Free Lupus Information

[rwb200]

Thought many of you may want to check this out.
Several years ago I had asked for and recieved some free information on Lupus from a US Gov web site. The information I recieved was upto date and informative.
Today I went to the same site and was amazed, not only has it kept the information updated but it has also expanded into many other areas that are associated with Lupus and other areas that sometime accomapny Lupus.
If you live in the US you can order the information and can get upto ten publications free of charge. It was harder to narrow it down to ten then to find ten areas of interest.
If you are not in US alot of the information can be accessed on the web or down loaded to your computer.
Here is the web site http://www.niams.nih.gov/
I hope many of you find it as informative as I did. When I first found this site several years ago the information I recieved gave me a new understanding of Lupus and what my wife went through on a dailey basis. It also made me alot more informed so I knew what she was talking about when I talked to her about how she was doing.

[zara]

I think it's great that you are so involved in learning about your wife's illness and sharing what you've learned. My granddad still thinks my grandmother "caught" lupus. It was a shock to him when she died, and he still hasn't really gotten over it to this day and never remarried. He assumed she would get better and that lupus was like TB or something where you get really sick, get treatment and get better then move on. She was on lots of steroid therapy and ballooned over 100lbs her normal body weight. It was about a year and a half after realizing how sick she was that she died. I don't blame him for not wanting to know about it. We all cope in different ways. I just think he doesn't really want to know in detail how much she suffered.

[Vette73ds]

That is a great link, thank you for providing it.

I have bookmarked it and will have to put aside some time to read it properly as my family also have a lot of the topics they cover and I know that it will take me a while to read it.

:highfive:

[rwb200]

I hope this site is as helpful to many of you as it was to me.
The information is not glossed over like so much that you read today and it is not some group who wants to sell you something.
They have good information that I found very helpful in helping me to understand what was going on.

I wont say they have all of the answers but they have enough that they let you know that this is not all roses.
I think other family members could be helped by it as much as I was if they would just read it.

I do not understand people who do not want to be informed about what there loved ones have and what it does or can do.
This is how I cope with it. For me it is easier to deal with the known then the unknown so I have to read and get as much information as I can.
It is also why I'm on this web site.