WHERE WE ALL LIVE [Archive] - The Lupus Site Message Boards

bananawear

11-22-2003, 11:07 PM

Hi everyone - my name is Chris. I'm 38 and I live in the San Francisco Bay Area. I have had Lupus, Fibro, Reynauds, for 6 years and CNS, heart, lung, brain and kidney complications for about 3 years. I used to be an executive with a major insurance carrier, but have been on disability for 5 years. Fortunately I had great disabililty insurance and have SSD.

I have been divorced for 4 years (hubbie couldn't handle the SLE and all that was involved) and no kids, but I do have a wonderful border collie - Samantha- who is a faithful companion wonderful listener and doesn't talk back! Plus she doesn't care if I have to stay in bed all day! LOL

Its great to be part of this community!

Chris

law2lam

11-23-2003, 12:18 AM

Hi I'm Lynn, I'm 31, I live in Scotland (not much sun here!). I am married to Steven who is my soul mate and we have two gorgeous boys, Andrew (4 and a half) and Luke (10 months). We have 2 goldfish named by my eldest (they are called "Mummy & Andrew"). I am a part-time nurse. I have not yet been diagnosed but we are working on things at the moment. It's nice to hear a bit about you guys.
Christine can I visit you on lupie island for my next holiday?
Luv lynn
xx

Paul (WI)

11-23-2003, 06:50 AM

Paul here. I live in Southwest Wisconsin (USA). Right now we are getting a taste of winter. We are supposed to get a little snow sometime in the next couple of days. I only get to look at the sun from the inside of the house, although I do try to get out for my daily walk. I wear a sun protective hat and shirt. I've been on disability for 3 years. I have been married to Grace for 31 years. We have 3 children, all married and out on their own!

gladm

11-23-2003, 08:23 AM

Glad here. I am 58 years old, and was diagnosed with lupus in Dec. 2002.
I have been married to my childhood sweetheart for 40 years this month.
We have 3 grown children and 6 grand kids. Our babies are 2 big happy dogs and one very independant spoiled cat. LOL.
I was born in England, but raised in Canada.

lupie lou

11-23-2003, 04:37 PM

Hi There
Im Lou 36 from uk (essex)although do sometimes think im in lupie Land lololol Im married nearly 18 yrs (blimy could have been in and out for murder by now lol) no He is my soul bud really!!!!!
Have 3 kiddies one coming up 19 (boy) and 2 girls one 14 and one 17
I have 4 chickens called sage, onion, southern and fryed LOLOLOL
2 rabbits, fish 2 dogs called pippa a beagle and a boxer called Jess who is my baby.
I have SLE. APS, RA, CNS, and a stupid sence of humour lolol
love Lou xxx

birdie

11-23-2003, 05:23 PM

How on earth can I follow that Lou,

My name is Debbie just turned 40 this year, only married 4 months to my true soul mate and best friend, I have two boys aged 14 and 11, two step daughters aged 15 and 17 and one step granddaughter 7 months. oh and I forgot I live in the UK, Norfolk.

I have just been dx with SLE and shrinking lung syndrome.

cloey

11-23-2003, 06:53 PM

Hello
Im Cloey, 24 from Ontario Canada (but am willing to move to lupie island).
I live with one puppy (well shes nearly 2 but still acts like my puppy, She is my 90 lb lap dog) and i also live iwth 3 roomies). Im still in school and work with kids with special needs in a residential program.
I was dx'd in May with SLE, soon after wtih nephitis and sjogrens and have been fighting infection after infection.
Looking forward to the move to lupie island!

barbara aalgaard

11-23-2003, 11:13 PM

hi there cloey, remember me barbara from washington who gives you those eyes ?????? i miss talking to you all very much i do not get msn messaenger any more am hoping soon for the chat to be up and running i miss you all very much i will move to lupie land too let me know when the train is leaving ok take care and god bless barbara or babs.......

RosemaryP

11-24-2003, 01:22 AM

Rosemary, from Christchurch, New Zealand. I have Lupus, Raynauds, Sjogrens, Fibromyalgia and few other complaints I do not want either. I am of the mature generation too, have two daughters, the younger is turning 31 in a few days time and three grandchildren.

frilly7

11-24-2003, 01:35 AM

Hi I am frilly aka Alicia I live in New South Wales Australia.

Born in Cheshire, lived in Aberystwyth, then nr Manchester. We moved to Australia over 30 yrs ago from Hampshire/Surrey Border.

Have 3 grown up all married children with 7 grandchildren, 5 girls, 2 boys.

Have been married 44 yrs (think if mind working properly for once LOL) He was my school boyfriend and is now my Carer and Guardian.

He does everything for me, housework, hanging out washing, bring it in, sorting it out. Shopping is a chore for both of us. I love it he hates it.

We have to make a list and if it is not on it I am not supposed to buy it LOL. It makes for a terrible experience, he just wants to get home as fast as he can. Keep telling him, it only means we have to go again(g

We have ponds in our garden with huge Koi Carp. of many colours. He has to feed and look after them now as I cannot get down steps easily.

I was dxd 2 yrs ago with CNS/V but have had 3 diff. Chemo treatments all have failed. Still on large doses of Pred. which has cause a cracked pelvis and 4 broken ribs.

Fall about like a drunk and then I cannot get up as weight has ballooned so much in last 2 yrs. My man is marvellous thro all of this, only worries that the weight causes more problems for me not that I have balloon, red face and very overweight.

He still hates taking me shopping LOL

If you want to know more just ask LOL''

hugs frilly

PS none of the icons will post sorry

jma323

11-24-2003, 01:47 AM

I'm Judy.....45 years old and married for 22 with three daughters, 20 (about to be 21), 17, and 14. I live in Northern Virginia in a suburb of Washington, D.C. I was diagnosed with DILE in June but the symptoms continue on so it may be SLE....we'll just have to wait and see, I suppose! Glad to meet you all! :D

jewel877

11-24-2003, 08:00 AM

HI ALL!

I'M SUE FROM THE CENTRAL COAST OF CALIFORNIA......I HAVE A 16 YR OLD DAUGHTER WHO I ADORE AND MY BABY AND BEST FRIEND/COMPANION/CONFIDANT IS MY SWEET 2 YR OLD CUDDLEY YELLOW LAB.......THE BEST MEDICINE ANYONE COULD EVER HAVE!

I WORK PART TIME AS AN OCCUPATIONAL THERAPIST (HI SUSAN FROM NEW MEXICO!) WHEN I'M NOT HOME DUE TO AN INJURY OR LUPIE HAND THING!

DX (FINALLY) 14 MO'S AGO WITH SLE. ALSO HAVE RAYNAUDS. FINDING THIS SITE WAS THE BEST THING THAT EVER HAPPENED TO THIS LUPIE GIRL........THANKS EVERYONE!

LOVE, SUE

LameWolf

11-24-2003, 10:24 AM

Hi there

I'm Janie from Milton Keynes, UK. 43 years old, married to Peter for just 2 and 1/2 months. (He is 53 - well, 54 on December 5th).

I no longer have any pets at the moment - my darling little Penny-dog passed away in March 2002, and I'm not sure I'd be well enough to look after one properly now.

I never had kids (from choice) so when Peter's at work, there's just me here. Hence I rely on the internet a lot for social contact.

cuppycake

11-24-2003, 10:34 AM

Hi to everyone! I live in the beautiful Pacific Northwest, Oregon, USA to be exact. I am very new at posting and sharing anything about my struggle with SLE and Pulmonary Fibrosis. [I was diagnosed 2 years ago.]

You are all such a breath of fresh air every time I log on! What wonderful encouragement you give!

It's so strange that Lupus is so prevalent and yet I have not found anyone else who has this disease.... that is until I found this site.

It is nice to not feel so alone now!

Best to each of you! Cuppycake

curlus

11-24-2003, 10:38 AM

Hi Everyone,

I'm Shirley and live in Nottingham, England. I am 53 years old and have been married for 32+ years. My daughters are 23 and 25, the younger one is still at home, I also have a gorgeous black cat called Polly.
I was diagnosed with SLE 3 years ago, Non Hodgkins Lymphoma 1 year ago and Vitiligo 6 months ago - surely things can only get better!!!!????

Gagirl2

11-24-2003, 01:52 PM

I am Cindy.......
I live in North Carolina . I have LLS or what they call " mild lupus" .raynauds, and Ibs.i think that`s all>LOL
I have 3 daughters. 19, 16 and 11. 3 dogs and 7 chickens as of today, but getting 4 more.LOL I have a wonderful husband of 21 years.

Shelby_woo

11-24-2003, 03:42 PM

Hi All!
I have only been a member for about one week and let me tell you, you all are wonderful people! It is so nice to finally have people to talk to with a sense of humor over everything else going on in their lives!! A BIG THANKS TO ALL OF YOU!!!

My name is Michelle aka Shell, Shelby..I answer to just about anything. I live in a tiny, gossip town up near the U.P. of Michigan(USA). I am a bookkeeper/babysitter for 19 men at a Roofing/Insulation Company. I am 24 and have a wonderful husband named Travis. I have a 7 year old step-daughter named Lacey(whom will be causing me some gray hairs real soon! LOL), but I love her dearly! We have one cat named Chelley. I've been married for 1-1/2 yrs.

I was dx finally after 6 years of "I'm not really sure what to tell you Michelle", with "Discoid" at the Mayo Clinic in Minnesota. I also have Reynaud's. Their not sure what is going on w/ my kidneys right now. Still more tests to be done.

But other than that...I'm doing alright!

Shelby

Christine UK

11-24-2003, 03:43 PM

ok..i better do a sensible post!
i am christine married with 2 children
i was dx at the tender age of 17...
i have lupus,raynauds sjogrens,fibro,sticky blood oh and other bits ! too!
i am in the UK

HelenS

11-24-2003, 04:27 PM

i am originally from lincolnshire, uk., now living in ontario, canada. am married to royce for 28 years and have one son. we have one dog, 3 cats, and fish. i have been dx'd with lupus, sjogrens, raynauds, asthma and an unrelated heart condition.

do i have to apply for a passport to get into lupieland??

sharonj

11-24-2003, 08:16 PM

HELLO EVERYONE, I AM 52 YRS YOUNG AND LIVE IN THE MOUNTAINS OF SOUTHWEST VIRGINIA IN USA. DX IN OCT OF 2002, HAVE THE USUAL ACHES AND PAINS ASSOCIATED WITH LUPUS,FATIQUE, HORRIBLE RASHES,LOW WHITE CELL COUNT,ANEMIA, AND ON AND ON.AND ON. AM MARRIED TO CHARLIE FOR 3 YRS AND HE IS A WONDERFUL MAN, COMPANION AND HUSBAND. I HAVE 2 CHILDREN FROM PREVIOUS MARRIAGE, A DAUGHTER OF 31 WHO LIVES ABOUT 2 MILES FROM ME WITH HER HUSBAND AND MY GRANDSON THAT IS 10. I HAVE A SON OF 19 WHO STILL LIVES WITH US. TWO CATS NAMED PRETTY KITTY AND FAT BETSY, HAVE TO LEAVE THEM OUTSIDE BECAUSE OF ALLERGY TO THEM. I PUT ALL MY FAITH IN GOD AND HE HAS PULLED ME THROUGH A LOT. I KEEP A SENSE OF HUMOR AND BELIEVE LAUGHTER IS THE BEST MEDICINE.

S-J

11-24-2003, 09:46 PM

My name is Sally...aged 42 and live in East Sussex, England.
I have been married for 18 years to Ray, who is a composer, and have two wonderful boys aged 17 and 14 who both seem to be following in his footsteps.
My home is shared by two fat cats and three mad dogs, fourteen finches, two canaries and I also rescue sheep. I work part-time as a drama teacher.
I was diagnosed with SLE, Fibro and Sjorgens 7 years ago after 10 years of illness.
Despite being in hospital every year with flares I am very optimistic and happy in spirit.
In fact my hubby knows me so well he even finishes my sentences when I am unable to speak clearly....such is love!!

Take care everyone.

with love...

hellie

11-24-2003, 10:05 PM

Hi my name is Helen (but you can call me hellie) and I live in Melbourne Australia. I am 37 married to a great guy (we just had our 17th anniversary)
and we have three terrific kids, boy 15, girl 14 and boy 10 and a dog and a cat.

I was dx only 2mths ago with sle and started on medication so am looking forward to the time when I feel a whole lot better, but in the mean time just trying to get as much enjoyment out of everyday and this has been a whole lot easier since I found this site. Thanks to all of my lupie friends I have a better understanding of this illness and thats makes me feel better able to handle whatever gets thrown my way.

So thanks heaps to all of you
See you all in the chat room (soon I hope)

Love hellie

Tam@->---

11-25-2003, 02:06 AM

Hey All!!

My name is Tammy, for those who dont know me! I am 25 years old and live in Australia.

I was diagnosed Oct 6 2000, finished uni Oct 14th and began my first teaching postion Oct 16.....all in 2000. hmmm i say hmmm what an interesting time it was!
I currently teach Kindergarten and love my babies!!! they are so precious!!!\

I dont have any children of my own technically, but i do have 17 treasures i could bundle up and take home with me..............but only sometimes!

I have a dog name Max, who is so cute!!! He is a labrador and I love him to bits.

Yeah thats it! Oh b4 i go can i just add ONLY 31 sleeps till .................................................. .................................................. ....................I'm leaving on a jet plane, dont know when ill be back again lalala Actually the end of January but still Im going to the states/canada in 31 sleeps

Love and Hugs all

Tammyxoxoxox

pennylp

11-25-2003, 03:37 AM

Hi there.

I am Penny, I am forty nine years young, or old... somedays more old than young... I am married to the greatest man alive for thirty one years... I have two lovely children... Matt and Holly... 27, 25.... They keep me going.....
I live in Eastern Ontario, Canada.... I also have a dog named Beckie,,, and a grand dog.. named Banchie....lol..

I have enjoyed meeting all of you and getting to know everyone....

Love Penny (Mariea)

.

Janbad

11-25-2003, 03:56 PM

Hi

I'm Jan, aged 46 (47 in February) married Derek on last working day of last millenium (30/12/99) his 40th birthday.

We live in Macclesfield in Cheshire, UK. No kids, we did have two Old English Sheepdogs but sadly lost Poppy in June 2002 and Maxine last August, I miss them both so much but am not well enough to get another at the moment.

I have recently been diagnosed with SLE, Hughes, Raynauds, but have been ill for 4 years and off work sick since January with a major flare.

Regards

Jan B

LynnP

11-25-2003, 11:40 PM

Hi my name is Lynn I'm 39 and I live in Leicestershire UK - I was widowed last year - I have 6 boys though only 5 living at home - 18, 12, 10, 9, 4 and 21 months - we also have a long list of pets ranging from a couple of ponies to a very smelly turtle - I was a primary school teacher before my husband died but now I'm back at college studying art and one day hoping to become an illustrator - I'm not diagnosed with Lupus yet but luckily have been feeling pretty well since the summer

sweet T

11-26-2003, 06:54 PM

I'm Terrie (sweet T)
just got married for the second time in october
38 years old
2 children 12 and 9
was diagnosed 12 years ago with SLE
I live in florida US

angela12ca

11-26-2003, 09:10 PM

HI..

Im Angela 34 yrs old and married for 7 yrs to a supportive guy. I have 2 girls ages 2 and 6yrs old.

Im from Northern Ontario Canada and dx with sle 1 yr ago.

My lupus has some mixed features with some muscle involvement.. joint and skin... thankfully no organs at this time.. and hopefully never.

I am a RN by profession and work as a casemanager for patients requiring palliative care at home. At present im off work trying to deal with sle symptoms and recently started on metho with hopes to wean off pred.

I gotta say I love this site

Angela

lilymcherokee

11-26-2003, 10:01 PM

Hi I'm Lily, I'm 32 and from Quebec, Canada. I'm married to the most wonderful man in the world (to me)... and I have a job I love alot...I'm a singer and I sing with my husband. I have no children yet, nature is giving me a hard time with that.

It's nice getting to know you all....

Thanks, bye

Pickles

11-27-2003, 12:28 AM

Hello,

I'm 53 years old and sometimes feel like I'm 70. I live in North Georgia with my hubby of 20 years and my little dog named Pepper and my 19 year old cat named Pickles(I borrowed her name for my "code name.")

I was recently approved for disability after trying to get it for 2 years. I worked for 30 years at telephone company.

Welcome to all the newbies........ See below for all my problems. My hubby's name is not listed but sometimes he is my biggest problem. :-(

I have SLE, Rheumatoid Arthritis, Irritable Bowel Syndrome, Sjogrens, Scleroderma, Anemia, Depression, Peripheral Neuropathy, Acid Reflux, Hypothyroidism, Raynauds and now doctor thinks maybe Kidney disease. I feel fine some days but others, can't hardly move or get out of bed. Of course, everyone says, "YOU LOOK FINE" :( :angry: :angry:

I love coming here and have made quite a lot of great friends. Maybe, one day I'll get to meet them in person. :) :)

joannemc

11-27-2003, 09:38 AM

Hi everyone, Im 44yrs old married 25yrs to my lucky husband who helps me a great deal, as well as my children, aboy 25yrs and 2 girls, 18,and 20, we live in Boston Mass. I have dle sle and sleep apnea. Im glad to meet all of you, this site is a comfort for me. talk to you soon..........................Joanne

Suzan

11-27-2003, 06:56 PM

Hello :wave:

I am 50 (birth certificate error :P ) and live in Boston, Massachusetts
with hubby of 30 yrs :o and 29 yr old son and our dog, Reeper,
who is the best!!! we lubs him too much :love:

I was dx'd in June with DLE..or Chronic Cutaneous LE....also have
Pulmonary Hypertension, Venous insufficiency . Sleep Apnea and
also the best of all dx's A Sense of Humor :P :wacko: :lol: :lol:

Joanne....we could be neighbors !!! ;) :unsure:

See you all in chat.....soon I hope!!!!

Suzan :wave: :flowers:

dollyg

11-27-2003, 10:27 PM

hi dollg(newbie) i was reading where all of you are from and would like to say i am from York uk am 48 live with my soulmate john ,have2 grown up daughters ,left home years ago, was dixnsd3yrs ago lupus,arthritis(for25yrs) angina 1yr fibromyalga and still plodding on

Butrflypeace

11-28-2003, 07:12 AM

I am Shannon 39 I live in Hawaii....I am married with two children and a kitten names Lillikoi ( Hawaiian Passion fruit) we call her Lilli.....Happy Holidays

sheila t

11-30-2003, 07:38 PM

WELL HI TO YOU ALL. THANKS FOR REPLYING TO THIS POST I STARTED, IT IS GREAT TO SEE SO MANY OF YOU. IF ANY OF YOU CARE TO MAIL ME OR ADD ME TO MSN PLEASE DO...I LOVE THIS SITE.
HUGS ALL SHEILA T :love: :love: :love:

Traceyjean

11-30-2003, 07:57 PM

Hi,

I'm Traceyjean from Central Pennsyvaina. (USA) I was diagnosed in Oct. 2002 with Lupus.

I'm 43 yrs old and happily married to my husband of 24yrs and have 2 grown
children and a 10 month old grandson.. We are raising my 2 neices 13 yrs old and 10 yrs.

So glad to have this web site and all of you to talk too who understand how we all feel!!!!! I enjoyed reading where all of you are from and a little about your life....

God Bless you all,
Traceyjean

mizpriz

12-01-2003, 01:12 AM

Hi friends,

I am Georgine, nicknamed Princess from hubbie (as in Whatever you want-Princess!). I am 46 and live in Wisconsin (northern USA). I have 3 grown children and one precious grandson due in March. I was diagnosed with SLE 20 yrs ago.

Pandora

12-01-2003, 02:19 AM

Hey, this might be the best one of these threads yet!

I am on Vancouver Island in British Columbia, Canada. 36 years young. Boyfriend of many years who is a major source of support and inspiration. We also have his and hers dogs and 3 horses.

I am a happily ex-lawyer who now teaches part-time at a private college. I was diagnosed with SLE in the spring of 2000. It is now chewing away at various body parts. Also have APS and asthma on the go.

I was wondering about that passport and lupie-island. I hope it has nothing to do with Gilligan!

Kaley

12-01-2003, 10:55 PM

:o
Wow, how did I miss this thread till now? How wonderful to read a bit about all of you!!!!

I am Kaley. I am about to turn 46 years old, on December 31st, yup, New Year's Eve is my birthday. I never married or had kids, unfortunately, so I live by myself, and I am jealous of everyone who is talking about their soul-mates and best friends in this thread!!! Does anyone have a free brother? Hmmmm, maybe on Lupie Island ....

I've been in this same apartment for 20 years now, near a beautiful lake, in Seattle, Washington, in the USA. I used to be a legal secretary for the bulk of my working time, both to pay the rent, and because I liked it and knew a lot about it (my dad was an attorney), although my education and training is in the field of psychology, and I've also worked in that area, especially doing crisis/emergency work. I hope to volunteer with the elderly once my health stabilizes a bit more.

Right now I am on Social Security Disability Insurance, and have been for several years, because of my health. I was diagnosed with SLE in July of 2003, after ten years of non-stop problems and surgeries. I have some skin problems, many joint and muscle problems, and some organ involvement, mainly with my lungs. I also had endometriosis, have acid reflux and a swallowing/aspiration problem, have had repeated fractures in my feet, had tumors removed from my feet, stomach, female areas, and throat, have terrible allergies, and often suffer from depression, anxiety, and PTSD, as well as terminal loneliness. Because of the throat tumors and the aspiration problem, I often have problems with my voice, and I am in and out of speech therapy/rehabilitation over the years.

The Internet is my main source of socializing, as I have no family in the area. I am open for new friendships and e-mails anytime, and am also available to support anyone who asks!! Go ahead!! Send me a private message or an e-mail about anything you like!

I am allergic to pets, so I have none, sadly, but I do love to read and I escape big-time into that world, although I read non-fiction as well as my beloved escape stories. I also make my own cards as a hobby, and am exploring the creative side of me that there was no time for when I worked in the business world full-time. I hate to cook, but of course, like all good lupies, I love to eat chocolate, and all other sugar as well!! Gotta thank that Prednisone for some unwanted pounds ....

Finding this site and all of you wonderful people has been the best thing that has happened to me in years! I am profoundly grateful for all of you and for the site itself, and for all the wisdom, support, caring, strength, and friendship that I have received on my visits here. I'm still waiting for that infamous "remission" when I will be "symptom-free," the better to take advantage of the pleasures and delights on Lupie Island!!!

I wish you all the best, with peace and joy, and good health ....

Love, Kaley :love: :wave: :wave: :flowers:

Phyl

12-02-2003, 05:22 AM

:flowers: :wave: :flowers:
I'm a 50+ newly dx woman. My mate passed away just a year ago so I now am alone except for my 2/dashy's. They have become my life savers. I do have 2-childern but they have been gone sometime and do not live close. I have opted to stay on my farm for now even though it is away from just about everything.

My hone is in eastern N.D. right along the red river of the north, close enough to spit out the back door and hit it as my husband used to say.

This site has realy been a life saver for me simlpy because there are days that I may not see or hear from another human, let alone anyone that has lupus.

My profession was nursing but I will not be able to return unless I get the ablilty to walk more than a few feet at any one time.

What I have learned here and the enteraction that I have received has just been great. This site excersise my grey matter as well as giving me a place to vent and that is fabulous.

I will be leaving shortly to go closer to my son for the winter. Vegas here I come. My family and friends are afraid of me being here alone with the snow :cry: :cry: I do'nt know why :D :D

But will keep in touch. I heard thre is a Lupus Fon. there and can'nt wait to pick thier brains alittle.

Phyl :wave: :wave: :D

hannah1986

12-03-2003, 01:29 AM

Hiya I'm Hannah 17 from washington not yet dx but started having symptoms since I was 12

marybri

12-03-2003, 11:39 AM

Hi All,

I'm Mary from the UK,diagnosed 27 years .

I have a husband who sees me through all the ups and downs,4 daughters,and 4 grandchildren.

Love
Maryxx

Ann2

12-03-2003, 11:36 PM

:wave: Hi

I'm Ann, live in the UK and been married for 40 years. I have a son and a daughter both married and 2 lovely grandaughters who light up my life.

I was diagnosed with SLE not too long after my daughter was born and she is now 36 yrs old - so it was a long time ago.

I have been coming to this site for about two and a half years and think its great!!

Best wishes to everyone

Ann

Maxx

12-04-2003, 08:13 AM

Hi,

I am Deb in USA. I am off the gulf coast.

Married with three children and three grandchildren.

I am sick of this disease just like the rest of you.
Wish I was normal again.

I am fortunate to have a wondeful husband, children and grandchildren.

Love, Deb

frono

12-05-2003, 01:42 AM

Hello!!!!!!!

I'm Tiercy (tear-see) from North Carolina, I have a daughter that's 15 and a step-daughter that's 16 (they are wonderful-most of the time). Two dogs and I'm fostering another. one fish and 0 cats (hubby says no more). I was dx with lupus on october 2002, seems like an eternity ago. It was wonderful reading about everyone!!!!!!!!!!!

Sarleh2

12-06-2003, 11:36 PM

Hi,

I'm Sherri. I live in Sacramento, California. Arnold Schwarzenneger is my new governor. Imagine that...

I am 43, have a 26 year old son who lives in town, away from me(!). I have 3 cats, Rambo (I did NOT name him), Lilly, and Cheeto (the cheese that goes crunch). Cheeto may have his name changed to Gigantor because he is about 9 months old and already about 20 pounds! Not fat, just huge.

I work at a community college managing a welfare to work program. I see a lot of domestic violence, mental illness, learning disabilities, etc.

I have been sick since the mid 80's. Was told several times I had lupus and several times I didn't over the years. I have bbeen referred to counselors, psychiatrists, chiropractors, etc.

Was told about 2 years ago that I have SCLE and CREST. I also have had Raynouds, Fibr., IBS for years.

I currently take plaquinil, Relafen, doxipin, protonix, paxil, and a vaso dialator that I can't remember the name of.

I love this thread. I love hearing about your families, it makes you all more "real".

Take care,

Sherri

angel4ever

12-12-2003, 07:46 PM

:wave: :wave: :wave:

Hi my name is norma.

I live in Warrenton Oregon.
dx 1990 with sjogren syndrome, anemia, fibro, thriod,IBS,pepticuler disease, ect. with possible SLE.
in august 2003 dx with SLE and SCLE having a real bad time being out of remission for the last 4 months. lession and all that come with this illness.

warmest wishes
angle4ever :wave:

sheila t

12-16-2003, 05:03 PM

I AM GLAD I STARTED THIS THREAD..IT IS GREAT TO SEE WHERE EVERYONE IS FROM AND MORE ABOUT THEM...HOPE MORE READ THIS AND ADD THEIR INFOR..
MERRY XMAS EVERYONE
SHEILA T :love: :santa: :love:

hope4us

12-16-2003, 09:45 PM

:lol: Hi I live in Kentucky (USA) I am 63 and have been married for 45 years. We have 3 grown sons and 5 grandchildren. I had to quit work in Sept of 2002 when I got sick. My husband is retiring the last of the month. I have been diagnosed with connective tissue disease,raynauds,osteroarthritis,ibs,and the beginning of osteoporosis.Also I would like to wish everyone a very Merry Christmas and may God bless you all this comming year.

sheila t

01-13-2004, 09:25 PM

Hope you all don't mind have decided to get this thread going again...So if anyone would like to add to it, please do. Hope you all doing well and Hi to all the newbies that have joined us recently.
Love Sheila t :love:

Pamelactrn

01-13-2004, 10:09 PM

:nurse:
Hi I'm Pamela and I live in beautiful northwest Georgia in the USA. I have a great husband and a 14-year-old daughter who keep me busy. We have two wonderful cats named Brillo and Callie. I also work full-time as a Registered Nurse.
It's amazing how many places are represented here!

wendy35

01-13-2004, 10:23 PM

Hi im Wendy from Birmingham UK, I was diagnosed with SLE 2 years, they are stilll haveing problems controling my Lupus. Ive had meningitus, kidney problems, lungs and heart problems and sticky blood i also have Arthirtis and i also got MRSA they managed to get rid of that thank god.

I've just started another new treatment (Cellcept), I was on Rituximab and Cyclophosphomide before. I am also on Prednisolone, Lansoprazole, Warfarin, Frusemide and something for cholestrol and Calcichew.

I also have Heart Block and Asthma

I live with my boyfriend of 12 years who is a tattoo artist he has been great and i also have a son of 18 who is wonderful.

wendy :thumbs:

Derek

01-13-2004, 10:38 PM

Hi everybody im Derek from Manchester in the UK. I was Dxd with SLE in September 2001, just minor problems so far aches and pains, lethargy and the odd major upset but quite good for the majority of the time thankfully.

Being on this site reminds me of my first job in a Kitchen training to be a chef and i was the only man, having lots of mothers is a nice feeling theres always a hug when you need it.

I also find the site a great source of inspiration and knowledge and the people who ive met and who have offered me advice THANK YOU and
(((((((((((((BIG HUGS))))))))))))))

:D

Derek

basketcase1002

01-13-2004, 11:45 PM

HI,
I'm from Solihull UK. I'm 50, ok, nearly 51. I've been married for 27 years with two children, Sonia 24 who has a baby named Lincoln 4 months old and Russ 19 who plays drums.
I have an old arthritic dog with heart problems, Jasper. A 15 year old goat called Percy and a Gander who is about 2 years past the normal goose life and still looking good.
I haven't been diagnosed with Lupus but am seeing a Lupus expert next week and I'm hoping that will be the turning point for me. I'll let you all know the outcome either in not diagnosed yet or newly diagnosed.
Basketcase :wave:

sheila t

01-14-2004, 01:38 PM

Thanks everyone for keeping this thread going. Its great to see who we all are and where we all live....Hugs to you all
Sheila :love:

Christine UK

01-14-2004, 02:51 PM

same here anyone is welcome to mail or msn me :rolleyes:

Daisy3

01-15-2004, 02:30 AM

HELLO EVERYONE,
I'M DAISY AND I LIVE RIGHT OUTSIDE OF HERSHEY, PENNSYLVANIA. MY HUSBAND MAKES CHOCOLATE FOR A LIVING :D :P . I'M 6'9'', AS THIN AS A RAIL WITH BIG BREASTS AND SHAPELY LEGS. YEA....WELLL I CAN LIVE ON LUPPIE ISLAND TOO! REALLY.....MY HUSBAND MAKE CHOCOLATE, WHAT DO YOU THINK :D :lol: :P ....I HAVE BREASTS PROPORTIONATE TO THE REST OF MY BODY.....PLUMMMMMMP! DAISY :flowers:

MARRIED
1 SON 14 YEARS OLD
LUPUS
FIBROMYALGIA
RAYNAUDS
TMJ
IBS
SJOGRENS
I CAN NEVER REMEMBER ALL OF MY LIST.....BRAIN FOG :lol:

queentutti

01-16-2004, 06:28 PM

Hi everyone my name is Gill, I am 27 and from Liverpool in the UK. I have SLE, Raynauds, RA and TIA's. I have been attending hospital since I was 6 years old but only received a proper diagnosis when I was 20.

Dnabella

01-21-2004, 06:07 PM

This is great!

My name is Donna and I have lived ALL over the United states I am currently as of 6 months ago living in Gainesville Florida (its not as hokey as it sounds LOL) I have lived in New York, New Jersey, Texas, Pennsylvania (boyertown) Los Angeles California, Washington State (olympia) and Reno Nevada. Whewwwww...My husband is an Engineer who loves to work on large projects (hense all the moving)

I have two children one is 11 and has his daddy's travel bug and a 20 year old boy who DOES NOT LIKE MOVING so is living and going to college to become an RN in Washington state. My loving husband and I have been happily married for 20 years and looking forward to 20 more years.

sheila t

02-15-2004, 08:49 PM

JUST WANTED TO KEEP THIS GOING..IF ANYONE HAS NOT SEEN THIS POST AND WISHES TO REPLY, ADDING WHERE YOU ARE FROM AND A BIT ABOUT YOU. PLEASE DO....IT'S GREAT TO LEARN ABOUT EACH OTHER ....
HUGS SHEILA IN ENGLAND. DX WITH SLE ETC ETC 15 YEARS.... :love: :love: :love:

jhmom

02-15-2004, 10:19 PM

My name is Stacie; I live in the US, in Georgia (lived here my entire life). I am 32 years old, married with 2 children (boy and girl). :D My daughter and I both have Celiac Disease and currently on a gluten-free diet. I also have hypothyroidism and on replacement therapy, since 1999!

I have not been diagnosed with Lupus, waiting on the doctor to get back from vacation to look at my test results! That's what I've been doing for the past year and a half, WAITING on DOCTORS!!!! :P

Nice to meet each of you and I look forward to making new friends! :hehe:
Feel free to ad me to your yahoo messanger!

sandi123

02-16-2004, 04:08 AM

:wave: Hi everyone, I'm new to the site as of yesterday. Feel like I have found friends tho.
I am 47 (not sure when that happened!) married 25 years, great husband, 2 boys age 23 and 20. I live in Port Angeles, Washington across from my favorite city in the world Victoria B.C.
I work in special education at an elementary school.
My diagnosis has not been confirmed by a rhuemy all tho my MD says lupus.
I have had quite a few trials (haven't we all?) in my life and try to rely on humor and prayer to get by. Not always in that order tho.
I like to pretend I am an artist. Currently collage art facinates me.
Also pretend to be a gardener, love flowers. Scared to fly but want to travel to UK where I was born.
I've enjoyed reading about everyone, what a great group. :)
:love: Sandi123

StephanieL

02-16-2004, 01:24 PM

I am Stephanie and I am 28 years old. I am French, but I have been living in England since 1996.
I suffer from Lupus Nephritis. (fell ill in December 01 and was diagnosed in March 03)
I am engaged to Simon and we are getting married on December 18th in France. I would not have made it without Simon. He is my everything and is the best nurse you could wish for!

Stephanie, Stevenage (Herts), England

joelw

02-17-2004, 09:43 PM

Hi all. I'm Joel, and I live on Long Island, New York, with my wife of 33 years. We have 2 sons and a daughter-in-law. I'm full-time corporate counsel for a major pet product manufacturer, and my wife teaches Special Ed.

It's a strange irony, but my college roommate (from the 60's) who was later my law partner, also has lupus. He was diagnosed 20 years ago while we were still partners, and I was diagnosed 2 years ago. Strange, huh?

Hope everybody feels well.

Joel

:wave:

Starduster

02-18-2004, 04:27 AM

Hey Joel, that is such a twist having your friend have lupus like that.

Well, Hi All, I'm Kathryn.. 53 and fro SE Michigan. I have SLE CNS and have been concentrating on good health for some time. I do the pool at least 4 days a week and sometimes I wear myself out so bad that I sleep the rest of the day away. I love the pool because it lets me do things that I ca'nt do on land. I'm trying.. I really am. Any Q's.. please feel free to ask.

Star

Snowbear

02-18-2004, 04:53 PM

Hi Everyone!!!
I love this site, my name is Tina, I'm from St. Louis, Missouri, USA. Still seeing doctors, not positively dx'd, who knows I may never get there. I'm here today cus it is a bad day, my hands are so swollen and they hurt up to my elbows. Whah. I just took the time to read every ones info, it was fun. I am 43, separated for the last 3 months, I have a 25 year old son who is my room mate (which is nice on the bills) I work two jobs and I don't have time to do much more. I hope all of you feel well at this reading!!!! :love:
Snowbear

JulieIL

02-18-2004, 09:35 PM

I saw this post the other day, but didn't have time to post a reply...then, like a true lupie....could not find it again :rolleyes: Ha!

My name is Julie, I'm 41, I live in Northwest Illinois, U.S.A., was dx'd with DLE at age 15, SLE within a year of that (renal). Married (finally!) at age 30 (still married to him :D ) Three children: oldest son 6, then daughter 4 and another daughter TWO :o and she is sooooooooooooo TWO! ;) :love:

I worked for 16 years as a drafting technician...loved it, till #2 was born. It took 5 years to have #1...then we didn't know how to stop it! :blink: ....now we do...sleep is more important :yawn: :lol:

I'm so glad you brought this post up again Sheila! :woohoo:

I am amazed at the participation here...I LOVE it! :thumbs:

Hello to everyone and I am SO pleased to make your aquaintance! I hope we all hang out here together for a very long time!

Love,
Julie

karena

02-19-2004, 07:36 AM

Hi, I am Karen A. I live in Oklahoma City with my husband of 17 years and my 18 year old son who I am homeschooling. I also have a wonderful 23 year old daughter and a 3 year old grandson whom I adore. My family is rounded out with my dog, cat, and Quaker parrot. I have had SLE since 1984. Also have fibro, myosittis, raynaud's, sjogren's, hypothyroidism, hypoparathyroidism, aquagenic pruritis, aplastic anemia. I'm sure I left out a few. I am a nurse who has been on disability for a year. :nurse: Glas to meet ya'll :wave:

ange2

02-19-2004, 10:21 AM

Hi, my name is Angie, I am 35 and live in Norfolk. I was diagnosed with SLE in 1992, then thankfully due to lack of symptoms forgot about it, until I was pregnant with my first child five years ago and started having problems with my knees, then down hill from there. I now have two children aged 4 and 2, who are fab. A husband who is a god send, husband number 2, number 1 was rubish. Recently discovered this site, following an admission to hospital with a flare up, I am a nurse (not working at moment, looking for retirement) , which puts me at a huge disadvantage, as everyone presumes I know and understand everything about lupus, when in fact I know very little. Also have Fibromyalgia. :nurse:

Raglet

02-19-2004, 10:50 AM

I'm from Auckland, New Zealand (no thats not part of Australia *g*)

partner daphne, who many of you will recognise

http://atlas.imagemagician.com/images/raglet/hula2.gif

daughter Ragletta

two dogs, three cats.

sharonamon

02-23-2004, 05:35 PM

Hiya All

Glad I found this board :)

I'm 36 years old and live with my wonderful partner, my wonderful yet tiring 12 year old son and my Old English Sheep Dog called Penny.

We all live in London

I have been ill for as long as I can remember but until recently denied anything was actually wrong. I have just been referred to St Thomas's for investigation into mixed connective tissue disease, Sjogren's, Raynaud's, a hiatus hernia, Lupus and already have a number of central nervous system disorders as well as unrepairable internal organ involvement (lungs).

I, like most people here, take each day as it comes and try to keep my brain as active as possible by doing stuff like crosswords and quizes, I find this helps somewhat with my memory problems. I also do voluntary work for The Youth Offending Team in my area and do a lot of work within Education in the Borough which I live.

My son is a very intelligent and funny child who has ADHD, Obsessive Compulsive Disorder and a mild Autistic Spectrum Disorder.

I was, until ill health dictated I had to stop, a mature student in Higher Education studying Education and Psychosocial Studies. Whilst unable to continue on this path, I endevour to learn as much as I can within my fields of interest and of course about my condition and that of my son. Previously I have studied Social Science at foundation level, African Caribbean Studies and interior design. (Is this begining to sound like a CV ;) ) Ok, I'll shurrup :blink:

Oh just one more thing......My friends call me a Loony Moon Maiden and my partner calls me a Lunarchick!!!!!!

Lastly but probably most importantly, I have gained a lot from discovering this website, the members, the support and the information within in it.

Sharonamon Xx

Dthatsme2

02-24-2004, 08:02 PM

[COLOR=blue][FONT=Arial][SIZE=7]

Hi all

My name is Denna and I live in South Carolina, USA. My wonderful husband of 17 years, age 37, was recently dx'd with SCLE and Fibro. He had been battling the aches, pains and strains along with the extreme fatigue for years but we just thought that it was from his job. He is a Carpenter.

We are in the process of getting him better treatment (hopefully) and look forward to the day that he can be pain free!!

We have 2 daughters, Ages 11 and 9 who at the moment can't understand while Daddy doesn't feel up to playing right now.

We have always been very active outdoors but now realize that will have to change!

This site has been truely wonderful for me! Thanks goes out to all who listens and cares!

Denna :D

LosiaLove

02-24-2004, 08:08 PM

Hello I am Jessica, I attend college in New York City, when not in school i reside in New Jersey with my folks.

I am 20 years old and i was diagnosed 2 years ago. I live with roomates right outside the city and trying to enjoy what new york as to offer.

Tanya2

02-24-2004, 10:58 PM

Hi my name is Tanya.

Had to add my intro. I am 33 yrs. old. Live in Ontario Canada. I have a 2 yr. old daughter named Tessa. A husband of 9 yrs in April named Dan. He is wonderful. We also have one dog and three cats. I have not been dx yet but the only thing missing is a positive ANA. My Rheumy says my symptoms are consistent with Lupus so that is where I am for now. I am being treated appropriately which is good. Currently at home with my daughter but have a Bsc. in Psychology and am considering taking my Master's soon.

Bye for now,

Tanya

audi

02-24-2004, 11:24 PM

:D

Hey guys!! Im Autumn from Wisconsin, USA. I am 24 years old. Ive had lupus since I was 15, along with migraines, anxiety, Sjgrens, RA, etc etc ;)

Im working full time and living with my wonderful boyfriend of 2 years, our 4 fish and our bunny named Mr Bunz :D

Other then bad days here and there, I consider myself lucky.....it can always be worse!! Glad to meet you all.

Audi :flowers:

Sleepy Sue

02-25-2004, 12:09 PM

:) Hi everyone, I'm 40 years old, have been married for 17 of those years. We have 2 children aged 11 and 9 and live in a small village in North Beds. I'm not working because of my health but in my former life was a nurse ( I specialised in the elderly mentally ill before you get any ideas that I know about ingrowing toenails)! I was diagnosed in 1990 and some days I still do't believe it!!! Spend most of my time luonging , doing crafts and sleeping, it's a hard life but someone has to do it. Best wishes to you all and a special Hi to those I have already met (in a virtual way) Sleepy Sue :flowers:

nursieval

02-25-2004, 01:16 PM

Hi all, i'm Val and as my name shows a nurse well ex I am just in the process of ill health retiring. I am 50 married to Paul and have two grown up sons 25, and 17.
I live in Leicester England and was diagnosed by Dr Hughes at St Thomas's hospital, with SLE,APS,Sjogrens, Lupus Arthritis,Thrombocytopaenia, Nephritis. I also have high blood pressure, high cholesterol, hypothyroidism, Osteo Arthritis and Asthma.
I have worked all my adult life and am enjoying being at home.
Love Val :nurse:

luppylu

02-25-2004, 02:33 PM

Hi,
My name is Sheila, I live in Arkadelphia, Arkansas USA. I am a nurse in a very busy Pediatric Hospital. I have a long history of SLE symptoms but not given the formal dx until Jan 2000. I am still able to work but I have cut way back. Life is better but I do miss the income. I am 54. My pet peeve is when people say "But you look so good, it can't be that bad". I try to never think "if you felt like this".
So thanks for the wonderful site. It helps so much in the middle of the night and I can't sleep. :woohoo:
Sheila `

sheila t

02-25-2004, 05:30 PM

WELL HI SHEILA IN Arkansas USA...FROM SHEILA IN UK..NICE TO HAVE YOU WITH US...
SHEILA :wiggle:

Chavez1417

02-28-2004, 03:43 AM

I am Angela Martin 17 I have Lupus, D.V.T, with a mutated jean. I live in Anderson, California but I was born in Germany. I hope to make friends here. Love Angela :love:

TheSheHulk17@yahoo.com if anyone wants to write me.

dolphin

02-28-2004, 02:15 PM

Hi My Name is Danielle i'm 22 and one of the youngsters on here it seems... I live in the Blue Mountains Near Sydney in Australia and was diagnosed when i was 14. I have had SLE for 8 years now and have never gone into any kind of remission :( but thankfully havent had any realy serious organ problems.. when i was diagnosed i couldnt walk and was on prednisolone for 6 years straight without anything to protect my bones...

Its nice to see that so many of you have husbands or partners to look after you.. i am pretty much on my own.. have some great friends that dont understand but as for family its may aswell be non-existant!

I work (probably more than i should) for a plumber doing his books, at a supermarket and as a nanny but am also on disability benefits...

I have never met anyone with Lupus and this site is my first contact with others with it!

Feel free to email and msn me!

Danielle

poppykat

02-28-2004, 06:53 PM

Hi
I'm Katrina and I'm new to this site! I'm 31 years old. I have only recently been diagnosed with SLE and also have Raynaulds.
Hi Sheila T - I'm also in Berkshire, England!
It's nice to read about others and where they live, I feel I'm not alone anymore!
I'm on long term sick leave from work at the moment, but am hoping to return in April, part time!
I have a lovely supportive husband and a crazy cat called Poppy to keep me company during the day when hubby is at work.
Katrina x

sheila t

02-28-2004, 08:14 PM

Hi and welcome Katrina...I have mailed you so hope you get in contact with me..Everyone here is so wonderful..look they all blushing now..lol
Nice to have you with us. :wave: :wave: :wave:
Hugs Sheila

darcey

02-28-2004, 11:20 PM

I'm from Canada "A"...Brighton, Ontario to be exact....I hail originally from England. My parents picked Canada and so I have been here 43 years. I have been diagnosed for 13 years (although I sensed something wrong prior to the DX) newly separated and the proud parent of 23 year old daughter and 21, 14 year old sons. I thought life would be over after the hubby left for a younger newer model but I have met and fallen in lust with a miltary man. Who says life with lupus is baggage?

Except for a recent bout with skin lesions, extreme tiredness and a virus (herpes) in my left eye that has left me legally blind, lupus has been reasonably easy to live with...HA HA must laugh or we'll cry. :lol:

It has been wonderful to meet all of you through this site and to know that you aren't alone.

My name is Marcia Simpson and I can be reached by e-mail at simpson_marcia@hotmail.com
I look forward to getting to know others with the same lupes as my boyfriend calls it. :hide:

CaliGirl

02-29-2004, 06:21 AM

:P Hi,
I'm Brenda and live in sunny San Diego California, USA. I love it here as the weather is usually quite nice. I do use up a lot of sun screen. I have had lupus and scleroderma since 1978. I have lived pretty much a life with very little activity until the last 5 years that things have gotten quite harried here.

I have and am still learning how to deal with the losses involved in this disease, but also have gained a lot and am able due to being on disability to spend a lot of time with my 13 year old son (who is my baby out of 5 sons) and am able to spend lots of time with grandkids (3) also. I am single and enjoy the wonderful company of my little lapso apso snoopy and goldie my persian cat...they love it when mommy is bedbound. Much love to all, Brenda :wave:

Denise from Perth

02-29-2004, 07:48 AM

Hi everyone :wave:

Lots of you know me but for the ones who don't I am Denise from Perth in Western Australia......go the Aussies :woohoo: .

I am 48, married just about 14 months ago to my first boyfriend from when I was 14 !! I have two great kids 26 (currently living and working in London) & 23 (at home), two cats, two horses :nono: big costs in horses LOL !! and live in a rural area in the hills of Perth.

I have been ill for about 14 years now, have not been able to work at all for last 5 years and had about 17 operations in last 5 years on my bones/joints etc, including a total knee replacement :shrug: . I have vasculitis, low reading of APS, gene mutation in Prothrombin time that means I am 3 x more likely to get a DVT :blink: , have oespahageal spasms that mimic a heart attack in pain :sigh: , reflux, lots of skins rashes and problems, Raynauds, and other stuff too. :(

I also have a crazy sense of humour, a +++ve attitude and try to keep on top of everything by learning as much as I can about my illnesses.

I have been posting here for over 5 years on and off.

I love reading, the puter, my animals and property (bush and bush animals), the beach, seeing friends, my family and doing arty crafty stuff.

It has been really great to read everyone's posts about where everyone is from and what their symptoms are and more about them as well.

All the best to everyone, Denise x
:D :hello:

Silver Wolf

03-02-2004, 08:41 PM

This appears to be the next logical post to make after introducing myself. :coffee: There, that's better. I do love my coffee.

Ok - back to topic - I'm Carol from the Northwoods of Wisconsin. With a national forest nearby we are visited on a regular basis by all sorts of wonderful animals - deer, birds galore, squirrels, bear, racoons, porcupines, fox, and many more. That's just one of the things I love about living here.

I was diagnosed with SLE in Oct. '03. After doing so much research, I realize I've had it for a very long time. Now I've got a legit excuse for what I thought was laziness! The epilepsy started way back in '75 and has been under control since '91.

The reason for the name Silver Wolf? Well, that has a dual meaning. For myself, the wolf part is obvious given the lupus, then there's all the silver hair that's making its presence known. The other reason - Lyndi - my long-haired silver and black sable german shepherd who if not for her happy eyes and smiling mouth would look like a true wolf. She's one who would lick you to death before any thought of growling or nipping.

I'm still learning to live with the lupus. Some times are quite easy when things are stable, but then things flare and surprise me, reminding me that I'm not superwoman or anything like it. I enjoy my life in general, taking time to enjoy my surroundings, writing when my mind works and drawing at other times. The drawing is new and so far adapts to the lupus in a positive way.

While I haven't worked in 7 years, (personal not health related) I spent many many years in the restaurant business and now I use those talents at home inventing new ways to cook healthy foods.

This is one very great site!

soremom

03-05-2004, 02:13 AM

[COLOR=purple][FONT=Times][FONT=Impact]

My name is Kim. I live in franklin, PA (USA). Was diagonised almost 7 years ago. Just coming our of remission.

I have been married almost 16 yrs. We have two boys one 12 1/2 and the other 3.

I am enjoying this site and talking to other people who understand what I am going through. :P

catherinej

03-07-2004, 01:24 AM

Hi! I'm Catherine and have been living in Santa Fe, New Mexico for about a 1 1/2 yrs. Before that I lived in Arkansas and Wisconsin. Looks like our next move might be Florida here shortly.

I've had 4 miscarriages which finally led to my Reproductive Endocrinologist (RE) to refer me to a Rheumy to get my blood tested. I'm currently ANA positve and have been diagnosed with the beginning stage of Lupus. All of this is pretty new to me. I feel like I traded my RE for a Rheumy.

Anyway, I have been married to my dh for 8 1/2 years and have 2 furbabies. One 2 yr old Yellow Lab fondly called Baby Huey and a 11 month old Black Lab pup named Miss Kitty. Yeah...we have too much fun naming our animals. LOL I recently went back to work after taking time off during my infertility treatment years. I do independent computer consulting out of my house and also do furniture sales.

angelwings

03-08-2004, 04:06 AM

:flowers: Hi!, my name is judy,i'm 47 and i live in georgia.usa-i'mm married to a wonderful man,we've been married 8 years.Between us ,we have 5(yes i said 5) daughters :o AND 8 grand children :blink: My husband is a dissabled vet,and retired .I dont workany more.We raise mini shcnauzers,and pomeranians.I was dx.with sle and fibro this year.AND its so nice to have all of you to talk to. :love: angelwings

eagle

03-08-2004, 04:46 AM

Wow I am so excited many of you live where I would love to one day travel-that is awesome!!! My name is Atret(eagle) and I am 24 years old. I live in sunny California (Los Angeles) and am a college student. I am hopelessly in love with my boyfriend of four years Kenny(who makes the greatest spagetti). I love wearing stilettos when my ever so beautiful puffy knees permit me and I also love mashed potatoes with green beans strangely enough. Meeting all of you means I'm not the only luckiest person in the world-darn it lupus I thought it was just me and you :lol: Ha ha very nice to meet all of you!

meg4340

03-08-2004, 09:37 AM

:wave:
Hi to all...I'm Karen (not the REAL Karen) lol....there sure are alot of us on here...so, I'll take Karen G......I'm 43 years old from Louisiana in southern US. I was diagnosed with Lupus about 8/12 years ago. I have three wonderful children...Jason (21) and Ryan (19)...both in college and still living at home...and my baby daughter Megan (almost 14) and the light of my life. I have a devoted and darling husband Doug who is a pharmaceutical rep. We've been married 24 years!!!! He's my knight in shining armour. I don't know how I would have made these last 8 years without him. Good idea for everyone to re-introduce...It helps us Newbies....Hey, anyone on this site ever a member of "circle of friends"... a group i used to belong to years ago on the internet for lupus patients...some of you sound very familiar.

love,
karen g
:love:

sheila t

03-08-2004, 10:26 AM

Thanks to everyone for keeping this thread going..it great to see where we are all from and more about each other....I wanted to say Hi to you all and A BIG WELCOME to all the new members.
Hugs Sheila t :love:

Weefox

03-08-2004, 04:06 PM

Hiya 2 every1, :wave:

My name is Mechelle and i live in Greenock, Scotland. I am 29yrs old and i am currently single, just finished 3yr relationship. Enjoying the single life again :P

I have Lupus - Polymyositis - Raynauds - Arthritis and borderline Osteoporosis.

No children but hopefully 1 day....I have 1 goldfish called fish! (My wee cousin named it 4 me) :P I enjoy reading, music, football (waching it, not playing! big supporter of Celtic FC), cinema, driving and going 4 walks when im feeling up 2 it.

:wiggle:

Take care

debralee

03-09-2004, 04:41 AM

Hi, :wave:
I am Debbie, 43 years old. I live in South Central, Pa. with my wonderful husband and our two youngest children. We have 4 children grown and out on their own and 3 grandchildren. We have 2 cats, 1 dog (who thinks he is human),1 rabbit and 1 bird. OOPs.........i almost forgot my son's 7 hermit crabs. :hehe:
I am still trying to get dx, but have been told by the doctor at hopkins hospital that they think it is hastimotos encephalopathy in an inactive stage. But the are exploring new things now.........so i guess time will tell. It is wonderful to have so many friends on this site.

Debbie

DreamGirl

03-09-2004, 05:30 AM

:shake: Nice to meet you all! My name is Vicky and I live in Dillsburg - South Central, Pennsylvania, USA. I'm fairly new to this site and posting but already you all have been a great help and support to me. I so appreciate it! :love: The chat room gave me a few giggles and much needed understanding friendship.
My list includes SLE, Fibro, Hashimotos Thyroiditis, Migraines, Vestibular Disorder, IBS, Allerigies, Asthma, SVT, and some possibles that are "under investigation." Aside from these things, life is good. A husband of almost 18 years, four kids - girl 18, girl 17, boy 15, and boy 13. We run a hectic household. My fatigue level is very high but the family is supportive and knows that Mom needs rest and help. Anyway, this is supposed to be just a hello! I would love to hear from some close friends by e-mail - or anyone for that matter. But a visit would be nice - I'm pretty close to Chocolate Town! Anyway - nice to meet you all! God bless and hope you all are at your best. Love - Vicky :flowers:

freebird

03-09-2004, 06:31 PM

[FONT=Arial][COLOR=purple][SIZE=1] :wave: hello everyone.. i just but in a post to find this site..brain foggyness again..i am also very new to this site and in just the few days i have been reading has made me quite happy.. well lets see i live in a small town in central i. called Sullivan in the country,, had wondeful lupus for 19 years now.. almost bit the dust before they got it under control. and that was in the big hosp. of chicago.. not alot was known then but so much more has come out so please ask questions all the time and usually you know more than the docs and others with lupus can be of get help.. i have a husband of 21 years. a daughter 34 and a 2 years old grandson logan who took four long years plus 5 months of bed rest to get here.. they just move to fl last june so that has been hard.. i thought i had about everything that a person could have, but alot of you have made me feel like a big cry baby.. right now my interst are null i kind of in lupus limbo... am looking forward to chatting with all of you.. from so many places.. i have a nephew who is studing at the un. of melbore this year and he is quite the picture taker and my sister has friend in london area.plus we sent our parents to scotland for there 50th.. and i love the woods hope to live there one day sorry i have rattled on to long you all have a well i am still not quite sure what kind of days lupie have.. remember like is a gift that is why theycall it the present... :welcome: freebird.....

otter

03-09-2004, 09:59 PM

Hi, I'm Susan and live the UK in the South East not far from London. Married late after 22 year career. Managed one son who is 7 and full of beans, not destined for more after 5 m/c's & officially declared with secondary infertility in 2001. :doh:

freebird

03-09-2004, 10:09 PM

[COLOR=blue] :wave: thanks for the reply otter, that is an intersesting name.i have a 5yrs old stepgrandson.which icall grandson. who is also quite full of beans as is is older brother whois 6 and knows everything and is right about all things. would trade them for anything but not sure i could handle them all the time.. so what is your lupus status???? oh time has gotten away from me again.. hubby will be home soon..someone has to work.. whick it was me again.. well anyway thandk ffor the e mail.. have a ggod day.. freebird

otter

03-11-2004, 10:08 PM

hey Lupie lou.
Is this county big enough for the both of us :D

Jenlynn

03-12-2004, 02:01 AM

I am Jenlynn from North Georgia, USA...I have sle among others and have been diagnosed for over 12 years now.

I am 44 and have a husband, three kids, three granddaughters, one cat and one dog.

Jen

wenny

03-12-2004, 06:59 AM

[FONT=Arial][SIZE=1][COLOR=purple][B]

G'day,
:shake:

Obviously, I am from Australia, sunny Queensland to be exact, about an hour north from the crocodile hunter_in case you cared. I am a newbie to this site, and a relatively newbie to this condition. I have been dx with MCTD, with elements of Lupus, Scleroderma, Raynauds, asthma, psoriasis and other things yet to be confirmed. About me, I have a wonderful husband of 16years,:love: two err, wonderful? children, g/12 b/15 and I'm 35, lol.
Anyway that's me.
Thanks for a wonderful site. I look forward to spending many an hour here.

PiperM

03-12-2004, 04:14 PM

:flowers: Hi everyone, I am new to this site. My name is Piper, I am 33 and I live in Northeast Ohio (usa) I have three kids, a son who is 8 and two daughters almost 3 and almost 5 and a wonderfull husband who was my high school sweetheart. I have SLE going on 11 years.

Belinda

03-15-2004, 12:36 AM

:wave: HELLO MY NAME IS BELINDA,
I LIVE IN HESPERIA, CALIFORNIA. I WAS DIAGNOSED WITH LUPUS NINE MONTHS AGO. I HAVE CHRONIC FATIGUE AND RAYNAUDS. AT THIS TIME I AM UNEMPLOYED, I HAVE BEEN DIVORCED FOR TEN YEARS NOW. IT GETS VERY HOT HERE SO I AVOID GOING OUT IN THE SUN TO MUCH. MOST DAYS ARE VERY HARD FOR ME BUT I AM LEARNING TO COPE. I HAVE ONE CAT TIGER AN AMERICAN SHORT HAIR TABBY WHOM I LOVE JUST LIKE A CHILD. PETS CAN BE SO COMFORTING WHEN YOUR NOT FEELING WELL.

lejiver

03-18-2004, 09:39 PM

Hi
My name is Sarah :wave: I live on the south coast in Hampshire UK. I've just turned 40, oh my, already :o Married to Colin for 16yrs ahhh with 2 girls 15 and 13. The eldest has symptoms of sle but not tested yet. I'm so glad I found this site , thanx. Oh I'm also a special needs teacher which keeps me positive. :love:

Sissy

03-19-2004, 12:24 AM

Hi all, I'm Shirlyn from Kentucky, Home of the University of Kentucky Wildcats!! I'm married 36 years,two sons and two adorable granddaughters. Have recently stopped working after 30 years. Have SLE and Fibro,and RA. This site has been a blessing and a joy to meet so many just like me. :wave:

angelwings

03-19-2004, 01:06 AM

:flowers: Hi! I'm judy. I live in georgia,I'm 47 dx.with sle and fibro.MY husband and I have 5 daughters between us and 8 grand kids.We raise mini schnauzers and we have a pomeranian named lacyand a cat named sugar,oh and my husband has bunches of chickens,all pets!I was dx. feb 2004,so i'm new at this.Glad to meet every one. :love: angelwings

loopiegirl

03-19-2004, 04:31 AM

Loopiegirl here,

Just found this forum! I live in the SF Bay Area, practically born and raised here with two years in NY just recently.

Dx'd back in '97.

Am a freelance artist/designer and an art teacher.

it's been so interesting seeing where everyone is.

take care!

sheila t

03-19-2004, 05:44 PM

ITS ME AGAIN...LOL.. :D

THANKS EVERYONE FOR KEEPING THIS GOING...IF ANYONE NOT POSTED IN HERE, PLEASE DO...WE HAVE ALL BEEN ABLE TO LEARN SO MUCH ABOUT EACH OTHER....I BEEN COMING HERE 2.5 YEARS. I WOULD BE SO LOST WITHOUT YOU ALL...
HUGS TO ALL OF YOU
SHEILA :love: :love: :love:

Kaley

03-19-2004, 11:01 PM

Sheila and Everyone New:

This is a wonderful thread!!!!! There were 2400 views before I just got on (to make it 2401 I suppose)!!!! Obviously, people are interested in the content!!!!

There have been SO many new people lately, I just can't keep up!!!! I am sneaking into this thread, since all the new folks seem to be finding it, to remind everyone:

I am KALEY, from Seattle, WA, used to be a legal secretary, now living on disability, have SLE, Sjogren's, Fibro, Bursitis, Pleurisy, Asthma, TMJ, Keratoconus (eyes), GI hassles, and some other stuff :angry: :rolleyes: I live alone in an apt., where I have been for over 20 years. Never married or had kids. Have a few friends, but no family in this area. Love to play with my stickers and make cards and projects with three dimensional decorations. Allergic to animals, drats. Also love to read fiction and to discuss psychology or to support others. Am very compassionate, but don't always have enough energy.

I wanted to tell everyone and the new folks especially, that I am here for all of you, but I haven't been able to post as extensive an answer or an answer at all as I have wished to some of you .... or I haven't been able to answer as quickly as I wanted to .... I feel badly about this .... but sometimes I am dead out on brain power or on energy .... as the illness goes .... or I am off to the dr. AGAIN. I still intend to answer many of you, as my time and energy permits.

Please keep coming back to this board; there is a wealth of information here, tons of support, a great chat room, and you will make friends around the world, as I have. It also helps you to feel accepted and to deal with your illness(es). Welcome to everyone new that I haven't been able to write to yet.

Blessings to All of You,

LOVE, Kaley :love: :love: :jump: :goodvibes: :hehe: :cloud9: :hugbetter: :wiggle: :flowers: :luck:

BrendaM

03-20-2004, 01:23 AM

Hi everyone,

I am new here, too, and not dx yet, and very frustrated with my rheumy. But... I am from GA as well, well not from GA, but have lived here since I was 18 and am now 42. :) I live north of Atlanta with my wonderful husband and three pug dogs. I have two step daughters who are 26 (identical twins) who lived with us since they were 11 so I consider them my own. And, one is pregnant and due very soon! They are both married and own their own homes and are great kids. (even though they hate for me to call them kids)

I do work full time at an engineering firm doing electrical design and also run SE Pug Rescue (www.rescuepug.com). I am trying to back down from Pug Rescue some but it's taking a little time.

This site has been great!!! So supportive and sooooo informative.

Thank you everyone!

Mary61_@

03-21-2004, 04:34 AM

HELLO, EVERYONE. I AM MARY FROM TEXAS.....61 YEARS.....MARRIED WITH 2 GROWN SONS.....4 GRANDCHILDREN.....1 DOG.....3 FISH.....2 BIRDS....2 HORSES.....AND A PARTRIDGE IN A PEAR TREE :D

JUST DIAGNOSED WITH LUPUS SLE RECENTLY....HAVE LEARNED A LOT FROM THE WONDERFUL PEOPLE ON THIS SITE....JUST WISH I COULD REMEMBER IT ALL .... AM WAITING FOR BLOOD WORK TO GIVE A MORE DETAILED ANALYSIS OF WHAT'S GOING ON.....HAVE RENAL INSUFFICIENCY....COUGH THAT WON'T GO AWAY......LEG PAIN ....BURNING FEET......BRAIN FOG.....AND OTHER STUFF
WITH A DETERMINED SENSE OF DENIAL THAT ALL OF THIS IS GOING TO CHANGE MY LIFESTYLE

PERHAPS I HAVE A BIT TO LEARN.

Pollyanna

03-21-2004, 06:44 AM

Hello all,
Susie "Pollyanna" here - some of you may remember me as SusieB. I used to come here quite frequently until the seizures got so bad that I had to stop using the computer (bummer). Well thankfully I appear to be pretty much in remission for the moment and have truly enjoyed reading all the posts in this thread. Thanks Sheila for keeping it "alive"!

I'm 45 on Monday and had SLE and/or APS for around 20 years, but just got diagnosed in the past 2 years. Sorry, but due to serious brain damage, I truly can't remember exactly when! :( :wacko: Also the usual related problems including sjogren's, fibro, osteo, spinal stenosis, IBS, etc, and the newest is coronary artery disease. Had 3 angioplasties since last November with stent placed in right coronary artery due to 80% blockage. :nurse:

My dh and I have been married for 20 yrs and were blessed with a miracle baby boy 16 yrs ago. My guys are my rocks that stand firm no matter what... what a blessing! We live on the East Coast of Virginia (USA) with our 2 English Setters, and Lilli the tabby cat. We just lost our George; our 19 year old cat!

That's about it - thanks to everyone here for all the support and good wishes! You are the best!!! :love:
Pollyanna

Maura

03-21-2004, 09:09 AM

I am Maura.I live in Antwerp, Belgium and I am married.
I don't have any children but we are in the middle of an adoption procedure.
We have a really nice Golden Retriever.
I have symptoms of lupus for about 10 years now.

Maura

chbin

03-21-2004, 04:09 PM

Hi - my name is Bin, chinese origin, 27, female, diagnosed with SLE last month, two weeks before my birthday, not a very nice birthday present...sigh...

I am in Kuala Lumpur, Malaysia.

I have two cats, Baby and Yee. I live with my bf of 5 years.

Mary61_@

03-22-2004, 03:11 PM

:wave: Hi, everyone, i'm Mary, 61 yrs., married 37 yrs, have 2 grown sons, 4 grandchildren, 3 fish, 2 birds, 2 horses, 1 dog, and a partridge in a pear tree :D

Just diagnosed recently, but have had symptoms for years (figured this out by all the knowledgeable people on this site). Have renal insuffiency, painful legs and other parts at times, much weight gain, much hair loss.

I look for humor where ever I can find it.

Wish i could figure out how to put a picture with my name, but can't get past the prompt that asks for a URL address....which i have absolutly no idea what that is. Have limited computer skills. :wacko:

Unicorn

03-24-2004, 09:41 AM

[FONT=Geneva][B][SIZE=14][COLOR=purple]
Hi everyone,
cant seem to get this posting thing quiet right this is the second one i have written but it vanished before i could send it.

Anyway, I'm Netty, im from sunny Devon in England, that is if anywhere in england can be sunny.lol.
I'm 33 not 35 like i posted yesterday(MY brain aint what it used to be!)

I have 3 children(11,9,8) good kids that look after me when i feel bad.
My partner being 15 years older than me doesnt understand SLE or other peoples illness. He dies when he has a cold though.

I think it is brilliant that i can talk to people all over the world, you all know so much about your conditions i'm sure that it will help me no-end!
Nice to meet you all

Netty :shake:

MREDHEAD

03-24-2004, 10:26 AM

:wave: HELLO to all of you this is a good idea
I am 46 married to Phil I have 2 sons Darryl 24 and jack 13
I work full time I enjoy it but it makes me very tired
I was diagnosed 4 years ago although I know for years I had something wrong with me nobody spotted it until I blew up and turned purple, not a pretty site.
I am having a bad time at the moment but resting as much as I can but I am getting frustrated I cant do much around the house.I used to be so fussy but not any more it gets done when it gets done.
I love music, I try to read but find it hard to consentrate for long my mind wonders
We do not have any pets.
I live in Leicester in the Uk I was born in Weston super Mare but moved when I was 9 with my mum sister and brother. I miss the sea so much as we used to go to the beach every day after school.
I love going to places like Greece and Cyprus I love their way of life so relaxed and laid back :goodvibes:

John Moss

03-24-2004, 10:31 PM

John Moss here, 60 in April, married 36 years on 30th March, two daughters, one
son, four grandaughters ( I'm in Heaven ) and one grandson. Live on the Wirral
Peninsular in Cheshire England. No pets, Manx cat went to heaven last year aged
23. On the waiting list for a kidney and not holding my breath ! . :angry:
Love these boards :hello:

Starduster

03-25-2004, 02:49 AM

Oh wow, what a lovely Lupus family we have... this is great. Loved the gal above who lives on Lupie island with all those man servants. I could really use a back rub.. a deep back rub.. it aches so much these days.

I'm Stardust, I'm 30... I live in the SE Michigan area. It's trying to act like spring here.. a few crocuses blooming.. tulips poking thru the ground and a lot of sunshine lately.

I have a very nice husband who is sympathetic to my needs, 3 grown sons, 4 grandbabbies and one baby niece I love spoiling...

I also have this really great cousin I call "Lil Red". She is such a good friend and treats me so nice.. I wish I could be near her more often.. we are thousands of miles apart. I live in Michigan and she in B.C. Canada.. near Vancouver.

I'm kidding about 30.. I'm 54. Just kidding LOL.. well, I had to pull your leg... just a little bit

Love, Star http://starduster.walagata.com/catshed.gif

Shera384

03-25-2004, 08:39 PM

Hello All,

It was nice to read all these posts.
I'm Dee, age 47 married to Toni, with 2 children ages 27 & 21 & grandson age 4, 2 dogs a house rabbit, 2 canaries & 7 pond fish That breed every year lol.

I live in Wakefield, West Yorkshire, UK

freebird

03-25-2004, 09:07 PM

:wave: :wave: :welcome: :erm: i can not express how much joy this site has brought ot me.. i am also new only about 2 wks wish i only had lupus that long going on 19 years now..but this site has so much information and knowleagelable misspelled that one dont think i can blame thaton brain fog i am just a losey speller i need spell check. i hope you all keep posting lupus has many faces but alot of similar ones to..cant decide if i want to print out this whole thing my memory is not as good as it used to be.. this site can make you feel good on the worst day even if you do not want too..so i will end now before the cramping starts. remember life is a gift that is why they call it the present.. KEEP POSTING. maybe soon i will figure out how to change colors.. have a good day all.. later freebird

freebird

03-25-2004, 09:09 PM

;) oh one more thing.Star are you the one whose cat has the intersting tail. Your cat is precious..looks like one i had a long time ago..later freebird

deNile

03-31-2004, 01:10 PM

Hi,
Sherry here. I live in Cairo Egypt with my hubby and almost 2 and 6 year old girls. We have lived here for almost a year. There are many perks to an international job, medical care isn't one of them. I can see the Saquarra pyramids outside my front window. OK so they are a dot on the horizon when the air is good, but I can see them. Home is still Georgia in the U.S. I have recently been diagnosed with Undifferentiated Connective Tissue Disease, but I am still not convinced it isn't Lupus. Thankyoiu everyone for sharing your knowledge and experiences. My family has been referring to my problems as my weirdness for almost 20 years. I am sorry that you all have these symptoms but it is nice to know I'm not just a freak of nature, or at least that there are other freaks of nature out there with me.

Sherry

Christine UK

03-31-2004, 03:07 PM

so glad my dear friend sheila t started this thread of where we all live...i am the lady that lives on lupie island((((i wish !!)))))) and i said i have man servents ..well i see i forgot to say we have lady servents for all the chaps on here...mind you saying that they dont need no beautiful woman when they have ALL of us !!! lol ...all have a good day x x x

Isha

03-31-2004, 10:28 PM

Hello There.
My name is Aisha. I'm from London. 30 years old.
Married for 8 years.
Have twin boys 7 years of age and a 5 year old daughter.
At present have been suffering Lupus related symptoms but still waiting to be diagnosed.
All you people out there have been like a breath of fresh air.
Thank You

:halo:

hattycat

04-04-2004, 12:49 PM

:wave: Hi
My name is Vikki, I am 14 years old and live in Newport, south wales, UK. I was dx woth SLE a month ago after suffering for 18 montha. I live at home with my mum, dad and bro and, of course, my cat, Hatty. :flowers:

happy5

04-05-2004, 12:53 AM

:hide: HI I'M JAN FROM LONDON U.K.
I'M 50, BEEN MARRIED 30 YEARS TO A REALLY GREAT MAN.I HAVE TWO

CHILDREN GIRL 26 AND A BOY 27. I HAVE SLE, ARTHRITIS, FALIGUE .JOINT PAIN,REYNAUDS,BAD BACK AND MORE :D MY DAUGHTER IS UNDER THE LUPUS CLINIC , THEY A NEARLY SURE SHE HAS SLE TOO! GOT TWO DOGS.LOADS OF FISH :goodvibes: NICE TO MEET YOU ALL,AND MAY YOU ALL STAY WELL :nurse:

sheila t

04-05-2004, 06:05 PM

FIRST OF ALL THANK YOU FOR EVERYONE FOR REPLYING TO THIS THREAD AND A BIG WELCOME TO ALL THE NEWBIES...I SEE SOME OF YOU ARE FROM LONDON..I AM IN BERKSHIRE....SLOUGH....LOVELY TO READ SO MUCH ABOUT EVERYONE AND WHERE YOU ARE ALL FROM...HOPE YOU ALL HAVING A GOOD DAY.
SHEILA :love:

P.S IF ANYONE WANTS TO ADD ME TO MSN OR MAIL ME PLEASE DO...

sheilatush@hotmail.com

erin2004

04-05-2004, 07:45 PM

Hi I am ERin, I live in Florida. I have a beautiful 5 year old little girl. I am getting married on Easter day. He is so wonderful. I am 23 and was diagnosed with lupus 2 weeks ago. I am trying to take it one day at a time. If any one wants to email me it is erin_patrick@netzero.net

Skreeming_Banshee

04-10-2004, 03:34 PM

Hi, I'm Cristy {or Banshee} and I live in West Virginia USA. I've been married to my husband for a little over 5 years and we have 2 beautiful little boys. Phoenix is 3 and Malachi just turned 1 a week ago. I was DX, after being sick for 6 years, this last Thursday.

DreamGirl81602

04-12-2004, 10:32 PM

Hi my names Stephanie and Im 19 years old and from New.York, I have had Lupus for 5 years now.

msmarydee

04-12-2004, 11:02 PM

:wave: Hi All.....I am from Memphis, Tenn. I am 48 with 3 kids. One daughter 30 yrs old, one 24 yrs old and a son 19 yrs old. I have 3 grandkids. One grandson 6 1/2, grandaughter 5, and a grandson 19 months. I also have 3 step daughters. One is 19, one 17 and one 7. My hubby and I have been married for 4 years. We have no pets, but would love to own a dog as soon as we can get our own home.

I was dxd in 95 with SLE, Fibro, early reynauds and sjogrens. I am doing ok right now. Dealing with depression but think it has more to do with financial part of it.

Thanks for asking!!!! :flowers:

charinfl

04-14-2004, 02:58 AM

Hello to ya'all -

It's so nice to be able to chat with such nice people with even more problems than I have !!! (no offense intended) It's just whenever I start feeling sorry for myself, I find someone here with alot worse symptoms than I have, & I stop feeling sorry for myself ! You must know what I mean.

My name is Charmaine, I'm very happily divorced, have 2 grown sons & we all live in sunny Florida. I love it here. My dream would be to become a beach bum !!! I'm still undiagnosed but have never had any problems with the sun. Just everything else ! LOL

Well, I think I've bored ya'all enough for now. Take care & feel free to e-mail me sometime.

charinfl :wave:

lilymcherokee

04-14-2004, 03:56 AM

Hi, My name is Lily, I'm 33 happily married, and I'm from Quebec Canada. It's been a while since I've been on the forum. I had a little computer problem. I'm looking forward to share experiences and information with you.

Thank you!

50_toldat28

04-14-2004, 04:01 AM

:wave: I'm from Las Vegas, NV. I'm 50 yrs. young. Have a daughter 31 and 2 grandchildren. A girl 8 and a boy 4. ;)
:flowers: :halo: :love:,
Shel

aitchman

04-14-2004, 07:41 AM

hello all,
my name is Steve, I am 57 years old, married to Carol for 35 of those. We have two daughters and one grandson, soon to be joined by one? more.

We lived in Manchester England until 1997 when Carol and I moved to Scotland, it`s a lovely country. We love it here.

I have been diagnosed with SLE for the last 15 years, my daughter Joanne for 16 years.

Joannes illness was stable when we left but for the last couple of years SLE related complications have made her condition much worse and have made us doubt the wisdom of moving.

Parental love and associated pressures never fade.

Aitchman

50_toldat28

04-14-2004, 10:52 AM

:wave: It's me, again, (Shel) I forgot to tell you about my 2 wonderful cats and my great hubby of almost 16 yrs. (well, married 6, lived together as man and wife for 10....so I guess you could say 16 :hehe:) It's so neat to know where all of us are! :D My cats are wonderful 'cuz they are so attuned to my feelings. They are 10 and 3. The oldest is just like a dog, loyal to the end, and the youngest gets depressed with me. He sleeps when I sleep (right along-side) and when I cry he's right there to try to comfort me by nuzzling and lots of kisses all over my face. I've never been as grateful as I have with finding this site. I didn't start til March of 2004. :P
:love: :love: :love: :love: to you ALL,
Shel

sheila t

04-16-2004, 11:01 PM

ITS LOVELY TO MEET YOU ALL...FROM SHEILA IN SUNNY SOUTH ENGLAND UK (NOT RAINING FOR A CHANGE) LOL.
HUGS
SHEILA

maz1

04-20-2004, 01:12 PM

:wave: hi my name is Marion I'm 41yrs old and I live in York I'm not Yorkish I'm Scottish but moved here two years ago with my family I have three kids, a son 17yrs and two daughters 14 and 12yrs they are wonderfull and have put up with alot but never complain.

would love to get to know people to talk to I have not yet been diagnosed.

speak soon . :love: M xx

shawn71

04-20-2004, 05:34 PM

Hello, My name is Shawn, I'm from Southern Indiana, usa. I'm happily married w/ 3 wonderful children, 2 girls, 1boy. :halo: Our boy turned 7 in March, our oldest girl is 7 in June, and the baby is 2 in June. I was diagnosed with sle when I was 15yrs. old and I'm :erm: ummm 32yrs old...(wow that was hard to type,lol) I've had problems off and on over the yrs. but nothing major until I've gotten older, not that I'm old(lol) :P :afraid:
I look forward to making new friends on here, its nice to know there are people who understand what I'm going through, until now I've had a hard time even talking about this subject at all :sigh: I guess I've just been afraid to admit what was wrong with me, I would block it out. :hide: :notlook:
I have a Dr.'s appt. with a specialist today and I'm nervous,wish me luck!
shawn :flowers: :coffee: :love:

freebird

04-20-2004, 07:24 PM

:welcome: Dear Shawn, I am also nnew to this site. not to lupus.had it for 19yrs. This site has been a god sent to me there are alot of well informed people here who are willing to assit you in any way and are alott of fun to chat with..zmy daughter was 13 when iwas ds..i really donot know how youall do it with small children.. but it is amazin the thing we can do sometimes.. please join in the chat romm and i hope you like it here.. i live in a small town in central Il.. Plus i have some friends that live in southern Il.. feel free to email anytime.. again welcome. :wave: :flowers: :flowers: :flowers: freebird

tuffy

04-21-2004, 07:30 PM

im craig.....

i live in sheffield in england,im 34, married with five kids.

i havnt been diagnosed yet!!! :wave:

50_toldat28

04-21-2004, 08:24 PM

:hello: :wave: craig,
Well if you have anysuspicion that you may have lupus or anything related to lupus, this is the place to be. Everyone in here is so sweet and supportive and even though we're not Dr.'s :nurse: we can come right out with our fears, thoughts, symptoms, or just vent a little ;) :welcome: :welcome: :welcome:
Hope to hear more from you. I live in Las Vegas, Nevada, USA.
:love: and :halo:,
Shel (50_toldat28)

sheila t

04-28-2004, 02:43 PM

O.K ITS ONLY ME I AM BACK AFTER MY FEW WEEKS OF ILLNESS..JUST WANTING TO KEEP THIS THREAD GOING..SO IF ANYONE ELSE WANTS TO ADD TO IT, PLEASE DO...
LOVELY TO BE BACK AMONG FRIENDS
HUGS
SHEILA T :love:

Pasty

04-28-2004, 02:52 PM

:wave: Hi my name is Tracy (pasty) and from my log in name you can probably guess I am from Cornwall. I have three children 8, 9 and 10 and a wonderful husband. We have been married for 6 months. We have a chocolate labrador named Barney. I have just joined this site and look forward to talking to people in similar circumstances as me.

artist

04-29-2004, 01:18 AM

:coffee: hi I'm kristi, age 45, I just found this site it's great .I've lived with SLE, fibro.,sjogrens for 19 yrs. and didn't know anyone with my problems. I live in Malibu, California .I'm a landscape painter, and love exercizing outdoors when the ol' bod co-operates,love to garden,3 dogs 2 cats,& 2boys 14 & 22.I'vebeen married for 25 yrs.(it's had it's ups &downs).It's been wonderful reading about all of you. :flowers:

50_toldat28

04-29-2004, 04:49 AM

:wave: and :welcome: :welcome: :welcome: kristi and tracy,
This is a very good site. These women in here are 'absolutely awesome'! B)
I'm from Las Vegas, NV. I have 2 cats, soon to be 3 cats. I'm married to the same great guy for 6 yrs. but we lived together for 10 yrs before that.
It's nice to :shake: :shake: you!
:love: and :halo:,
Shel :flowers: :flowers:

Amanda Davidson

04-29-2004, 07:49 AM

Hi there,

I am 35, married with two pre-school children, and live in Grantham, Lincs, UK. At present am undiagnosed but hoping!

Amanda

bluecarliepup

04-29-2004, 10:29 AM

:flowers: HELLO I'M SAMANTHA FROM DUMFRIES IN BONNIE SCOTLAND.
I have 2 kids of my own (11 and 9 and 2) step kids (21 and24) and 2 grand kids (5 and 1). I am 30 yrs old and have just been told that i'm lupy but that's nothing new, i've been told that all my life.

I'm newly married and glad i got married before my dx or else i might not have gone through with it.

I love this site as there is a wealth of information on it from people who live with lupus rather than read about it in a book.

:welcome:

speak to you in the chat room

50_toldat28

04-29-2004, 03:48 PM

:wave: :hello: Samantha, :flowers: :flowers: :flowers: :welcome:
I'm not sure if I am in this thread or not. I'm from las Vegas, NV in the USA. I'm married and have 2 cats soon to be 3 cats. I have 4 grown children and 4 grandchildren (4-13). :welcome: to our family and we hope to be seeing more of you. B)
:love: and :halo:,
Shel

darcey

04-30-2004, 05:51 AM

Welcome to all the new members....I am darcey and I have been DXed for about 13 years...but symptoms showed at different times prior to that. I have 3 children, 2 are card carrying members of the working world...23 girl...21 boy...and my baby boy who is 14.

My lupus shows up in varied symptoms...Raynauds, arthritis, sjojrens, and just recently a horrible bout of psoriasis. I also developed Kerititis in my left eye which has damaged my cornea. Has anyone had this problem? Seems I'm not a candidate for a corneal transplant so at the moment I'm legally blind in the left eye, anyway again, welcome to all the new member.

Oh ya, I'm from Brighton, Ontario, Canada and I see that Lupus or symptoms of does not discriminate location???

Have a great day....to all :jump:

John Moss

04-30-2004, 09:58 PM

John from Wirral, Cheshire UK. Aged 60, feel 70 married for 36 years to a wonderful wife. Three kids and five gorgoeous grandchildren. Waiting for a kidney with my fingers crossed.

shawn71

05-01-2004, 11:01 PM

John
Hello! Just a short note to say I wish well and you and everyone here are in my prayers. I go to the dr. this coming Tuesday to find out about my blood work, wish me luck.
I've tried to get to the chat room a couple of times , one time there was nobody in there, another time there was a couple of people in there but I could get no reply from anyone, not sure what the problem is, but I was wondering if there is any certain time and day that lupies get together to chat?? If anyone has any information on this i would appreciate it, thank you.
God Bless all! Shawn :P :love: :halo: :flowers: :coffee:

50_toldat28

05-02-2004, 01:24 AM

:wave: Shawn, :welcome: :welcome: :welcome: to our lupie family,
As far as the chat rooms go, you just have to try at different times. ;) There are people in here from all over the globe :blink: It was mind boggling to me at first, just how far reaching it is. :wacko: But then, lupus doesn't 'discriminate' :hehe: I haven't properly intoduced myself. My name is Shel, I live in Las Vegas, NV (USA), I have only been diagnosed by one Dr. and that was at 28. But, the good news is that I have an appt with a Rheumy on the 14th :nurse: :woohoo: Hopefully, he can tell me more. Unfortunately, I'm stuck in HMO he**! :erm: Anyway, it's nice to meet you, Shawn :shake:
:love: and :halo:,
Shel

rosemary

05-02-2004, 02:17 AM

:wiggle: :D :coffee: :goodvibes: :hide: hi everyone, i am rosemary. i joined in the middle of april. i have emailed a couple of times and have received replies, thankyou. i have not been around lately, i have felt alittle"off"!!!!!!!!! ( i am sure you know what i mean? ) i have been very brave, i have been diagnosed with fibro, but have had lots of other symptoms and antibodies swimming around in me!!YUK!!! my next rheumy appt was in july but i phoned up and have been fited in next week. i am so pleased, success!!!!!!! i live in andover, hampshire, with my partner and my soppy black lab!!!!!!! hope you are as ok as can be rosemaryxxxxx

50_toldat28

05-02-2004, 06:45 AM

:wave: :welcome: :welcome: :welcome: Rosemary,
It's nice to meet you :shake: I live in Las Vegas,NV(USA). I'm married and have 2 cats, soon to be 3 cats. I'm getting a new one from my vet for Mother's Day! :D I was dxd when I was 28. Then seemed to go into a kind remission,I think :blink: . Anyway, now, I can't seem to find a Dr. who'll agree with the first dx. I have a Rheumy appt on May 14th. It's not that I WANT this disease, I just want to know why I feel so crummy. In Feb., March, and April I had pleuresy, pericarditis, and pneumonia, all for NO reason. I have night sweats and insomnia, joint pain, epilepsy (since 11yrs old) and in '79 I had to have my spleen removed because of ITP(Idiopathic Thrombocytopenia Purpura) The Fatigue goes without saying. So, you can see why I want some answers. :wacko: Good :luck: on your Rheumy appt. :flowers: :flowers: :flowers: :flowers: :flowers:
:love: and :halo:,
Shel

rosemary

05-02-2004, 12:51 PM

:woohoo: ;) :lol: : :goodvibes: hi shel, nice to meet you. :hello: i am so relieved to be able to talk to people who do understand!!!!!! i have had bells palsy, shingles thyroid( underactive) and lots more over the last 5 years, and couldn`t understand why? i was referred to a rheumatologist last year who confirmed fibromyalgia, then told me i had lots of other antibodies !!!!!! i have been to a liver specialist,etc. antibodies are there, but no answers!!!i feel as you do, i don`t want this disease., but i will feel better if someone could just tell me whats going on?the fatigue is thw worst i think, cause it hits you without any warning!!! also i have these lovely blotches all over my cheeks and nose now!!, very attractive!!!!! i have taken a photo to my rheumy, in case they change over the week!!!! i finally got to sleep at 3 o clock this morning, another symptom, also sweaty ugggg!!!!!. well hope to hear from you soon keep positive, and as well as you can, rosemaryxx :flowers: :

50_toldat28

05-03-2004, 07:15 AM

:wave: rosemary,
:welcome:, also to the ' :yawn: ' club. There are lots of us in here that do not sleep very well. Except during :hide: depression. When I am awake, I try to go onto the computer, so anytime you can't sleep, write me! I just may be awake, too :blink: :highfive:
:love: and :halo:,
Shel
:flowers: :flowers: :flowers: :flowers: :flowers: :flowers:

shawn71

05-03-2004, 07:36 AM

Shel,
Hello! Nice to meet you! :shake: Just wanted to say thanks for the reply concerning the chat rooms. I will keep trying. I go to the dr. Tuesday and I'm nervous. (In a way I want my husband to be there, in a way I don't , does that make any sense?) I'm not sure if he will be able to go, depends on if we get a babysitter. I'm so sleepy, its almost 2am here(IN), my baby doesnt feel well so she is not sleeping :( :coffee:
Well Tuesday I will know the results of my blood work, wish me luck!
I will go for now!
God Bless Everyone! :halo:

rosemary

05-04-2004, 01:43 AM

:y
awn: hi shel, can`t sleep again!!! i have tried, but too hot and achy :tantrum:
is : anybody there??????OOOOOOOOOOOOHHHHHHHHHHH!!!!!!!!! :cry: rosemary
xxxxx

50_toldat28

05-04-2004, 03:31 AM

:wave: Sweetie,
Nope! I went to bed at 1:00a.m. and didn't wake up til 1:00p.m. I don't even remember getting up to go potty! I'm so sorry about your lack of sleep :hugbetter: . Try Melatonin. I't only 3mg. and sold over the counter. It's a natural horomone that your pituitary gland produces, but sometimes doesn't produce enough :blink: . I've been on it for about 8 years. Sometimes it helps and sometimes not. I'll keep you in prayer.
:love: and :halo:,
Shel

rosemary

05-04-2004, 11:58 AM

:o :wave: :flowers: hi there!!! i am pleased you slept so well, it really does you a power of good doesn`t it? i had a really, really, really bad night!!! i was still awake when he went to work, ahhhhhhhh!!!! i pretended i had slept, but he knew< bless him!!!!!! i will try that herbal, getting quite desperate now, cause it seems to be every night!!!! i have to work today, 14.00 until 22.30 !!!! torture!!!!!! i hope you are ok,(well as ok as can be!!!) speak to you soon rosemaryxxxxxxx : : :thumbs:

loopylu

05-04-2004, 02:06 PM

Hi loopylu from luton here !

I cant believe how many people live near me let alone in the UK! It amazes me that there are so many and yet whenever I talk to docs and people about Lupus they stare at me blankly! :wacko:

My birth certificate states that I am 35 years old but my sense of humour and lust for life mean I am 21 forever! :goodvibes:

I have two children, girl 11 and boy 8 from 1st marriage. Both as mad as me so life in our house is hectic and interesting on a daily basis. :jump: :tantrum:

The love of my life is my partner dave who has not only taken on two children, a dog and a twisted ex hubby but has to cope with a loopylu from luton with lupus! I was DX just after we met and he has been absolutly fantastic, my rock! :wiggle:

Made a decision when I was DX that this was not going to stop me making the most of my life and doing what I want to do! :woohoo:

:wave: :wave: :wave: :wave: :wave: :wave: :wave: :wave: :wave: :wave: