Stiff neck

[songbird]

Hi again,
Something weird going on with my messed-up body as usual. style_emoticons/<#EMO_DIR#>/blink.gif I have been having lupus headaches, and my spine hurts (yup, my spine, all the way down). These are symptoms I've had before.

Now my neck is really stiff! I can move it, but it hurts whether I move it or not and it's hard to move it the full range I'm supposed to be able to. (Does that make any sense?) This is not something I have ever heard associated with lupus. Have any of you had it?

I have been having the "warning signs" I get of TIAs all week without having another one since the one on Tuesday. I don't know what my rheumy is going to do with me; wonder if he's going to let me go home?

(BTW I had to show up at rheumy's offc to do it--apparently the receptionist doesn't understand the phrase. "I need to be worked in," but I have an appointment tomorrow at 4:20 pm. Which, knowing my rheumy's thoroughness and his popularity, means 7 pm. At least I may feel better after seeing him.)

Songbird

[alobreto]

Hi, Songbird! style_emoticons/<#EMO_DIR#>/wink.gif
Sorry you're having such a horrible time. style_emoticons/<#EMO_DIR#>/sad.gif

I'm glad you're getting these things checked out. Anytime you get something that is NEW or WORSE than it's been in the past, it's a good idea to go in and let the doc know about it.

I don't know if specifically the neck is stiff with lupus joint problems, but since several vertebral joints are involved it's probably safe to say that a stiff neck from lupus is, at least, POSSIBLE.

I have a stiff neck all the time, but I've had degenerative spinal disease for a number of years and if mine is even in part due to lupus, I'd have no way of knowing. It can be a real trial to attempt to look over one shoulder or another. In fact, it's something I haven't been able to do for a very long time.

I hope your neck problems are short lived and that things start improving for you soon!
Angela style_emoticons/<#EMO_DIR#>/flowers.gif

[zara]

Next time you see the dr have them check the curvature of your spine. Muscle weakness and neurological disorders can affect it.

[Lily]

Hi,

I'm so glad they are working you in, you really do need to be seen ((((((hugs)))))

style_emoticons/<#EMO_DIR#>/hugbetter.gif and there's a few extra for that awful spinal pain- if its CNS related then you have ALL my sympathy, I never want to experience that again !

Take care and lets hope he can work some magic tomorrow.

love
Lily

[Msturtle]

Hi,
I also have a very stiff neck and I was diagnosed with SLE on March 15, 2006. I am getting an MRI because the neurologist thinks that it is CNS involvement.
Is a stiff neck a sign of CNS involvement?
Anyone?
Hope your neck feels better. Feels weird to have a real pain in the neck eh? style_emoticons/<#EMO_DIR#>/tongue.gif
Jenn

[songbird]

Jenn-It could be. I don't know for sure but wouldn't be too surprised. CNS is the only organ involvement I have. (And isn't that enough?!)

I know, too, that I have idiopathic transverse myelitis. (Basically the lupus is eating away at the lining of my spinal cord.) I don't know if that is always happening or just in flares-not sure how TM works. But there's some chance it's related. I usually think I know a lot about lupus but I'm really out of my depth here.

Songbird

[halfpintfl]

style_emoticons/<#EMO_DIR#>/wavey.gif Hi Song, I sorry that you are getting all these things on your plate.
It sounds like you are really hurting. Some of it sounds like fibro, most of
the rest sounds like" I don;t know". I would ask for an x-ray of your upper
sping, it might shed some light on things. Other than that , I don't know
what to tell ya. Just please get to see your dr. a.s.a.p., and let us know.



Be well and keep posting. style_emoticons/<#EMO_DIR#>/cool.gif

[Msturtle]

Man,
That does suck that you have CNS involvement style_emoticons/<#EMO_DIR#>/hissy1.gif . I'm really sorry to hear about that.
I am just praying that they don't find anything on the MRI when I get it done. You know when I first got Lupus about a month ago I thought about the worst organ that could be affected. I totally thought that organ would be my Kidneys. Now, I'm sorry to say this but I wish it was my kidneys instead of my CNS & PNS!
Like I remember thinking, man am I lucky my Kidneys are O.k. Who cares about my stiff neck, psychiatric disturbances, depression, cognitive impairments or migraines? I think that having CNS involvement is really scarey and no offence to any of the Lupies with Renal failure because I know that must be just as scarey but Man!!
Lupus LEAVE OUR CNS ALONE!!!!! Go after my feet or something I can just cut off! style_emoticons/<#EMO_DIR#>/crying.gif
Lupus Sucks,
Sincerely,
Jenn