dizzy and funny heads

[lin]

<span style="color:#FF6600">Just wonderd if anyone else gets dizzy doos, like wanting to fall to the right, and muzzy heads, and behind my eyes, like you cant foucus properly, how ever you think you have cleaned your glasses, or put your eye drops in, its not clear.

, Also pain sometimnes like headcahe, then goes, but most times like sharp,pain, been dr's two weeks ago, told him, he gave me stemitol, and said if doesnt go i should go back to him, he wouldnt let me lower this time on the pred,

well went today and guess what my dr poorly, so saw locam and as nice as he was, i knew he knew nothing about sle, so waste of time, he just said it could be virus and could take weeks to go, which i know it could be,

i think i get workde up becuse ive been down this road before, starting with dizzziness, then real bad heads, then before i know it i was feeling pretty horrid, as my writing was effected my talking was comming out wrong, saying one thing but meaning another thing , and thats been happening off and on again, could just be in my head, scared to think anything else,

would love to hear how you out there get, i proberly being parinod lol!! as im already on medication to help, on azathioprine and steroids and plaqu, so surley it wouldnt be anything would it? i know your not dr's and i have thank god,, got apointment sometime this month with rheumy

thanks for reading anway (((((((((hugs)))))))))) Lin xxxx style_emoticons/<#EMO_DIR#>/smile.gif style_emoticons/<#EMO_DIR#>/foryou.gif </span>

[Paulin46]

Hi Lin, I sure do understand the muzzy head! That is my most prominent symptom. Migraines with Aura, funny head I call it. I have trouble focussing. Sometimes I think I need better glasses, but my eye doctor says no. style_emoticons/<#EMO_DIR#>/sigh.gif



I've been noticing with my typing that I switch letters around, or I can't think of words I want to use. Yep the foggy head is part of my lupus. style_emoticons/<#EMO_DIR#>/shrug.gif

[Joandublin]

Hi Lin
Yes I sometimes get that strange almost falling to the right feeling. The other thing I get is harder to describe but I will try!
Its sometimes like I feel I am 'catching up' with myself.....Let me explain a bit better. Did you ever see those 1970's pop videos where they show you a person and a host of their images all behind them? Like there was 20 or 30 of the same person floating behind them? God this is even harder to describe than I thought!
I'll try again...
If I moved suddenly to the right I have a sensation of my body in slow motion trying to catch up! Obviously its only a sensation but it is really wierd! Have never mentioned it to anyone before lest they lock me up!
Also get the fuzzy eyes stuff but my eyesight is grand apparently!
Also like yourself and Pauline I keep typing the wrong words. I am an expert typist with about 100 words a minute and about 95% accuracy normally. Sometimes when I read something back I have written a completely different word than I meant to write. Its not just hitting the wrong keys. I could write the word 'the' for 'one' for example and there are many more! Cant figure it out but I have noticed it a lot. Always have to preview my replies before I post them just in case!
Anyway...know you are not alone and not mad!
Luv n stuff
Joan

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[HeatherR]

I get that falling to the right feeling too. Also I will feel like I'm stepping off a curb when I'm walking on a flat surface. I totally get the "I'm a few paces behind me" feeling.
I'm still in limbo. Diagnosed with ms, undiagnosed with ms and now just floating around trying to get to the right answer.
HeatherR

[Melody2]

I get that same thing you describe Joandublin where you move and the rest of you catches up...it's so weird! I also have a funny perception that I'm very short, like my counter is up to my chest and my arms seem short when I reach for the fridge...that's a hard one to describe, and only when I have this awful pressure and fullness in my head...such a surreal experience, I abhor it! My rheumy thought it was like a silent migraine, which I can see, cuz my vision is affected...and sometimes I have moments of exploding pain that just as quickly is gone. So I guess the pressure and weird perceptions is what my body swaps the pain for. Weird! But it was intersting to hear your description Joandublin...and a relief I'm not hte only one!

Melody style_emoticons/<#EMO_DIR#>/clover.gif

[starangel]

hello, style_emoticons/<#EMO_DIR#>/biggrin.gif

well i dont know but it feels like you are talking about me style_emoticons/<#EMO_DIR#>/biggrin.gif
I have just the same as you are talking about style_emoticons/<#EMO_DIR#>/crying.gif

Also the eye symptoms, well i would like to ask you if you have trouble with light?
I cant seem to adjust to the light very well which then gives me strange feeling of dizziness style_emoticons/<#EMO_DIR#>/crying.gif I get blurred vision, wavy lines at the side of my eyes and the strangest one of all is looking at something and it actually disappears in front of my eyes. Only for a short time and then clears and then goes again. It mostley happens at night when i am looking at the stars!!!!

I cannot get an answer from the docs about these symptoms and i find them very worrying style_emoticons/<#EMO_DIR#>/blink.gif They are always with me but sometimes worse than others.
Is this anything like you are trying to discribe?? I sort of hope it is as I find it helps if i know someone else has the same thing as me!!

I could go on discribing the feeling but it would take a long letter lol.

I would be interested in your reply just in case we have the same thing.

Take care and be well
Best wishes angie

[Joandublin]

Angie
I also cant adjust to light. Going from dark to light I have to shield or close my eyes. Dont get things disappearing though! Sorry!
Luv n stuff
Joan
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[lin]

i also get like when crossing the road or when i look away from looking forward i will fall to one side, its a alwful feeling the comming down in a lift feeling is not asbad now, but the dizzy feeling and heads are still there,

I have E mailed the lupus nurse, she said she can understand how i would be scared,, and that all what we had chatted about on the phone she would write down in my notes, As im due to go there in may, but i do have a local rheumy to see next friday thank the lord, yes it does scare me, as im frightend the cerebral lupus could be returning, she could understand my scaredness,

but it wasworth me e mailing her just for her to ring me back, as i got ot tell her qbout how im feeling and that, i have still not heard from the nero pycholodist,, and you no what i wouldnt have done as the letter didnt get done, so she was going to see to that the sameday aswe spoke,

Asim getting me words stuck again, and hubby says im writing things face backwards, but im just hopng itsall to do with anything else but the lupus, itcould even just be the fact we went on the plane to spain a few weeks ago or virtiog antyhing,, will let you know thanksfor your replys

guhs Lin xxxxxxxxxxxxxxx