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swecri
02-03-2006, 11:46 AM
I am new to this site and stumbled across it last night. I am a 19 year old female and have Lupus disease, Raynaulds syndrome, and scleroderma. i was diagonsed when i was 17 and since then felt very alone in the sense that i have never met anyome else with the disease. and even people i have heard of that have Lupus have always been older middle age women, upon reading the under 20s section of this website last night i got quite emotional upon the realisation that i actually am not the only 19 year old with this crazy disease. i am not the only young girl in the world trying to juggle education amongst hospital trips and physiotherapy.
I went to bed last night feeling very overwhelmed knowing that i really actually am not alone. Don't get me wrong i have a very supportive family, boyfriend and friends but its really not the same trying to get them to understand the pain, fatigue and changes my body can go through.
I want people to know that it has really given me a great sense of confidence and reassurance to just know there are others out there with the disease!!!
thank you all!!!
sarah

roxie_P
02-03-2006, 08:45 PM
hi there am roxie am 19 to in the uk.

i understand how you feel my famliey and bf and even boss is great but they never really understand the pain but you gotta think happy things or it will get you down more, so smile and i hope you make friends on here style_emoticons/<#EMO_DIR#>/tongue.gif

edcdancer
02-07-2006, 01:59 AM
hey i was just talking with you on msn...i found ur post!!! Well keep postin and chatting with me on msn!!! take care style_emoticons/<#EMO_DIR#>/cloud9.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/wub.gif love you

Mel style_emoticons/<#EMO_DIR#>/shakehands.gif

happyartist
02-16-2006, 04:24 AM
Hey Sarah, this site is really great, isn't it? I knew that there had to be other people with lupus, but it didn't feel real before I found this site. I've never heard of lupus before I was diagnosed with it, and I never knew anyone to have it. I'm also really glad I can share my experiences with others. Take care!

paulie
02-16-2006, 05:26 AM
style_emoticons/<#EMO_DIR#>/biggrin.gif welcome Sarah style_emoticons/<#EMO_DIR#>/biggrin.gif
I just left the chat room saw your post. Welcome to the Lupus site.

Lots of members in chat, very experienced. If you have questions,

problems, looking for dr or just a friend you might join them.

Glad to meet you,

Paulie


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