I got something

[Regina]

Hi everyone

I posted a message back in september about DLA and how they had turned me down, I appealed and the reason I did not get it was because of my GP. I have now changed GP and at an appeal today was awarded low rate care for 2 years, no mobility though. I am pleased with this and feel that that is probably right I am not virtually unable to walk but have good and bad days.

So there is hope for us milder lupus sufferers after all style_emoticons/<#EMO_DIR#>/jump.gif

Regina

[helpanother]

CONGRATULATIONS!!!!!!!!! style_emoticons/<#EMO_DIR#>/woohoo.gif

Newbie, Vickie from Maryland

[macfamily53]

[b][size=1]


I am so happy for you that is great. I know what thta is like waiting for that response. My GP would not have anything wiht helping me with getting dissabilty for mine but the rhueme did . iT took me 3 times in the good old usa. We have no idea of what they even go by half the time here lol. But i am glad for you really. That is so awesome Take care

Tammy style_emoticons/<#EMO_DIR#>/biggrin.gif

[larraine]

congrats to eventually getting some DLA but dont get downhearted about it being low rate as thats the way they started with me, then as i had my reviews and they saw things getting worse i was given middle rate for 3years then high rate mobility and middle rate care for 5years so there is light at the end of the tunnel just dont give into them as most people do and they lose out the only thing that annoys me is they wont give me it for life saying its my age (36) i was 21 when i started to fight them. Sorry for going on abit.

[Regina]

Hi everyone and thanks for the replies.

I am hoping that I get better now so that I can go back to work but whatever happens at least I got low rate care for two years, If i do deteriorate then I will re-apply.

I will not stop fighting, feel like I spend my whole time fighting. I have my Employment Tribunal now next month and I finally got a medical report from my Rhumy, so there should be no argument now that I am disabled. Wish me luck in carrying on the fight style_emoticons/<#EMO_DIR#>/hissy1.gif

Gina style_emoticons/<#EMO_DIR#>/jump.gif

[Clare.T]

More power to your elbow Regina !

You did well to change GP's. What wretches some of them are.

Good luck for everything in the future

style_emoticons/<#EMO_DIR#>/clover.gif style_emoticons/<#EMO_DIR#>/clover.gif style_emoticons/<#EMO_DIR#>/clover.gif

Clare

[balla]

Hi i get DLA for life now but at first was for only 12 months, My husband had to appeal on my behalf as when the appeal was due i was in hospital having brain surgery, My husband said it was unerving.But the doctor on the board was well with him.I also get motorbility high rate as i find it hard to stand without pain cann't even get round a supermarket without sitting a couple of times to feel the blood come back in my legs.I know it is hard as my farther had to have medicals every 2 years as he had a stroke and lost the feeling in his right side of his body 10 years and it never returned we lost my dad in 2002 to another stroke brainstem one left him in a coma for 10 days it happend on the 13th march passed away on the 23rd. It does scare me a bit as most of the symptoms i have is the same like his eyes mine don't react to light so have dilated pupils, Need sunglasses all year round as light gives me very bad headaches.He also had the pain in his legs like i do.Along with alot of other symptoms.Pressure in my head showing 36 when it should be 16. My eldest daughter tried for DLA due to her having raynauds and perniciouse anemia meaning she has very bad pains also when standing.She as to take asprin for life due to her raynauds she has in her legs also to stop the risk of a stroke she also as to have b12 injections for life due to vitamin b deficancey that can cause stroke death or coma, IF not kept under control. She does work as a accountant.But she appealed and it didn't do her any good.The doctors have tried all meds for her raynauds but nothing as helped she started with raynauds at 13 now my youngest daughter as started with it also.Forgot to mention my eldest daughter also has kidney problems of which means she takes alot of time off when infection sets in,Just hope it doesn't end up her losing her kidney like i did at 21. SO yes it is hard to get DLA