIR#>/rolleyes.gif My hubby just got home so of course had to show him. ( Like a weird palor trick I guess) I was showing him my hand, then I'd touch my wrist with a finger from the other hand and it goes all crazy. take my finger off and it stops. Did the same with touching my palm on and off with same results. so odd. At least its not my left. style_emoticons/<#EMO_DIR#>/flowers.gif style_emoticons/<#EMO_DIR#>/smile.gif

peonyprincess
04-30-2006, 04:31 PM
I get the shakes as well, normally in my right hand over my left. I do not take pred so who knows. I have tested positive for CNS involvement so I chaulk it up to some sort of minor seizure activity. My daughters answer............join a rock band and be their drummer. Dont you just love kids?????

Nancy

flowergarden
04-30-2006, 11:32 PM
I have tremors more in my left hand and right cheek than anywhere else. They started after I tried a new medication. My doc took me off it right away, saying that apparently my brain was more sensitive to that kind of damage.

Anyhow, that has combined with the arthritis in my hands, making it difficult for me to hold things (or put makeup on the right side of my face).

It does get frustrating at times.

Good luck, Weedhopper. I'd get that checked out soon, though. style_emoticons/<#EMO_DIR#>/flowers.gif

momwithlupus
05-06-2006, 08:56 PM
<span style="color:#FF0000">Hi Deb.
I have shakey hands... It was one of the first things that alarmed me right before I found out I had lupus. Sometimes it gets so bad it is hard to eat with a fork or spoon. Those are the days I stick to sandwiches.
Somedays are better than others though... hang in there and good luck!
Your new friend,
Missy style_emoticons/<#EMO_DIR#>/tongue.gif </span>