new moring

[yellowrose]

SORRY FOR for the typing I CANT seem to do anythingrighy'
I had three MPnday * had a Kumbar pucture that
is supposwd ro rell me if U MS
I had a bad headache before both of but know I cant du amything Liek Spi=ell
Sorry Its yaken 5 minutes to type this
Thanks for youer help U know I cab trust you

[jude mack]

Hi Yellow Rose Sorry about your spelling, I have been having problems with that for a few months now and thought, well never mind what I thought. I can't help you with that, but I hope someone comes along and can help us both. I,m tired of retyping, looking words up in the dictionary, and actually feeling really dumb. Hope you feel a little better soon. Let us know how the tests come out. Nice to meet you. Jude :shake:

[Lily]

((((((((((((((yellowrose)))))))))

Thank goodness that's behind you, I'm glad you went ahead. My very best wishes go with you for the results, and then hopefully we can get you feeling better than you have been :flowers: :hugbetter: Take care of yourself and keep us updated.

love and gentle hugs,

Lily

[yellowrose]

Redults of course come out with no MS, which is a good thing. That was one month ago. I still cannont drive cook work, type if I go really slow (that's one reason I haven;t been here in a while.

Motor skills are shot, I told my dr i had a short circuit somewhere and i needed it put back tgether. after the two blood patched complete the spinal tap headache is gone but everything else is shot to ****.

Gone to Primay DR and Rheumy and the RH recommended a neuro. Of course my dr made appointment with someone else in the office. He was a total idiot. He said the if I could get a good night sleep and wake up feeling good everything would go back to being right (yeah right) Since I can'r drive still my mom and him were going to fightm he said there were no such things as migraines. she said there were and he said we aren't talking to you are we. I got a kick out of that. I thought my mom was going to beat him with his stethospoce.

Not going back there. The doctor tha ordered the test would not talk to me about my problem then I told his nurse I would have my attorney contact him. Imagine he called me early Saturday to check one. I explined my symptoms and he said the lp could not have caused this.
I was fine when I went in and this is how I came out,

The lp dr called my pcp and wants to send me to the mayo or cleveland clinic. Now who is expected to pay for this, I cant.

They decided at work that it wasn;t fair for me to be allowed to work from home since the others couldn't, so I went in and applid for the family medical leave which will keep me insured for a white relativaly per month.

Then tool the big stem my rh told me to apply for SSDI so i went there and got the forms to fill out and made an appt for Aug 22.

I was lucky enough to find my dr from about 10 years ago and wert there today/ He sd the point wasn't that something was wrong with that but that it was wrong and what caused it. How do we fix it. He has ordered EMG and brain wave test i think. I hope things are looking up. Talked to a lawyer about actiona and he sd that if he sould find ONE dr that said this was cause while under Vanderbilt;s case he would have a great case.

wish ne luck and thatnks for everyones help and support

[raggedyann1]

Yellowrose,

I am sorry you still have so many symptoms/problems from your LP. Sounds like your old doctor is the one willing to say well lets figure this out. Perhaps he is the one your lawyer should talk to?

About Cleveland Clinic and Mayo. I have not met a member here yet who has had good success at Mayo, perhaps it is finding a specific doctor. Cleveland Clinic actually has a lupus clinic that I heard mixed results about. The point is of course that even at the "highly respected" institutions treatment is a mixed bag. I have even heard that of St. Thomas in London, England. And that is most well known lupus clinic in the world. It comes down to the individual doctor and what their belief system is about whatever disease that they are treating.

Take care,
Karen

[Lily]

Thank goodness for your old doctor coming to the fore on this yellowrose :hugbetter: :love: At least he sounds like he's going to see things through with you and sort something out.

I wish your mother had hit that other doc with the stethoscope - it might have knocked some sense into him :tantrum:

((((((((((Yellowrose)))))))) sending hugs and good luck with getting the SSDI situation started. We are here to support and help you in any way we can, whenever you feel the need. Goodness knows you sure need an outlet right now :hugbetter:

love
Lily

[yellowrose]

thanks because I am about to unravel. If it weren't for my mother and son I would honestly give up. My employer will no longer allow me to work from home since it asn't an option for others in the company. Started selling things on e bay. All my cookie jars and porcelin dolls hoping to get enough to get enough to make it
please pray for me

[raggedyann1]

Yellowrose,

Actually it is illegal for your employer to stop allowing you to work from home. It sounds to me that he was accomadating you under the American with Disabilities Act. Just bringing that up if you wanted to pursue with your labor board.

Take care,
Karen

[yellowrose]

I wanted to try and wait out my 12 weeks on FMLA. Then from there go forward. Not sure if it is better when to do it. I could't go back to work right now anyway as I am continuing going for more and more tests, they never quuit and one puts you in line for another.

I know everyone here know how frstating this waiting can be

Also I have an appt to sign up for disability so please think of me

thanks

[raggedyann1]

Yellowrose,

The reason I waited out my FMLA and then the additional 3 months the company I worked for allowed before dismissal, was to delay the Cobra clock from starting to tick. After my fmla was up I had to pay full boat on my health insurance but the cobra clock was still, until my employer officially let me go. I was able to do the 11 month cobra extension when the first 18 months was gone. So I am still on cobra as is my husband. So when I run out at the end of December I will have my medicare and the new RX medicare plan. My husband will be eligible for another 12-18 months on Cal-cobra. Cal-cobra is only in the state of California but I imagine there are other states that have similar programs.

Karen

[hurley]

Hi yellowrose

I'm sorry about what has happened to you and am sending you my biggest hugs and lots of love. :love:

Hang in there, sweetie.

Julie

[yellowrose]

Finally got some help, 149.00 in food stamps per month and also tomorrow I cam going to apply for temporary emergency help with my mortgage. I think they said I may be eligible for 550.00. I hope and pray this is true.

New Neuro appt not until early Sept

[raggedyann1]

Yellowrose,

That is good news. Don't forget to use the Food Pantries available in your area. That will help spread the food stamps out.

Karen

[Lily]

Hi Yellowrose,

That is good news, it should take a little bit of the pressure off at least (((((((yellowrose))))))).

Hang in there September is not too far away hun :hugbetter:

love
Lily