swecri
02-03-2006, 11:46 AM
I am new to this site and stumbled across it last night. I am a 19 year old female and have Lupus disease, Raynaulds syndrome, and scleroderma. i was diagonsed when i was 17 and since then felt very alone in the sense that i have never met anyome else with the disease. and even people i have heard of that have Lupus have always been older middle age women, upon reading the under 20s section of this website last night i got quite emotional upon the realisation that i actually am not the only 19 year old with this crazy disease. i am not the only young girl in the world trying to juggle education amongst hospital trips and physiotherapy.
I went to bed last night feeling very overwhelmed knowing that i really actually am not alone. Don't get me wrong i have a very supportive family, boyfriend and friends but its really not the same trying to get them to understand the pain, fatigue and changes my body can go through.
I want people to know that it has really given me a great sense of confidence and reassurance to just know there are others out there with the disease!!!
thank you all!!!
sarah
I went to bed last night feeling very overwhelmed knowing that i really actually am not alone. Don't get me wrong i have a very supportive family, boyfriend and friends but its really not the same trying to get them to understand the pain, fatigue and changes my body can go through.
I want people to know that it has really given me a great sense of confidence and reassurance to just know there are others out there with the disease!!!
thank you all!!!
sarah