Women with lupus

[wendy3993]

Hi I m new in this forum, i have read thru all the topics regarding lupus (in women) and i know i can express in my feeling here. Definitely, i m also one of the women with lupus. I miscarriage twice within 6 months. The fetus stop growing at the stage of 6 six weeks. And i have i go for DNC at the stage of 7-8weeks. SLE test proven that i hv autoimune antibodies that cause my fetus to stop growing. I felt depress, crying almost everynight, and feeling afraid to get pregnant again. As though i m killing the fetus. Doctor told me that SLE mystery is yet to resolved, as there is no definitely medication during pregnancy. Probably baby aspirin or heparin may help, but it is not 100% cure. I m wondering here, can i get a baby of my own?? How's the risk? High risk? or what should i consume supplements example calcium or etc. ,in order to get pregnant?

[alobreto]

Hi, Wendy! :flowers:
I'm sorry to hear of your sad experiences. :cry: Losing a baby at any stage of pregnancy can be emotionally very painful and trying.

My recommendation would be that you see an obstetrician who treats high risk moms-to-be. It would be a good idea to go BEFORE you try becoming pregnant again. You want to be in the best possible shape to give your little one the best chance of making it into your arms, and that kind of doc could advise you on what to do before you get pregnant.

Many folks with lupus have fine, healthy babies, so there is hope. The disease presents itself in many ways, however, so you need the best advice and the best care you can get throughout the process of bringing a little one into the world.

I have 3 kiddoes, got 2 new and 1 used! They're all grown and they are a joy! We had 2 sons and wanted a daughter--so we got one ready-made. Don't close the door on any of your options. In the event that you don't birth a child, you can still have a child if that is your aim. Giving birth is the easy part of parenting, and the real rewards come with the everyday stuff that comes after that.

I wish you well in your endeavor to be a mom.
Regards,
Angela :flowers:

[cornishgirl]

Hi Wendy, Can I first extend my deepest sympathies to you over your recent losses. Make sure you take the time to grieve and let your body recover. I'm first of all going to recommend you don't attempt to get pregnant again until you have had time to digest your diagnosis and emotionally recover from all that has happened. I'm not clear from your post as to whether your diagnosis is for lupus or APS. Whichever it is, I'm sure you've seen from this site that happily, many women with either or both conditions do manage to have successful pregnancies it's just that we may need a little extra care along the way as we are deemed to be high-risk. There are specific medications used in pregnancy if you have either or both conditions which a specialist will know all about. There is no known cure for either condition though there are many treatments and medications available to treat symptoms brought about from the illness. In fact many patients live perfectly normal lives whether they have either or both illness. Try to keep in your mind that you may have this illness, but that does not mean you have to "suffer" with this illness. It is important however that with either condition you need regular monitoring whether pregnant or not so please ensure you follow up with your doctor and get reffered to specialists who can help. I also really hope you have informed your doctor of how depressed you have become, many of us know how hard depression is to cope with. You've done a really good thing posting here as you will find many others who can sympathise, understand and help you through such a hard time and help answer questions. Feel free to use the chat room as there are many there who can help answer your questions. I wish you all the best and please post again and let us know how your getting on. All the best, Lucy :hugbetter:

[wendy3993]

Thanks Lucy and Angela. :D As both of you are able to understand how i felt. :( I have two elder sisters who have 3 childrens each. Sometimes, i wonder why it can happen to me. Anyway, i always praise God for everything i have. After my first miscarriage, i still put on hope bcoz doctor/gynae said it could be embryo defect. I didn't visit any specialist that time. After my second miscarriage, i know something had wrong somewhere, then i went to a specialist in a fertility center and i was diagnose with lupus (not APS) after SLE test. The specialist always told me not to worry as he can guide me along the way. No choice, will follow his advice and at the same time i got to search more info about lupus. I sincerely want to thanks for all the advice posted to me in this forum.



~Wendy

[cornishgirl]

Thank you for posting again, such a lovley message and your very welcome thats what these boards are all about. I'm glad to hear your already under guidance of specialists and as you say it takes a little while for it all to sink in and find out what the illness is all about. Prehaps if you have some spare time in the evening you can pop into the chat room and meet some fellow lupies, everyone is very welcoming and willing to share experiences and help answer questions. I wish you the best with your future treatment and fingers crossed, your future family. All the best and take care, Lucy :flowers: