recieved results 8/3/06

[angibabes32]

well i have finally been given my results yesterday, my doctor was dumb founded as every blood test that was took come back positive, she even said my ana test was the one that was highlighted by the pathologist's. she is now chasing up my appointment with the rheomo and has told me i have to stick with the medication i am on, my white blood cell count was very high showing some sort of infection so she is running that one again, she told me that she had studied lupus and understands what its all about, i was so relieved as not many doctors know about it, she has also said she wants to see me weekly for the time being, ya know what would be so nice is to have just one week of no hospitals and no doctors, just have a holiday from it all. she is sorting out new meds for me to have a go at and see what will work best fior me, i have to go back and see her for that next week and should also be getting my results of my mri soon, cant wait (not).
i am sort of scared deep down inside as i dont know what the outcome will be or what is going to happen to me now, ive also got my 3 children to think of as i am completely on my own, i told some members of my family too yesterday and their reaction just been told your definetly a hypercondriac," i was so mad i told her where to park her horse and hung up on her, the other one is in shock and my brother still is yet to find out, i brought him up from the age of 4 and i suppose that its the mothering instinct to carry on protecting him, i know i will tell him in time but i cant yet, hes still my baby bro, has any one else had mixed reactions from thier familys, if so how did you over come it, oh well, i classed yesterday as my new day to start of a new life living on meds and seeing my sexy doc, well every thing has its bonus's
i will write more when i know more but hey a huge thanks for letting me moan and groan about it all,
love and hugs to all us lupies, its nice to know there are some people i can turn to, it means loadssssssss
xxxxxxxxxxxxxxxxxxxxxxxxxx

[cath]

Dear Angie,

I'm sorry to hear your test results came back positive, but since you're feeling rotten anyway and you need a diagnosis, this is probably a good thing. It sounds like your doctor rekons these results should get you diagnosed.....I hope so for you.

I'm really sorry some of your family are being so mean about this. Some people just have Grinch hearts (you know from dr Seuss... the mean creature who stole christmas...).

It will take a while to adjust to the news and all the changes to come. Expect days where is is a relief, and days when you're just furious at the world. In a way you have to go through the grieving process.

Well, we are here for you....

Take care,

X C X

[macfamily53]

Dear Angi

I am glad somewhat you do have a diagnosis. So that now they can concentrate on give you something to make you feel better. It is scarey at first for all of us. There is way to much they can do for us lupies these days though rember that. You do have lots of people here that do care about you and want to help you throuhg this. Did they tell you what kind of lupus yet just curious. I am guesssing not. One thing that gets me through some of my bad days is my two kids looking at them an d feeling that i have a lot of blessing in my life and they keep me going. Oh we all have our bad days and that is what a support group is for to help you throuhg it. Yes family is supposed to also but i gave up on that one. They are there for me maybe 2 out of 7 of them and even then they have to come up with a complaint or just look at you like there she goes again. So i gave up on talking to mine a long time ago. There are a lot of people in here that there family has been a really great support staff and belived them from the beginning. You cannot worry about them is what i shoud say it hurts yes but take care of you for your kids sake. I hope you let us know the results of the MRi would really like to know and maybe nothing will show up. Good luck angi and venting is what we all need to and do vent also.It will slow down soon now that they now what is going on.

Tammy

[helloos]

Hi Angi. I agree with the others. I too am glad that you are going to be watched closely and get the righ treatment for you which staying positive will make you feel better.

Do not look at this like a death sentence, but as one that you are going to get better, be treated properly and start to feel better.

I know what you mean when you say about family. Friends too. I think that most people don't know what it is all about. Give them time. The most important thing is that you get better.

As for your brother. Since you have brought him up, you probably have done a fine job, and would be surprised to know that he will handle it ok. We always tend to protect the younger ones, but when they are adults, we need to remember that they are adults now and that they too can handle situations.

Take some time away from away to process all of this. Focus, and stay positive.

[Joandublin]

Hi Angi
Sorry everything came back positive but you must also feel a sense of relief at least knowing you were right and that you will start treatment which should make you feel considerably better. That was a terrible response from your relative when you broke the news. You must have been very hurt by this.
Its great that you have a supportive doctor who is finding out all about lupus. That will make a huge difference to your care.
You're right - yesterday was a defining moment. New life, new meds, sexy doctor! (every cloud has a silver lining!). But life is all about change and we are creatures who can adapt to change.
Hopefully your symptoms will soon get brought under control and you can start living a normal life. Even though I have some problems now I feel 100% better than I did over the past few years before I started treatment.
Love to you and your little ones

Joan

[angibabes32]

just wanted to say a huge ty to all thos who sent reply's, it means alot knowing i do have someone to turn to, even my ex hubby has been great, hes taking the kids off my hands tomorrow so i can have a long rest over the weekend, thats something he hasnt done in a long time, but hey i aint saying no to it, one thing all this has taught me, you do know who ya friends and family are when u need them the most,
but thank you all again it means alot

[lazylegs]

Hi Angi,
You are right, it is the start of a new life. Forget trying to make those family members that don't believe you understand. In time they may come around. It's great your ex is taking the kids. Accept any reasonable offers of help from family and friends. That will be hard at first. Most of us are used to being the ones to do it all. Also, don't worry about not being the perfect mom. Every kid always thinks they have it the hardest anyway. Loving and caring for them the best you can is all you can do. Your brother should know. Would you want to be left in the dark about him? Hope your MRI results are good. Remember we will all be here for you.

Take care,
Lazylegs

[sheila t]

Hi Angi. I am pleased to hear that things are getting sorted for you. Hope you don't have to wait long for your Rheum appointment, but sorry to hear some of the family are not so supported. Does sound as though you do have a good Doctor. Keep us updated

Huge Hugs

Sheila xxx

[Christine UK]

hi ang sorry u have lupus but glad you know what u r dealing with
sending u lots of hugs and support x x x

[Possi]

I am SO sorry that your tests all came back positive. Sounds like my first diagnosis. My white count was so high that I was in the hospital with IV antibiotics because my PCP (in our small town) was afraid I had a massive infection along with the Lupus so he jumped on it until they could move me to the city.

I am sorry about your family also. I really think we have all been there. I had friends just disappear. I don't know if they don't know what to say or it makes them realize that it could be them. Even after 30+ years of a Lupus diagnosis and an RA diagnosis since I was 14, I have a sister 2 years younger than me who always has a putdown. She is always telling me how many people she knows who still work. Aren't I glad it' not ??????whatever hits her mind at the time. I don't know what her deal is so now if she says "How are you?" I say "Fine" even though I may be using my cane or even in my wheel chair. People being people.

My first rheumie told me that the best way to live a long life was to get a chronic illness and stay on top of it. Who else besides us spend that much time in a drs. office and get regular blood workups, etc. I think he is right. The key......balance. I still have trouble with that one. I have a good day and I overdo it and pay for it tomorrow. The dr. tells me balance betwen rest and exercise, foods, stress, just about everything.

I will be thinking of you as you learn to deal with this big change. My dr. also told me that he knew I wouldn't believe this but it would become the norm. I told him he was crazy that this would never be normal but it has become that. This is our life now even though we still take the old Possi down sometimes and play "Remember when" and "What if's" but then we come to our senses and set her back up on the shelf and get on with life.

blessings.
Possi:hehe: