hello i would like to make friend

[nari7901]

hello my name is nari and i'm 16years old.
i'm a korean and living in korea. I was disagnosed lupus when i was 12.
i have problem with my kidney i don't know what it's called in english.
i have like protein in my urine. do you understand what i'm talking about?
I'm taking steroid everyday with other medicines. i will inejct called like "cytokson" in my vein next week.
i'm not sure the spell of cytokson??
anyways, i want to make friend i don't care about age.
Pls pm me if you want to talk on MSN

thanks!

[lroderick]

Hi!
My name is Lauren. My daughter, Emily, is 16 too. She was diagnosed last year and has similar problems with her kidneys. She is preparing for her third dose of Cytoxan. She is reluctant to join this board but I will show her your post tonight. She went through a lot of emotion and fear beginning the Cytoxan, we all did but things are getting much better. The side effects are not fun but they are ones you can live with. Her face got really puffy...she hates that. It didn't make her very sick, she took a medicine to help with it though and her hair didn't thin too much more than it did with Lupus. They thougth she would need 6 doses but she will only need 3. That is good news. The protein in her kidneys is down and her other blood tests are now good. It will be okay. Make sure you follow the doctor's orders though or you will be more sick, even though the Prednisone and the Cytoxan will make you feel a little bad. It will be worth it in the end. I will have her contact you tonight either by this board or through instant messanger. Her screen name is ohemmie or something like that. We live in Connecticut in the United States. Hang in there....it gets better!
Lauren

[jude mack]

Hi Nari

Welcome to the site you have come to the right place to make lots of friends your own age and older.
It's hard being so young and having to deal with lupus, you'll learn all kinds of ways to cope here, and
you can ask any questions you like, and you will always get support from everyone here. style_emoticons/<#EMO_DIR#>/bigsmile.gif I
hope you enjoy the site as much as I do, consider it as a second family who will understand everything
and anything that hurts or bothers you. Wishing you and wonderful Holiday, it's nice to meet you.

Stay Well
Jude style_emoticons/<#EMO_DIR#>/santa.gif

[LilliesPad]

Hi Nari and welcome to the site. I'm having some problems with my kidneys right now also but not as severe as you. My daughter has a South Korean boy living with them through a foreign exchange program. We are learning alot about Korea from him. He is 15 years old. He doesnt have Lupus but maybe I could get him to pop onto the site to say hi. Keep coming back to this site Nari - the people here are so nice and will become just like family to you.

Good luck!
Lillie style_emoticons/<#EMO_DIR#>/wavey.gif

[OoEmmie 89 x 07]

[font=Comic Sans Ms][size=4]hey... my name is emily... my mom left you a post a few nights ago i think... kidneys are definitly scary to deal with... the first time i had cytoxan i had to stay in the hospital for 3 nights and i think i was constantly crying or yelling at someone... i was an emotional rollercoaster... which is partly due to all my meds but i was scared... bottomline... well they have to wear this whole protective outfit and all and i was kinda nervous... they cant get a drop of this on their body but they are gunna put a whole packet of it in my veins! i dont know about you but i didnt like that very much... but the 2nd time i got it i was a little better... and it gets easier every time... try to stay positive about it and bring school work or things to keep your mind off of it. Also, my kidneys spill proteins and in addition to all my medication I completely stopped eating all meat, fish, dairy... pretty much im a vegan and on a low salt diet...its really hard since I LOVE steak and fish and pizza but i figure in the long run it will all be worth it... and in just a month my labs have come back SOOOO much better... i dont kno if it has anything to do with my new diet but i like whatever is doing it so im not about to change anything... hang in there...

[goody_gum_drops]

hi,
i'm chinese, my name is Jessica. I live in america, i'm the first generation in america. I have SLE (systemic lupus e....) i have it with my kidneys too it's called nephritis. i'm fifteen years old. i've been dealing with this diagnosis since 11. i currently am on prednisone, plaqunil, and cell cept. cell cept is a good drug and so is plaqunil, low side effects and is effective. but everyone is different again. i hope you're feeling well. cytoxan is a not so fun drug, but it helps, even though it has some pretty bad side effects that are pretty hard on young girls like us and our appearance. but eventually everything will calm down style_emoticons/<#EMO_DIR#>/smile.gif. i took it for a while, it reminded me of mountain dew style_emoticons/<#EMO_DIR#>/tongue.gif lol. well how are you doing? anything new? good news? best wishes.

smiles and hugs,
Jessica

[edcdancer]

hey hope u got my pm...im melissa....hope to hear from you

[swecri]

hey, my name is sarh, i am 19.
i have not had cytoxan also known as cyclophosphamide in england but my doctor has talked about having it in the future.
i have had iloprost through a drip which is similar i think.
i hate it but it has to be done
i hope you are ok
sarah

[Bouchie11982]

my name is Katie, im 23, i;ve had SLE since i was 19 and i went through cytoxan twice and no it is most certainly NOT fun style_emoticons/<#EMO_DIR#>/sad.gif hang in there! PM me if you would want to chat or ask questons.

[heidid2001]

hi nari,

im rachel and i was diagnosed with lupus last year in april, i was twelve and still am. i'll be turning 13 though in may. I had to get cytoxcin once a month for 6 months and now im on pills for my lupus. Its some new type of medicin. im not sure whats its called. im also on prednisone, and lots of other meds as well. but it seems ur going through like all the stuff i am. i would like a friend as well. do u have aim?(aol instant messaging) if you do mine is raquel5181993. if u wanna talk sometimes i hope i'll be on. sorry u have lupus too.

rachel
style_emoticons/<#EMO_DIR#>/foryou.gif

[Wings]

Hi Nari,

I'm 19 and was diagnosed when I was 13.
I had to undergo cyclophosphamide treatments and take prednisone.
I hope it works for you, it worked for me and it was really worth it.
Hope it helps, take care.

Amy

[lupus1992]

Hello Nari,

My name is Emily and I live in Alberta Canada. I am turning 14 this May and was diagnosed with Lupus two years ago. I don't have kidney problems, but I do have joint pain, a rash, and I'm on prednisone. If you need to talk pm me and we can get to know each other. By the way I do have msn instant messenger.
Hope you are feeling better!
Emily style_emoticons/<#EMO_DIR#>/wavey.gif