Which London Teaching Hospital? - UK

[Owlet]

I'm just being investigated and it may be that they come up with Lupus for me. At the moment I have a very attentive team at Bart's and they have said that they will send me for a second opinion to a Rheumy. I do wonder which Rheumy that will be and I see SO much here about St Thomas's that I wonder if I should ask if I could be referred there.

Also I am told that I will need a Neurologist and wonder if anyone can recommend one of those in either London, or I live in West Sussex so somewhere around there would be good.

Thanks

Owl :notlook:

[Owlet]

Does anyone have an opinion?

Thanks

[cornishgirl]

:wave: Hi Owlet,
I used to be a patient at St Thomas's and it's a pretty safe bet that they have the most advanced information about connective tissue disorders and APS. I think it may well be worth your while being referred there if it is lupus/APS you are having problems with. As for a neurologist I only saw mine at Hastings in East Sussex I didn't see one at London, sorry I can't help you more, all the best, Lucy :flowers:

[Owlet]

Hi Lucy :hello:

Thanks for coming to my rescue. It seems they have a Rheummy in mind but if I get stuck or don't like this one then I do know where to go ;)

I think the Neuro Docs do travel around so could you PM me with your one. It's good to have at least one name and I'm waiting for my GP to come back from holiday on Monday to get our local one from her. I'm not sure why they don't want me to see the one at Barts but never mind. For now I'll just go along with whatever they say is best - seeing as I don't know too much better atm. LOL

Take care

Owl :coffee:

[kamkam]

hi this is a message for the above two people i just wanted to find out. Why and how did you come about having to see a neurologist?

[Clare.T]

I don't know about other London lupus specialist hospitals but I have been extremely impressed by St Thomas's.

I am sure they will refer to specialists as necessary and also the lupus team will supervise all treatments as they have the overview of your case.

I would be leery of any sort of specialist who wasn't 'up' on lupus. From all I have read it is essential that any specialist works closely as part of a team.

Cheers

Clare

[Clare.T]

Hi kamkam

This is list of the neurological problems that might be found in lupus/ NPSLE NeuroPsychiatrist lupus formerly known as CNS , central nervous system, lupus

Table 2: Neuropsychiatric syndromes associated with systemic lupus erythematosus

Central nervous system
Aseptic meningitis
Cerebrovascular disease
Stroke
Transient ischemic attack
Cerebral venous sinus thrombosis
Cognitive disorders
Delirium (acute confusional state)
Dementia
Mild cognitive disorders
Demyelinating syndrome
Headaches
Tension headaches
Migraine headaches
Chorea
Psychiatric disorders
Psychosis
Mood disorders
Anxiety disorder
Seizure disorders
Transverse myelopathy
Peripheral nervous system
Autonomic neuropathy
Myasthenia gravis
Peripheral neuropathy
Sensorineural hearing loss Sudden onset
Progressive
Cranial neuropathy

Adapted from Sibbitt et al. [2**] and ACR ad hoc committee [3**].

From

http://www.treatment-options.com/article.c...ticle&KeyWords= (http://www.treatment-options.com/article.cfm?PubID=NE02-5-2-05&Type=Article&KeyWords=)

For a list of the conditions a neurologist would investigate and the specialist techniques they might use, please see

http://www.wrongdiagnosis.com/spec/neurologist.htm

:flowers:


Clare