Looking for friends with lupus!!!

[nzk1w1]

Hey!!! style_emoticons/<#EMO_DIR#>/santa.gif First of all, Happy Christmas!!!

I was diagnosed with lupus in april/may time of this year...it seems so long ago now! I live in New Zealand and have just finished Year 11 and sitting NCEA exams for the first time at school, after missing a lot of schoolwork from not being able to physically manage going to school:( I have had to stop most of the activities I was doing, including ballet which I absolutely love and have been doing since I was 3, and sailing and rowing, which I had just started and was really enjoying- but involved being under the sun a lot.

I have recently been struggling to accept and cope with lupus in my everyday life, mainly because the steroids I am on are changing the shape of my face and I have become very self-conscious and don't have a lot of confidence in myself anymore. I thought that I would look on the web for some information, as it might help if I knew more about what is going on inside me! I didn't know that there were message boards like these and so many people my age living with lupus, I think it's great that I can get to know people all over the world that can actually relate to what I'm talking about. I would really like to have some "lupus friends," so a post, or e-mail (on my profile) from anyone who is around my age and has lupus and can relate to anything I'm going through, or has any tips for me to stay positive, would be greatly appreciated!

Who knows, a friendship could unfold!!!
Joss style_emoticons/<#EMO_DIR#>/foryou.gif

[leahb133]

hey girl, i am 21 but i would love to be your friend.. do you have yahoo or aol or msn messenger?? I had those same issues when prednsione changed my face and i also had a lot of my hair fall out and i ended up having ot cut my LOONNG hair pretty short. PM me with your info.

[katrina]

Hey Joss,
My name's Katrina and I'm 16 and live in Canada. I've had lupus for about 2 years now so I completely understand what your going through. It's so hard to deal with this, especially at this age. I had to stop going to school because I was so sick and missing too much time. This year I'm back for one course. And for the past few months my lupus has been doing really well. I know this disease can be really frustrating, and because alot of people don't know what it is it makes it even harder. I was on the steroids too, and i gained alot of weight...but my dose now is 10 mgs every other day and I've lost all that weight plus more with exercise and eating right. When i gained the weight though i felt so self contious, just as you mentioned. Anyways if you wanna talk more you can pm me I'd love to talk to you!
Love Katrina

[nzk1w1]

Hey Katrina!!!
Finally I have found someone out there my age with lupus! I was starting to give up hope! Wow! So, you've had it for 2 years now and are still on 10mgs...does it affect the appearance of your face much? I know what your talking about with the weight gain, I'm going through that at the moment! I recently put on a bit of weight, but have just lost a lot as I've been feeling so sick due to my medication that I haven't wanted to eat:(
So, what's living in Canada like? I've never been there! It would be really great to stay in contact with you! You could pm me ...I promise to always reply!!! Thank you so much for answering my post!
Luv ya! Joss style_emoticons/<#EMO_DIR#>/Thanx.gif

Hey Leah!!!
I don't have messenger, or chat or anything, sorry:( but you could pm me !!! It's really great to have advice from someone who has been through what I'm going through and has come out on the other side!!! Also, advice from someone who is a little older and is speaking from a while of experience helps! It sometimes seems like I'll never get there, but you've given me hope!!! Thank you!!! Do e-mail me, I will always reply!!!
Luv ya Joss style_emoticons/<#EMO_DIR#>/bigsmile.gif

[oesa]

Hey Joss - welcome to the site!

I'm 33, but was diagnosed when I was 14, and went through mny of the same things you are - I was starting to get serious about ballet (I even auditioned for the National Ballet School in Toronto) and was too sore to continue.

However, I had a fabulous teacher who let me come to class and just do the exercises I could. She even modified some of the ones I found hard. If that's an option for you, you should consider it - staying active is important. Ballet was important for me as well because I'd been in the same class of girls for 8 or 9 years, so we were friends and they were a great support system. I also did homeschooling for one term - my joints were too bad to contemplate scrambling from class to class. Is that an option for you? My school board actually had a program where they send a qualified teacher to your home to tutor you on your classes so you don't fall behind.

The prednisone is a hard one, because it's so good for treating lupus. I lost my beautiful glossy brown hair as well as gaining weight. My advice? Wear clothes that fit (don't try to squeeze into those jeans from last year), and eat sensibly. Oh yeah - and MOISTURIZE!!! I needed to be on a short course of prednisone about two years ago, and ballooned from 105 to 140 pounds in the space of three weeks. I felt like an overstuffed sausage - my skin was stretched soooo tight. I started to notice a few stretch marks, so I went and got a super-intense moisturizing butter - I think it was 25% shea butter - and I slathered it on after every shower, and it helped a lot. I felt less "tight", and when I lost the weight, the stretch marks disappeared.

The other thing you need to be careful about while you are on prednisone is your bones. Prednisone can cause your bones to thin, and can also cause something called aseptic necrosis, when a part of your bone (usually the hip) loses blood supply, and starts to die. It can eventually cause you to need a joint replacement (I'm on a waiting list now for hip replacement surgery.) You should be watching your calcium intake, taking supplements if need be and having your bone density checked regularly. It's not a scary test - it's like an x-ray, but takes longer. If you're not on calcium, ask your doctor the next time you see them - they can tell you how much you should be taking.

With the exception of my flare two years ago (which was brought under control really quickly), I've been in remission since I was 18. I wish many years of remission for you as well - if you ever want to ask questions, please email or post - I'd be happy to answer as best I can!

Merry Christmas!

Lisa

[nzk1w1]

Kia ora Lisa!!!
Thank you so much for your advice!!! Unfortunately I haven't been able to go back to ballet because of my back, but also because the steroids have suppressed my immune system, I have got infections in my toes that have become quite a problem and just the other week I had to have my big toe anaesatised (I think thats how you spell it!) so that the podiatrist could work on it:( Congratulations on being able to audition for the Toronto ballet school! You must have been pretty pround of yourself?!

You definately sound like you have been through everything I'm going through!!! I can relate to the stretch marks, sadly, but thank you for the tip, I will be sure to look out for a shea butter product when I am next in town!!! You are also right about my bones, my rheumatologist has had me on calcium tablets pretty much since I was diagnosed, they are pretty big tablets to swallow, but you have shown me more about how important it is to take them, so thank you! I am sorry you are waiting on a hip replacement, but I am sure it will be worth waiting for in the end! I haven't had my bone density checked, so I will be sure to ask about it at my next appointment!

Thank you so much for your advice, sharing your experiences and your words of wisdom, they have really helped! Joss style_emoticons/<#EMO_DIR#>/foryou.gif

[hoperachel]

hi im hope 18 from uk i was diagnosed with sle at about 7. only had skin n joint pain with tierdness tell i was 15 i was put on plaquenil to help me out. it worked well til about 6 months back got diagnosed with vasculitus of the skin was put on azathioprine i didnt work right for me as had to come off it after a week. when my white cells came up again after about 6 weeks i was put on cellcept thatw worked well till 2 weeks back got told to stop cellcept as white cells where too low again tomorrow i have an appt at the hospital for blood checks dont know if will be able have something to help me out tomorrow but will see. its a bit of a bummer not having anything to help me out over christmas if its got to done then so be it everyone has different effects for lupus and medications although some things are similar. you are more than welcome to get intouch with me if you like any questions i would be happy to help if possible take care best wishes to you have a lovely christams from hope x style_emoticons/<#EMO_DIR#>/flowers.gif

[OoEmmie 89 x 07]

style_emoticons/<#EMO_DIR#>/jump.gif hey... I am from the US... I am on prednisone too... along with 43897987 other pills that i take daily and my weight has definitly been redistributed like crazy! i feel like one of the chipmunks... i forget their names... I did completely change my diet though and i eat no meat, fish, dairy, pretty much its whole food like veges and salads and potatoes... there are the things that take 20 mins to read the label that i find that i can eat and surprisingly alot of companies make vegan type foods... i did the diet because my kidneys spill proteins but im sure its kept my weight gain down from what it could have been! well... talk to ya later...

[livvalivva]

Hey my fellow New Zealand Buddy!! style_emoticons/<#EMO_DIR#>/biggrin.gif
Finally someone close to home that goes through the same problems
Well i have the stupid weight problem the whole puffy checks! Me and mum were looking back on photos when i was massive dosages of predisone and i looked so puffy like a balloon lol. Also b4 i had lupus i was this little small skinny thing! I suspose being on steriods for most of my life hasnt helped. But not that i can help it! I dont really feel the need to diet just eat right. As for strech marks i have just noticed some on my leg and am nt verry happy about them!
Hope you had a great christmas and write back! And were you gonna go on that athritist camp in rotarua (sp?)
Luv Livvy

[jclaknz]

[font=Arial][size=7][color=#FF99FF][i]
Hi Joss, I thought I would post a reply to you as you are a Kiwi girl just like my Daughter. My Daughter who is just about to turn 14 was diagnosed at the time she turned 13, Feb 05 at Starship in Auckland, she was transferred there from Kidz First on the day of her birthday. What a present! she has SLE systemic lupus her joints are not affected but the first manifestation hit her kidney's. She is under the care of the renal team as with rheumatology. As soon as tests started leaning toward SLE she was immediately put on prednisone 60mg a day and changed from a small framed girl into having the appetite of a growing teenage boy with face ballooning to the steriotypical steroid look!! she was in year 9 and at the start of Secondary School. She started and is currently undergoing Chemotherapy and is in remission, she is a lucky girl right now. Now she is on 5mg a day prednisone and with dieting is at a good weight. Appearance is everything for a teenage girl as you know and she was teased at school but never let it stop her from participating in anything at school like the Production, Fashion Show and Cheerleading. If you respond and say it's ok, I will get her to email you. Stength in Numbers!
Jules style_emoticons/<#EMO_DIR#>/clover.gif

[damarismunoz]

<div class='quotetop'>QUOTE(Joss @ Dec 16 2005, 11:39 PM) Quoted post</div><div class='quotemain'>
Hey!!! style_emoticons/<#EMO_DIR#>/santa.gif First of all, Happy Christmas!!!

I was diagnosed with lupus in april/may time of this year...it seems so long ago now! I live in New Zealand and have just finished Year 11 and sitting NCEA exams for the first time at school, after missing a lot of schoolwork from not being able to physically manage going to school:( I have had to stop most of the activities I was doing, including ballet which I absolutely love and have been doing since I was 3, and sailing and rowing, which I had just started and was really enjoying- but involved being under the sun a lot.

I have recently been struggling to accept and cope with lupus in my everyday life, mainly because the steroids I am on are changing the shape of my face and I have become very self-conscious and don't have a lot of confidence in myself anymore. I thought that I would look on the web for some information, as it might help if I knew more about what is going on inside me! I didn't know that there were message boards like these and so many people my age living with lupus, I think it's great that I can get to know people all over the world that can actually relate to what I'm talking about. I would really like to have some "lupus friends," so a post, or e-mail (on my profile) from anyone who is around my age and has lupus and can relate to anything I'm going through, or has any tips for me to stay positive, would be greatly appreciated!

Who knows, a friendship could unfold!!!
Joss style_emoticons/<#EMO_DIR#>/foryou.gif
[/b][/quote]

Hey Joss,
Hi my name is Damaris I am from California in the us. I just turned 17 in October but, I was diagnosed with lupus This year during the summer when I had a flare. Well just like you i am now taking steroids and it really sucks. At first when I started taking the steroids i just noticed the puffy cheeks but I didnt care as long as I was out of the hospital. When I started school I felt very sad people did'nt even recognize me. I also became very self-concious. Although I try to do a lot of exercise and I started doing ballet this year I also do colorguard it seems like im never going to loose weight. My doctor says the side effects are going to go away once I stop taking the steroids but I get very discouraged that day seems like it is never going to come. Well email me if you want thats cool how you do ballet you must be really good if you have been doing it since you were 3. Well I am just a beginner but I really enjoy it.
Laterz, write back if you want.
style_emoticons/<#EMO_DIR#>/biggrin.gif

[lilsweety89]

To Joss style_emoticons/<#EMO_DIR#>/smile.gif
HI! Umm my name is Quai short for Quaishanna and im 15 years old and I have lupus too. and I just wanted to see if u need a friend I can be it style_emoticons/<#EMO_DIR#>/smile.gif I havent reall ahd lupus for that long I was diagonosed a month before I turned 14 but I can still be your friend and anyone else who wants me to be style_emoticons/<#EMO_DIR#>/smile.gif I have ltos of friends but none with lupus so i think it wud be intresting to have some. style_emoticons/<#EMO_DIR#>/smile.gif umm yeah thanks. style_emoticons/<#EMO_DIR#>/Thanx.gif style_emoticons/<#EMO_DIR#>/shakehands.gif

Omg I read your msg thingy and i was touched. Im sorry that u had to stop your ballet , I could imgaine that would be hard for you. I wish you all the best with that but umm I could be a friend. Im only 15 but I can still be. And I know how you feel about it changing your shape. The steriods can do that to ya, I call them the "pills from ****" lol.well take care!


style_emoticons/<#EMO_DIR#>/smile.gif

[nzk1w1]

Hey everyone! Joss here!!!

Sorry I haven't replied to some of your posts yet, I have been away over Christmas and New Year and haven't had access to a computer! Just thought I would write a quick post to let you know I will reply to all you within the next week or so...I promise!

Luv ya! Joss! style_emoticons/<#EMO_DIR#>/Thanx.gif

[cav_lover_nz]

I'm so happy to see other people from New Zealand here!

Joss- my daughter is 16 and did NCEA level 1 in 2005. She also does ballet- she is in intermediate. We are trying to get a diagnosis for her- if it is confirmed to be lupus then I'll get her to post here as she could use some friends who are in the same boat. She has missed alot of school this year also.

It would be really helpful if anyone here from NZ could give me the names of doctors in NZ who specialise in diagnosing and treating lupus. My daughter is currently under the care of a paediatrician. We live in the central North Island. My daughter has had a positive anti dsdna (level of 16- normal range is less than 4) that was negative on the next round of tests as was ANA. But she also had a low C4 and a borderline C3 in the second lot of tests so the picture is not completely clear.

I would be so appreciative if people could tell me who diagnosed them and what symptoms and lab results they had. I'm not sure whether or not to push to see a specialist in SLE- we've already seen a neurologist and he was worse than hopeless so I'm a bit wary now.

Love,

Jennifer

[livvalivva]

Hey Jennifer
My names Olivia im from New Zealand
Ive had lupus since i was 3 im now 15. I live in New Plymouth my paediatrician is John Dohran sorry i cant spell his last name. I have also seen Sue Rudge who is a Rheumatologist at Hutt Hospital. There is also another man but ill have to ask mum and get back to you on it. Sorry.
I hope thats kind of helped
Hope your holidays are good what part of nz do u live?
Livvy
style_emoticons/<#EMO_DIR#>/biggrin.gif

[jclaknz]

Hi Jennifer, I don't know if there are any Doctors that soley specialise in SLE. to my knowledge there are many Doctors who specialise in different parts of the body that SLE has affected and where the disease first manifested itself, but I could be wrong. My daughter was diagnosed with SLE when the disease manifested itself damaging her Kidney's, a Paediatric Renal Specialist gave us the diagnosis that was conclusive with the Lupus specific tests that you have mentioned. He also referred her to the Rheumatology clinic to keep a good check on her joints etc. which to date haven't been affected The Rheumatology specialist has a great deal of patients with Lupus and was able to talk to us about a great number of things to be cafeful and wary of in my daughters teenage years leading up to and including Motherhood. So I think (my opinion only) is that all Specialists have a working knowledge of Lupus as they have encounted the effects of SLE on their patients within their Specialist fields. Hope this helps.
We live in Auckland.

[cav_lover_nz]

Hi Livvy,
Thanks so much for replying :-) I'm sorry to hear you have had lupus since you were very young. We are in the Bay of Plenty- moving to the east coast soon though. I have lived in New Plymouth- nice city.
Our paediatrician has found us a rheumatologist with an interest in lupus in Rotorua so hopefully soon we will know if it is lupus or not.
Hope you are enjoying your holidays and getting good weather! Are you in year 11 this year?

Jules- Thank you for your reply- our paediatrician is referring us to a rheumatologist with a good reputation so I hope we will have some answers either way soon. I hope your daughter's kidneys haven't been too badly damaged. It sounds like you have had good quality care for her in Auckland.

style_emoticons/<#EMO_DIR#>/flowers.gif

Jennifer

[nzk1w1]

style_emoticons/<#EMO_DIR#>/hehe.gif Hey Leah!
...Talking about toes! Lol! I had some surgery done on mine yesterday, it was really sore, especially when they put the anaesthetic in, but I'm relieved it's over now!
My health is ok! ...other than my toe and having to be conscious of the sun in the lovely weather, it is better than it has been! My friends, well, my close friends have been really supportive since I was diagnosed, they visited me in hospital and since then I have been able to tell who my real friends are!
I am not quite sure what messenger is?! ...which is why I don't think I have it!...maybe you could explain to me?? L8az Joss! style_emoticons/<#EMO_DIR#>/flowers.gif

style_emoticons/<#EMO_DIR#>/biggrin.gif Hi Lisa,
I checked about the bone density test and found out that I had had it done when I was in hospital, but didn't realize as I had so many tests done and couldn't tell one from another!
Just thought I'd let you know! Joss x

[nzk1w1]

style_emoticons/<#EMO_DIR#>/bigsmile.gif Hey Hanne!
I don't have msn, sorry:( Thank you so much for sharing your experiences and advice with me! In answer to your question, my parents are very supportive and I am very lucky to have them, also I have a lovely doctor, which makes all the difference when going to numerous check-ups!
I hope you had a lovely white christmas and got everything you wished for!
love Joss style_emoticons/<#EMO_DIR#>/flowers.gif

style_emoticons/<#EMO_DIR#>/cloud9.gif Kia ora Livvy!
I looked on your profile, but couldn't find your e-mail address! Could you post it here, or e-mail it to me? Mine is mirac1eshappen and is yahoo, so it's @yahoo.co.nz.
I had an awesome Christmas, did you?! What is the arthritis camp? I haven't heard about it before!
New Plymouth,...that's in the North Island ae?! I live down in the South Island! I totally agree about having someone closer to home going through the same thing! I get joint pain too, sometimes in my fingers, but mostly in my back:(
Neways, please let me know your e-mail and I can send you a nice long one!
Luv ya Joss style_emoticons/<#EMO_DIR#>/hehe.gif

style_emoticons/<#EMO_DIR#>/smile.gif Hi Hope!
Thanks for your post! You mentioned being on azathioprine- I am on that, as well as steroids and it often makes me feel terribly sick, so you are in a way lucky you got taken off it! I hope you find something that is right for you and that makes you feel better:)
Happy New Year Joss style_emoticons/<#EMO_DIR#>/foryou.gif

style_emoticons/<#EMO_DIR#>/tongue.gif Hey Emmie,
Thanks for your post! It sure sounds like you're taking a lot of tablets!...and like you've got your weight gain under control! It was really nice hearing from you!
Joss style_emoticons/<#EMO_DIR#>/flowers.gif

style_emoticons/<#EMO_DIR#>/jump.gif Hey Damaris!
I can totally relate to everything you're going through! The steroids, the weight gain, the side effects! We are 2 peas in a pod! Lol! It's great for you that you are able to do ballet! Unfortunately I have had to stop and have found this hard to accept, but am really pleased for you that you are able to enjoy it!
Do you have an e-mail address? There isn't one on your profile...Ciao for now!
Joss style_emoticons/<#EMO_DIR#>/wavey.gif

style_emoticons/<#EMO_DIR#>/foryou.gif Hi Jules!
Your daughter sounds like she has gone through a lot and I can relate to some of what you have mentioned...do get her to e-mail me, I will definately reply, my e-mail address is on my profile...it's @yahoo.co.nz. Thank you so much for posting and letting me know about her, I can't wait to hear from her! You are a great mum for doing something like this for her, she is really lucky to have you:)
love Joss style_emoticons/<#EMO_DIR#>/smile.gif

style_emoticons/<#EMO_DIR#>/goodvibes.gif Hey Quai!
I love your name! It's really unusual! Thanks for your post, I love your nickname for steroids! Lol! Whereabouts are you from? What are your hobbies? Are you on steroids? How does sle affect you?
Sorry, so many questions!! I'll stop now!
Joss style_emoticons/<#EMO_DIR#>/flowers.gif

Hi Jennifer!
style_emoticons/<#EMO_DIR#>/Thanx.gif for your post! Your daughter sounds very much like me, now but when I was trying to get a diagnosis also! I had been quite unwell for some time, I was usually most unwell after being in the sun...anyway the doctors kept telling me I had glandular fever, eventually I was referred to paediatrics and finally got a diagnosis after practically collapsing at home and coming into hospital through the emergency department! So, as you can see it took a while, so don't be disheartened and don't give up hope!...you will eventually get a diagnosis! The names of doctors and rheumatologists I use probably won't be helpful for you as I am in the South Island, but I do hope you find someone who can give you a diagnosis:) Meanwhile, get your daughter to e-mail me and I can give her any advice I may have, answer any questions she may have and be a friend for her, I know what she is going through is not easy as I was there once!
love Joss style_emoticons/<#EMO_DIR#>/foryou.gif

[lilsweety89]

<div class='quotetop'>QUOTE(katrina @ Dec 17 2005, 05:58 PM) Quoted post</div><div class='quotemain'>
Hey Joss,
My name's Katrina and I'm 16 and live in Canada. I've had lupus for about 2 years now so I completely understand what your going through. It's so hard to deal with this, especially at this age. I had to stop going to school because I was so sick and missing too much time. This year I'm back for one course. And for the past few months my lupus has been doing really well. I know this disease can be really frustrating, and because alot of people don't know what it is it makes it even harder. I was on the steroids too, and i gained alot of weight...but my dose now is 10 mgs every other day and I've lost all that weight plus more with exercise and eating right. When i gained the weight though i felt so self contious, just as you mentioned. Anyways if you wanna talk more you can pm me I'd love to talk to you!
Love Katrina
[/b][/quote]


Hey Katrina, I read your thingy nad I was touched, I live in canada too! Im 15 but im turning 16 this june.I know how you guys feel about the gaining weight thingy I went from weighting 110 to weighing...well lets just say alot more than 110 style_emoticons/<#EMO_DIR#>/tongue.gif And im still on a pretty high dose of steriods.Eating right and exercising is important!but umm im looking for friends so if u wanna be mine you can email me style_emoticons/<#EMO_DIR#>/smile.gif

[livvalivva]

Hey Joss its livvy
Havent heard from you for ages i would really like to stay in touch!!
So if you still do email me k
Hope everything is ok
Love Livvy

[kmac8705]

<div class='quotetop'>QUOTE(Joss @ Dec 17 2005, 01:39 AM) Quoted post</div><div class='quotemain'>
Hey!!! style_emoticons/<#EMO_DIR#>/santa.gif First of all, Happy Christmas!!!

I was diagnosed with lupus in april/may time of this year...it seems so long ago now! I live in New Zealand and have just finished Year 11 and sitting NCEA exams for the first time at school, after missing a lot of schoolwork from not being able to physically manage going to school:( I have had to stop most of the activities I was doing, including ballet which I absolutely love and have been doing since I was 3, and sailing and rowing, which I had just started and was really enjoying- but involved being under the sun a lot.

I have recently been struggling to accept and cope with lupus in my everyday life, mainly because the steroids I am on are changing the shape of my face and I have become very self-conscious and don't have a lot of confidence in myself anymore. I thought that I would look on the web for some information, as it might help if I knew more about what is going on inside me! I didn't know that there were message boards like these and so many people my age living with lupus, I think it's great that I can get to know people all over the world that can actually relate to what I'm talking about. I would really like to have some "lupus friends," so a post, or e-mail (on my profile) from anyone who is around my age and has lupus and can relate to anything I'm going through, or has any tips for me to stay positive, would be greatly appreciated!

Who knows, a friendship could unfold!!!
Joss style_emoticons/<#EMO_DIR#>/foryou.gif
[/b][/quote]

[chantal]

Hi I was diagnosed in grade 9 or 10, im now 21 send me a email anytime style_emoticons/<#EMO_DIR#>/tongue.gif
Luv Chantal

[edcdancer]

Hey Joss..Im Mel from canada...also know on here as edcdancer. I know how u feel girl. Im 16 aswell...i was diagnosed with sle lupus this past october I have been doing my best to increase awareness and raise money for lupus. I try. I am also a dancer...Ballet is my favorite too...and i know what u mean by having to quit everything...i did too...i kept some classes but i lived at my studio...4 till 10 or 10:30 everynight from ballet to hiphop i did it all...now its all ballet and one jazz class...

look girl...if you ever want to talk...im here for you...i know what its like...it sucks and im still not coping but when ppl tell u not to let it get you down...i know its hard...but believe me when i say one day you will find your smile and gain your confidence...please dont let it take over your life!!!

hope to hear from you!!!

style_emoticons/<#EMO_DIR#>/foryou.gif

Mel style_emoticons/<#EMO_DIR#>/flowers.gif

[lupus1992]

Hi my name is Emily,
I live Canada, and I turn 14 in May. I was diagnosed I think 2 years ago and I don't really know anyone with Lupus. So I hope to create some new Frendships on this site with people who I know are dealing with the same thing I am.

So Joss your not alone.And even though we live in different parts of the world we can still go through these things with others and together.

Emily

style_emoticons/<#EMO_DIR#>/foryou.gif

[happyartist]

Hey everyone on this thread, well it seems this is the hot topic that everyone is replying to so I'll just say hi. PM me if you'd like, Joss! Hope you're all doing well!

[stefanie]

Hey Joss

I'm 22 but would still love to be your friend, i'm from canada, if you want feel free to pm me anytime and we can exchange email addy's




take care style_emoticons/<#EMO_DIR#>/flowers.gif