Somthing posative

[kurlykim]

We are only human and bad expirences soak in too deep. Think about somthing lupus has done good for you ?
1. I try harder every day to be nice 'esp when on pred"
2. I hug and say I love you much much more.
3. I have met alot of wonderful people, espically here at this site.
4. I am mentally stronger than ever.
5. I am learning so much about my body.
forgive my spelling errors I tried to correct it :)

[raggedyann1]

Kurly,

Many of us here are thought to be positive by our friends and family. But I know that to attribute something good to this horrible life-long chronic illness is just too much. I don't know how ill lupus has made you but many, many of us here have had most of our "life" totally thrown a kilter by lupus. Because I am normally a positive person I have learned to live with lupus, so that it doesn't control me.
You list trying to be nice, esp on pred. Most of my days I never leave my house and only see my hubby and son. But have a loving relationship with both of them.

I think your attempt is admirable. I have many good things in my life. I have been able to adjust my life around what lupus has done to me. But I can't in my heart say that lupus has done something good to me.

Karen

[rwb200]

I admire your positive attitude and determination to find something good in all situations.
My wife who has Lupus does much the same all the time. Her life has been turned upside down as most are by Lupus but she does find positive things as well.

She takes it that she was given this for a reason and will handle it and do the best with it that she can.

She says that one of the best things that she has got from it is the ability to look at others diferently and be less critical. She notices that she is more excepting of others and there problems then she was before.

She may not notice this as much but I can tell you that another thing that she had gained from it is a strength and determination that is truely admirable in anyone.
I suspect that many of you also have the same strength or will get it with time.

Another thing that she has gained is the ability to speak up for herself. In past she did not do this as well or as much as she does now.

[kurlykim]

I hope this does not get misunderstood. It was not meant to hurt anyones feelings. I am not thankful for lupus just looking at ways to deal with it the best I can by talking, asking questions, meeting people.

[Clare.T]

A very quick comment, as I am on my way to " bloods and eyes". I've never participated in threads of this sort before, because my reaction has been, best to say I suppose, counter to the expectations of the thread.

Maybe it's the use of the word "good" that falls amiss.

I have no time for the "virtue of suffering" notion or the enoblement of life through pain and adversity concept, let alone redemption.

I have learnt a lot that's true and have a much deeper understanding of this aspect of life, chronic disease, and the human experience. I have been enriched by the personal contacts I have made on line and feel that I am able to put my own experiences and abilities to good use helping others which is a consolation.

We have to have thoughts that comfort us, but most days I feel like weeping and screaming with rage at what I hear of the suffering people are going through and what they have to put up with that should be avoidable.

I want to keep that fire in my belly.

Yes we make the best of it, if we are lucky enough to find the resources within ourselves and from the support of others.

Wishing all Well

Clare

[jm_jazzy]

Hi all,

Dare I say it but in some ways my life is better for having MCTD. :love:

I appreciate every single moment and am happier now than I was before or is that the medication? I have a community to talk to (thanks guys) :shake: and my husband has taken up cooking :woohoo: and he is better than I am.

I now have a name to all those horrible things that bother me and best of all if I feel bad I now have the attention of a raft of specialists :nurse: . Oh and if I don't want to go somewhere I can say I am not feeling well and stay at home. ;)

I can stay in bed all day and not feel guilty :yawn: and I no longer have to worry about a getting a tan.

:cloud9:

Jodie