Ok, here we go again....

[vickijo]

Ok....I know it's not just me because of all the great posts you all gave when I shared this before....but it has happened to me yet again.

I got a phone call this time from the wife of a guy I work with (I'm old enough to be their mother)....but they are having a "nutrition class" at their house tomorrow and wanted to know if I wanted to go since I have been sick so much.

I expressed my appreciation for their concern but doubted that I could attend as my weekends are busy...and a time for me to rest. I told her that I suspected lupus or something similar and she never missed a beat.

She was just like my boss.....I know they care....but actually they are all in this to make money. I'm not stupid...I know they are selling these supplements.

My big question is: if these things are so great why don't the doctors tell us about them????

When I tell these people I have an a appt. with a rheumatologist they act like I'm a nut case.

Instead of feeling grateful to these people, why do I feel angry and annoyed? Is it because they are minimizing me and what I am going through? Maybe....I also am frustrated because I feel like I am being judged in a way. Does this make sense? That if I were a better person, who ate better, etc. then I wouldn't be sick????

Anyway, thanks for letting me vent. This has been driving me crazy all day and just had to get it out.
I think I need a new job!! This is a small office.....

Hang in there everyone.
Blessings!
Vicki

[helloos]

Hey Vicki

I know exactly what you are trying to say and how you feel.

Some people just don't understand how someone can be sick. They are unfamiliar with Lupus. If you had cancer, I am sure they wouldn't be calling you up saying to come and take this and it will cure you.

The problem is Lupus needs more education and knowledge to everyone.

Maybe you should have said, "hey, I'll call my rhemotolgist and tell them that you have a found a medical breakthrough for a cure for Lupus, I bet you'll have all kinds of doctors wanting to attend." Ok maybe a bit harsh, but woudn't it FEEL good to say that?

I think those supplements are good for healthy people, but the same thing as a vitamin that you probably already take. EVeryone's feeling of health improves by taking a vitamin, eating fruits and vegatables and maily just eating right. Unfortunutely those supplements will not prevent you from getting Lupus, cancer or any other disease.

Brush it off. They aren't worth it.

[alobreto]

I know exactly what you mean about people believing in products because there are a few people in the literature who are listed as having benefitted from a particular regime or treatment plan.

These dolts need to be told that if their best argument for the items they're selling is that a few people are willing to say their condition improved, then the clinical trial data does not support their claims or else NO clinical trials were undertaken.

I tell people to supply clinical trial information on their plan/products because that is the way to find out if it is effective for an acceptable percentage of people with a particular disease process and will also provide a profile of side effects and possible interactions. Side effects and interactions can occur even with vitamin/mineral supplements.

I tell people that my doctor will not allow me to embark on untested treatments and that he will review the data they provide to determine if it is appropriate in MY case.
Angela style_emoticons/<#EMO_DIR#>/flowers.gif