Just in need of a friend

[JACQUE]

Hi Everyone,

Today is not a good day for me. I am having such a terrible day. I am wondering if anyone has ever experience this before. I am having pains not only in my joints and muscles but it seems that my bones hurt, all my shoulders elbows and knees I am not sure if it is in my head (the bone pain part). I am trying to figure out what is going on with me. I just started on my medicatin Pedisone and I am not having a good time with it . I am still in a lot of pain .I think my dosage needs to be adjusted. I am just having a day where eyerything seems to be going wrong and all i want to do is go in my bed and cry. Thanks for letting me get my frustration out. :(

[raggedyann1]

Jacque,

How high of a dose of prednisone are you taking? I also wonder if you have lupus and fibromyalgia. My rheumy told me that fibro doesn't like prednisone and I have found that to be true. If you have both then the fibro pain is greater than the lupus pain and why you do not notice a difference. That is just my 2 cents. Based on my own experience 2.5 years ago when I came out of remission.

Take care,
Karen

[alobreto]

Hi, J! ;)
Just want you to know that someone cares that you are feeling so awful! :o

Sending some gentle hug :hugbetter: s your way:
Angela :flowers:

[debralee]

:hugbetter: Jacque,

I am sorry to hear ouyr having such a hard time right now. We are all here to offer ouy support.

It may take time to fro the meidcations to making a differance fro ouy. As Karen had mentioned ....... I have heard of others talk about predisone making the fibromyalgia feel worst. ouY could call ouyr rhuemy and see what he/she thinks. They might want to adjust the medications for ouy.

God Bless,
Deb

:love:

[Jen79]

I hope you have better days to come. I agree with ragge about the fibro pain usually being the worse and you can usually tell the difference in the lupus pain compared to fibro. My lupus is undercontrol a lot better now but i got the fibro bad right after lupus flare and haven't had to much relief from it. I notice the pain more when I am tired and as the day progresses. Stress also makes it bad. I hope you see a rhume soon. I never knew pred made fibro act up worse ,luckly i wasn't own it that long 6 months. Let me know how things are going :love:

[JACQUE]

Hi everyone,
Thanks for responding. I am presently 10 mg a day. I am feeling much better since the last time I wrote. I was just having a bad . I see my Dr. tomorrow, I discuss my concerns with him. Once again thanks for being there when i really needed you guys.

[rwb200]

Jacque
You have come to the right place for people who understand just what you are going through.
Many have had similar problems and it can be a shock to the system getting used to new medicines.

We all wish you the very best and hope that it soon turns around for you.
It can seem like a long road with a lot of ups and down but if it helps it is a well traveled road that many have been down before.

Keep track of any problems that you have so that you can discuss them with the doctor or doctors.
It may help to write them down and take a note book in with you to write down just what you are told.
This helped us alot at first because all of the information can be over welming at times and it is easy to forget what you want to say or ask and easy to forget what you have been told.

I do not see what you have been diagnosed with or if you have been yet.
We all wish you the very best and if you need a understanding word someone is almost always here.
If you need to just chat a bit try the chat line out and you can get fast responces from people.

[Clare.T]

Posted for Nuala4

Hi there,yes i know how you feel, ive had a bad flare its been going on for a year now, things are getting better thought. You wont always feel this bad you will have good days, pain free days, dont let it get you down, you are stonger than this disease and you just have to get on with things. Im 24 and have lupus SLE the last 7years and I can tell you there are happy times, do you want to chat more around for another 15 mins s



Clare