Update on Megan's IVG problems

[meg4340]

As many of you know, my 15 year old daughter, Megan has been out of school this whole semester. Started with mono, then one thing after another. We finally went back to an immunologist she saw as a baby, and found out that she has a fairly serious IGG deficiency. She will start IV immunoglobins in about a month. The infusions are done at the hospital, take five hours and she has them once a month. Apparently, there can be some flu-like symptoms for 24 hours or so. She will do this for 12 months, and then we will re-evaluate and see where we go from there. Please, y'all......hope and pray that this works for her! I want my girl back!!! I want her healthy and happy and social and loving life! I'll keep you all posted...........OH, and 67 days till Ryan's (my son) wedding...(but, who's counting? LOL)...take care all and thanks for always being there. Love and hugs to all :love:

[raggedyann1]

Karen,

I know how hard it is as a parent and having a child with a chronic "illness" or syndrome perhaps. It sounds like you trust the neuro you see today and the infusions is the best way to treat it from the limited reading I have done on the subject.

I had a friend who had the infusions as part of an infertility treatment program. Didn't help her get pregnant ( although 6 months later she got pregnant the "normal" way) but she never complained too much about the infusions or after effects. Will pray it goes the same for your daughter.

Take care,
Karen