Vertigo??

[Luptyloo]

Hello. Does anyone suffer from Vertigo? If so, is it related to Lupus, or other autoimmune disease? I don't have a dx, but when I list my symptoms, I don't usually think of it, and it is not one of the usual questions docs ask. Just wondering???? style_emoticons/<#EMO_DIR#>/umm.gif THANks!

[sam101360]

Hi:

I get repeated bouts of vertigo. According to the ENT mine is indeed related to my Lupus...flares cause lesions in my nose, mount and inner ears (they are skin too). These lesions in the ear cause the crystals that help you keep your balance (communicate from ears to eyes) to shift from there proper place.

I just have to wait these out like other lesions.

I am not a Doctor and cannot tell you if yours is related or not, this would be something for an ENT to dx.

I am sure others will add there comments.

Stephanie

[jude mack]

Hi

I get vertigo, usually when flaring. It's not much fun is it. I think alot of people here suffer from vertigo. Good luck with getting a DX.

Take Care
Jude style_emoticons/<#EMO_DIR#>/flowers.gif

[lazylegs]

I occasionally suffer from vertigo. It is a symptom in a few other diseases also. Definitely mention it to the doctor. There are a few things on the market that will help decrease the symptoms quickly. Hope you get a diagnosis soon.

Take care,
Lazylegs

[Luptyloo]

Thanks Sam, Jude, and Lazylegs! Hi Teri, Vertigo is a sensation of the room spinning. As you can imagine, it causes nausea, and sometimes vomiting. When I get it, I have to lay down, usually on a specific side, and not move. At it's worst, the room spins even with your eyes closed. It is not fun. I have only had a bad round with it a couple times, but I can get the dizziness in my head from watching cars too much at a traffic light sometimes. style_emoticons/<#EMO_DIR#>/wacko.gif I saw an ENT, who really didn't have any answers, (nobody has any for me yet! style_emoticons/<#EMO_DIR#>/huh.gif ). As far as my doc, I am in Kitsap, and there aren't really any Rheumies over here. I have my primary who is great, and I have seen the one Rheumie who visits over here, and two at UW. I have basically not been sick enough to get a dx. I have been pegged as self-diagnosing because I have done too much research style_emoticons/<#EMO_DIR#>/hissy1.gif . I guess it's bad that I want to know what I could be up against, and what options could be presented! We all know docs don't give all the info we would like! Anyway, enough rant. I do plan to see Mary Wemple in Seattle when it is time for a referrel, and I think it is getting close. (I am still fighting the pleurisy-it is over a month now, including a course of pred.) I have heard really good things about her. If you know more, you can PM me.

[Pollyanna]

Nikki,

Just to reply and let you know that vertigo was my first symptom. In 1995 when it hit, all the tests available at the time indicated a lesion on the brain stem. Had surgery to resect that lesion - never fully recovered / compensated from the loss. Lost my hearing on the right side, and to this day I have vertigo when fatigued, around strobe lights, flaring, etc. By the way, my first diagnosis was suspected to be MS because of the vertigo, fatigue, brain fog, etc.

I'm fortunate that most times I can sense it coming on and when that happens, I can head it off with valium. But when the vertigo gets out of control, atavan is all that helps me - that and sleep!

Do you get a "full" feeling in your head with this? Just curious! Take care and hopefully you'll keep that spin to a minimum. Oh and by the way, if you can find an neuro-otolaryngologist, he'll be the most informed about this. Good luck!




style_emoticons/<#EMO_DIR#>/foryou.gif Pollyanna

[Luptyloo]

Thanks Pollyanna. It sounds like you had/have vertigo much worse than I do, as I only get it bad once in a while, and no, I don't get a full feeling. I have just assumed it was connected with my allergies/sinuses=eustation sp? tube and ears being affected. I will definetely add it to my list of concerns for the doc. Thanks a bunch! style_emoticons/<#EMO_DIR#>/foryou.gif