Who else is like me

[dee123]

HI all,

Is it just me that is wanting to sit and cry all the time, or is there others out there somewhere i have been like this for the past two days now, i just cant snap out of it, even now as i am typing this i have tears rolling dowmmy cheeks, i have seem to be on a low more often than i high right now, plus the blisters on my feet are stilll weeping making it really difficult to walk (even to the bathroom).. i am off work sick at the moment and people that visit are honest with me and say how ill i look, i have no energy, gone off my food, if i am not asleep i seem to be in tears, hubby not sure what do when i am like this, just feel like i am getting no where fast...
I am to see specialist on monday, hopin that he can do something for all the systmens i,m currently going through...
Although i live in cardiff wales uk i feel like i am really alone it would be nice to just meet up with another person that is going through the same ordeal as i am... but can i find that person no i cant...
well i gunna close now and see iif i can have one night sleep that i don't wake up in pain(somehow i doubt it cant remember the last night i slept through).. my hubby will be on here now for a while.. so i will say nite to everyone now

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Dee

[pennylp]

Hi Dee,

I am so sorry you are going through this.... I am sending you a big big(((((((((((hug)))))))))))))
to help you feel better.... sometimes our illness can become overwhelming and cause us to feel bad...It is part of being sick and in pain.... I too have bad days,as a matter of fact I had one today....I felt so good yesterday and today I was back to a ton of pain....
You need to tell your doctor how you are feeling emotionally and physically so he can treat both... Maybe you need something to help you get through the bad days...
Your husband probably feels helpless because he can't take the pain away from you...But being there for you probably is the best thing he can do...
As far as having a friend to talk to who knows how you feel... Well you have a ton of friends right here that know exactly how you feel... and you can come on at anytime during the day to talk to one of us....
I know when I joined the site I felt like I found a whole family who understood all my pain and anguish...and it wasn't long after that I accepted lupus...and was able to move on... We are here for you.... I hope you have a good night sleep...

Love Penny

[andi04]

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Hi dee I'm sorry you in so much pain and getting no sleep; I'm in the same boat as you are. I was and am still depressed, I am taking an anti depressant and it seems to be helping me cope at least some of the time anyway. I woke up feeling okay today (first two hours of sleep I had most of the week) I mean real sleep.

as Penny said this is as great site for making friends everyone here is so caring and genuine and instantly make you feel like part of the family because we know what the other is going through.

I hope you feel better soon and get some sleep maybe you should ring your gp or rheumatologist and ask for something to help with the pain...just a thought...

(((((dee)))) feel better and sleep tight tonight...

andi style_emoticons/<#EMO_DIR#>/clover.gif

[peonyprincess]

It is amazing what expectations we place on ourselves. Whether we are ill with the basic flu or we are having a flare, etc, we attempt to forget our troubles and place ourselves up on a trouble free pedestal. We expect ourselves to rise to any occasion be it good or bad. We schedule tasks to be done in short order and usually take a big bite of chores and such that a normal person could not accomplish. We put on a happy face and tell everyone we are "okay" when in reality he are crumbling like mortar. Why do we do this to ourselves? I am sure each one of us affected with any type of disease could give you what would be considered a valid answer..........to them. What we need to do is face the fact that yes, we have a disease that slows us down and that we can no longer accomplished the tasks that we once did. We become so hard on ourselves for not completing them that we get depressed. We stress over things that we should blow off, you know the saying, "don't sweat the small stuff." Problem is, we do. We over compensate for our short comings which leads us down a path of misery. I know it is hard to wake up every morning knowing that life will never be what it used to be. You are allowed to have a pity party and invite whomever you want to join you. Just remember, that with all parties, they have to come to an end and we must go on. It is very difficult I know, as I deal with depression myself. My world has been turned upside down and I am grabbing the strands of my life trying to hold on and reconstruct my life to a new form. It is not always easy, but then nothing worth having is easy. If you need medication ne it new, increased dose, additional, then by all means take it. If you feel that you would benefit from speaking to a therapist, go for it. Whatever you do, just remember, you are most certainly an important person to someone and then need and depend on you if for nothing more than a mere smile and hello. OUr lives have forever been altered, and with that goes a pandoras box of problems. Try to keep the lid on so to speak and hold your head high. Crying is good, it shows that you still care and have feeling. I hope you can find peace, if only for a short while. Sometimes it is difficult to make peace with yourself and this dreaded disease, but find that place that you can. Admitting acceptance is hard but in the end it will make you stronger. Do not be afraid to ask and keep your chin up. We are always here for you.

Nancy

[Christine UK]

<span style="font-family:Comic Sans Ms"><span style="font-size:12pt;line-height:100%">
oh i am so sorry you feel like this....i so know how you feel...u only have to go back at look at my posts !
please feel free to e mail...you are more than welcome..it so helps to know others are feeling this way to
(((hugs))))</span></span>

[Joandublin]

Dee style_emoticons/<#EMO_DIR#>/hugbetter.gif
So sorry you feeling so low. Did you get to see your GP? You need to explain how bad you are feeling and how much pain you are in. I have SLE too and despite being on plaquenil and steroids I was still feeling very poorly with fatigue, all over kind of pain and very very poor sleeping. Maximum of two hours at a time. The other day my rheumatolgist diagnosed me with fibromyalgia as well. I am not saying that is what you have but you have to make sure you explain to your specialist on Monday EXACTLY what your symptoms are.
I have just been started on amytriptaline (sp?) which is an anti depressant and is used to treat fibro. Fibro people cant get into 4th stage sleep apparently and this means they wake up exhausted. This drug helps you get to that stage sleep, helps with chronic pain and also lifts the mood.
I am only going to take it tonight for the first time but I will let you know how I get on.
I really hope your specialist can help and that you will feel better soon.
It DOES get better Dee. I promise.
Luv n hugs
Joan
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[dee123]

hi all
Thanks for all the replies, at least now i know iam not going mad as wellas lupus, it is really good to know that i can turn to you guys when i am feeling the way i do right now, i will keep in touchwith you all, please feel free to mail me on ladyinred416@hotmail.com
although i still feel alone right now i know i i'm not not really, once again thanks for listening to me winge on
you are all fab..
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style_emoticons/<#EMO_DIR#>/foryou.gif all my lupie friends
take care
Dee.x