Recurrent miscarriage

[Carys]

Hi. I'm new to this site. :wave:

I was diagnosed with SLE 12 years ago.

It's pretty much under control, and has been for the last 4 years, so hubby and I have been trying for a baby.

It looks like I'm going through my 3rd miscarriage in 9 months - all ended before 10 weeks.

After the previous 2, I was referred to a clinic in Birmingham, where they did various blood tests to see if there was an apparent underlying cause for the miscarriages.

To cut a long story short, I don't have sticky blood. I have, however, been taking 75mg of Aspirin in this pregnancy, as I have CNS lupus and an MRI scan indicated that I have possibly had a stroke in the past.

Why am I miscarrying when I don't have sticky blood? Is it just because I have lupus and, therefore, I'm just 'not well'? Has recurrent miscarriage happened to anyone else who hasn't got sticky blood?

In a way, I was hoping for a sticky blood diagnosis, so that there could possibly be some reason behind the miscarriages and maybe some more treatment.

I'm so down at the moment. I feel as if I don't want to try again, but I can't imagine life without a child. I'm 36 in 2 months and I feel as if time is against me. :(

Thanks for listening, guys.

Carys x

[tink]

:love: Hi Carys, I am so sorry how awfull it must be for you ,to go through so much its just terrible .
I have herd of people who don,t have lupus having miscarrage ,
I know some of the girls will be along to help that know a lot more than me .
as for your age I know women in there 40tes having kids and older
I know what you mean though now they put so much into studys and things about it .
I some times think the older generation had it easer not knowing
anyway i just wanted to let you know we are here if you need to talk .
sending :hugbetter: hugsyour way.
I am sorry I can not be of more help , :luck: Warm Wishes :love: tink
I am probebly saying it all wrong ,pleae forgive me if i am i just don,t want you to feel alone right now .

[Carys]

Hi Tink. Thank you so much for the kind reply and your support. :love:

I suppose I just don't know what to do next! I think, at the moment I need to be grieving over this loss - but I'm so anxious to get some answers about what I can do in the future...

I will just have to take each day at a time!

Thank you so much, once again.

Love and hugs,

Carys xx

[mazie33]

:wave: :flowers:

hi carys


im so sorry to hear about your loss :cry:

i two had a ruff time with misscarriges there is seven and a half years between my son and daughter
and i had eight misscarriges inbetween :(

in the end they put a stitch in to hold my daughter and she still came 9 weeks early a little small but perfect :thumbs:

there is things they can do to help
good luck :luck: :luck:


:hugbetter:

[childrenrtreasures]

Carys, I'm so so sorry :cry: . I've had two first trimester miscarriages and a preterm baby. I was just tested for "sticky blood" and it was negative.

Miscarrying can be such a torment! I'm hoping to be pregnant as well (as in I ovulated this week) but I'm afraid of getting my hopes up.

My heart just breaks for you and I'll pray you'll find answers and/or will conceive and carry a baby to term.

Love and Prayers Friend :flowers: :flowers: :flowers: :flowers: :flowers:

P.S. I wanted to add that I believe my miscarriages have been partly due to low hormones since I'm slightly underweight and shortly after my miscarriages (within a couple of weeks) I was pregnant again and carried those babies to term. Just a theory. I recently found my TSH levels are elevated so that may play a part in it as well.

[Carys]

Thanks for your replies and support, ladies! :love:

I'm so sorry to hear that some of you have also suffered losses. :hugbetter: It's great to hear that you have had success stories.

I'm sure once I have grieved over this loss, I will have the strength to try again.

Thank you, once again.

Love and hugs,

Carys xx

[Hadley]

:nono: I am so sorry to hear about your losses. I do not have aps either according to test results yet I have had 3 miscarriages. The first was due to blood clots they actually saw them on the ultra sound in the placenta and baby's heart. My second pregnancy I had a son pre-term,had low bitrh weight and began developing toxemia. He is 4 years old now and doing great, but I was on aspirin and heparin with him. Since then I have had 2 more miscarriages. My rheumy did not tell us not to try again but I could sense his discouragement in us trying another time. He said it was not good that I was still having miscarriages on aspirin and heparin. Plus I get extremely ill after each miscarriage with flare ups, they tend to get worse with each. So my hubby and I decided not to try anymore the risk was to great and our son needed a mother. :hissy: Any time you want to talk I'll listen! :flowers:

[Carys]

Thanks so much for the reply, Hadley. :love:

I'm sorry to hear of your losses. It is wonderful news that you have a lovely little boy. :)

I'm going to check out the possibility of using heparin in my next pregnancy. Like you, although I don't officially have APS, I have now had 3 miscarriages. I've also had a stroke, so there is something wrong with my clotting, even if the bloods don't show it. I have had a borderline positive test for anticardiolipin antibodies in the past. Surely my docs will let me give heparin a go, as well as the aspirin. I can only try...

I understand how you feel. You have a gorgeous child and you want to stay well for him. Although it must be heartbreaking, I'm sure you have made the decision that is right for you and your family. It can't have been easy for you.

I wish you all the luck in the world. :luck:

Love and hugs,

Carys xx

[loopiegirl]

hi Carys,

I read your post with great interest. I am 34 years old and have had lupus for over 7 years. While being on aspirin I had a miscarriage about 7 months ago, we were hoping to try again right away (well, within the 2 month waiting period). Anyway, I suffered a PE in the right lung within that 2 month waiting period. Since then I had been on Levonox and currently on Coumadin because I have tested positive for the lupus anti coagulant factor. The doctors aren't sure about a positive result for APS for whatever reason.

In any case, I've had a few other different health related things happen since the miscarriage and after much thought my husband and I decided that although it's possible to have a child naturally while taking blood thinners and being closely monitored we felt it was better to adopt. I didn't feel that it was prudent to try again and possibly miscarry again and then suffer a bunch of health issues, OR to have a child and be in a flare or a bad sort of state so that I couldn't be there for my child. I commend all those who suffered multiple miscarriages for being so strong about it, I don't think I could go through it again. There were other things that we considered and it helped us to get to the place that we are at now.

This is a highly personal decision, but I do want to say that if for some reason you continue not to be successful in having a natural pregnancy there are other options that I believe can be just as fulfilling. Good luck in whatever you decide to choose, please keep us up to date. Take care and be well.

[lovebabyaustin]

Hi. I'm new to this board but just wanted to chime in. I am so sorry to hear of your miscarriages but admire you for your great strength and courage. Continue to hope for the best!!!
I hope this is not taken the wrong way at all but my husband and I are just in the beginning stages of considering adoption due to the risks related to pregnancy with Lupus. I just wanted to throw adoption out as a possible option seeing as how you desire to have children so much.

[artist]

hi Carys, I'm very sorry to hear about your loss.I know how heartbreaking it is. I had two miscarriages myself. My kids are 7 1/2 yrs apart. I was so scared on my last pregnancy that it wouldn't last, it was a very difficult pregnancy I call him my miracle son. Please keep the faith!

[Yan]

:P Hello dear,

I was dx of Lupus 9 years ago. I also have the problem of sticky blood and my rhemy never tell me that it increases the risk of miscarriage.

I am drug free for over 6 months and I am thinking of having a baby. But the bad news was that my Anti-ds-DNA was found to be positive last week (never be positive in the past 9 years). I am not sure what does that mean. Is it saying that my situation is getting worse?

My husband doesn't want me to take any further risk of having a baby. He said that he can't take the risk of losing me and the baby at the same time. So he suggested not to get pregnancy if it is not "safe".

I will see another rhemy tomorrow. I want more advise. I can feel the pressure even to think about it. I am not sure whether I can go through the pregnancy.

Karen :love: :rolleyes:

[Hadley]

I just want to say good luck to y'all who are trying or thinking about trying. I wish you all the best of luck. Was wondering if adoption is an option or does lupus put a black mark on that possibility? No assurances as to remaining healthy so does anyone know if it is difficult to adopt? :erm:

Also just found out I am going to be an aunt again come March at least I can spoil my sisters children right!? And my miracle son is definitely spoilt!!

:love: Best wishes to all of you!

[lovebabyaustin]

Adoption can be an option even if you have Lupus. Some countries have stricter health requirements than others so you would have to do some research. I've been doing some research and in most cases, it looks like as long as your doctor can write some sort of letter/statement stating that Lupus will not affect your ability to provide a loving and nurturing home, etc.... you should be okay.
We're going this route because after my first child and all the difficulties we went through, my husband, friends and doctors are all very adamant that I not get pregnant. I do agree but can't help feeling sad about not being able to get pregnant.
Well, hopefully we can adopt!!! :lol:

[alobreto]

Hi, all! ;)
I have an adopted daughter and I wasn't yet diagnosed at that time, but had other health problems rearing their ugly heads. Before we adopted, we were foster parents, which proved that we were able to provide a loving, stable home.

The state did require a letter from my doctor about the limitations brought on by my health problems and that the limitations wouldn't prevent me performing parental duties.

I'd have loved to have a large family if we could've afforded it. I had 2 very difficult pregnancies, 2 lovely sons, and an emergency hysterectomy at delivery of the 2nd son. We wanted a daughter. We tease her that we got her "used." She has been a joy.

Best regards,
Angela :flowers:

[Carys]

Hi all

I've just found this old thread, started by me ages ago...and I thought I'd better update it!

After yet another miscarriage (4 in total) and 10 years of trying, I'm so pleased to announce that I have now given birth to an adorable baby boy, called Dylan. :) I was finally given an APS diagnosis and put on Clexane!

I do hope that this gives hope to others. Please feel free to contact me if you want any advice. I will do my best to give some! I'm so thankful to you lovely ladies for your support.

catgirl1968@yahoo.co.uk

Much love

Carys x

[Maia]

Congratulations!@!!!!! I am so happy for you, that you got your dream come true. Enjoy :)

[Lily]

CONGRATULATIONS! :bounce: :excited: :stretch: :jump:

That's wonderful news Carys! Welcome to Dylan and may he give you both much joy and happiness in your lives.

Thanks so much for coming back and telling us your good news. It gives hope to others and puts a smile on our faces.

love
Lily

[Luscinda]

Congratualations, Carys!!!!

Well done! And a big welcome to Dylan... :welcome:

Big hug,

Luscinda

PS- I have Lupus and APS, and I am TTC. This really gives us hope!!!

[Carys]

Thanks a million, guys! :)

He really is a darling!

I don't know if this helps anyone, but I only showed up strongly positive for anticardiolipins at St Thomas' Hospital Lupus Unit. At my local hospital, I'm still negative, and weakly positive in Birmingham. A mystery! St Thomas' possibly would've given me the APS diagnosis without the positive blood results, as my medical history all pointed towards me having it (strokes and recurrent miscarriages).

I was put on Clexane and, sadly, still lost another pregnancy. I was giving up hope, but decided to give it one more shot on the Clexane...and the result is darling Dylan.

Don't give up hope, ladies. I am 38 and, now, a success story. Even against the odds, it can happen.

Much love

Carys x

[LolaLola]

Just wanted to say Dylan looks beautiful!
x Lola

[Carys]

Just wanted to say Dylan looks beautiful!
x Lola

Thank you Lola! He is gorgeous. I adore the little fella!

Carys x

[Joandublin]

He sure is a most handsome little dude!

Many many congratulations and I know you will enjoy every single moment with him

Cheers
Joan:rose:

[Carys]

He sure is a most handsome little dude!

Many many congratulations and I know you will enjoy every single moment with him

Cheers
Joan:rose:

Thank you so much, Joan!

Big hugs

Carys xx