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songbird
10-11-2005, 01:18 PM
Usually I think my rheumy is the greatest doctor since sliced bread, but right now I am really P.O'd at him, just need to blow off some steam.

He told me that treating me with Cytoxan would leave me unable to have children. I accepted that, though with some difficulty. The medicine seemed nessecary, and it worked. I continued to use the Pill out of habit.

He never told me that Prednisone decreases the effectiveness of the Pill. If he had, I would have incorporated some other method of birth control into my routine.

Since I trusted and believed him, I chalked the symptoms of pregnancy I had up to lupus; all of the ones I had could be explained by a combination of medication and disease process rather than by a baby.

Because I trusted and believed this man's analysis I now have to deal with a developing child who was exposed to Coumadin through the first 12 weeks of pregnancy, before I knew what was going on. A child who was also exposed to X-rays and MRIs, though doctors assure me the levels were not enough to be dangerous. (Should I believe that, I wonder?)

Of course I have no idea what Coumadin will do to my little one, but the list of possibilities is truly frightening to me. I won't be able to see some problems on a sonogram, and others won't show up untill 20 weeks or so.

I am furious that trusting my doctor has put me in the position of considering "quality of life" issues for a newborn! It has put a major cloud over this pregnancy, and it just isn't fair!

Clare.T
10-11-2005, 04:56 PM
My heart goes out to you ((((((((((((( songbird ))))))))))))) I don't know what else I can usefully say at this stage, although there certainly is a lot that could be said.

Nor if you want any comments on the quality of care you have received because what can you consider doing about it. Oh dear :cry: More than 'unfair'.

With my heartfelt wishes and prayerful hopes that all will be well.

Hugs from Clare

:luck: :luck: :luck: :luck: :luck:

Knitter
10-11-2005, 05:36 PM
Hi songbird

I?m so sorry! I wish I could say something useful, instead I can only wish you all the best.

Knitter

jude mack
10-12-2005, 04:25 AM
Songbird

OMG this is just so unfair, my heartfelt wishes and prayers go out to you.

Take Care Hugs
Jude :hugbetter:

flowergarden
10-17-2005, 02:59 AM
I can understand your anger!! I also still have you on my prayer list.

Remember that your rheumy also said he has had patients with situations like yours deliver normal babies.

Yet, I do remember when I was pregnant I had multitudes of worries, and I didn't even have lupus.

You are totally allowed to rant. It goes with the territory. :flowers: