Hair

[natfab15]

Hello, me again!

Just thought id come on to chat about my hair. It started falling out a while ago after i had a really really really bad flaire up and so far hasent stopped falling out. I was hoping it was only falling out because of the flare up and would stop but it hasent yet. Im starting to get abit of a bald patch near the centre of my head but its only tiny yet and i can comb my hair to a side parting so... I was really upset at first and felt quite depressed as im going back to uni in september and itl be hard being around my friends with no hair..... byt now ive figured my hair sucks anyway!!!. Its alwasy got notts in it and is hard to control as its so curly, so if it does flal out im sure a wig will be much more styish then my hair. Like samantha on sex in the city, when she loses her hair to cancer. If it dosent fall out then its ok, il still have my hair anyway. So what the ****.... If not worrying about it anymore style_emoticons/<#EMO_DIR#>/smile.gif

P.S im going to support the marathon on sunday, and all the people running for Lupus!!!

Go Lupus Runners!!!!! style_emoticons/<#EMO_DIR#>/woohoo.gif

[whyseesangel]

Well u know wat nat, when it comes to hair and especially the topic of loosin it, scares me a lot! I mean ive had long hair ever since, i mean the long straight hair... i mean i couldnt stand to see it fall thaz why i chose not to take that cytoxan thing.. im scared bout losing my hair.... style_emoticons/<#EMO_DIR#>/sad.gif

I admire you for being brave and being open about it, that it would be more stylish wearing WIGS... style_emoticons/<#EMO_DIR#>/hehe.gif
I kinda lyk that attitude, i admire that.. style_emoticons/<#EMO_DIR#>/foryou.gif

Uve given me an idea on how it is to be brave in some things.... style_emoticons/<#EMO_DIR#>/Thanx.gif

[jodipat]

Hi,

I am probably a bit old to post here - but feel I was in the same situation as you. I am 28 and have only been diagnosed for about 7 years. I have had symptons since 16 with no explenation though.
I too have (had) very thick coarse curly hair and it started falling out at 16. No one else noticed for quite a whilethen people did start making comments. Luckily because of the nature of my curly hair it is quite easily disguised - I have not been able to wear it down for about 9 years - and would never suggest anyone gets it cut once it starts falling out - at least if it is long it can be pinned up etc.
Mine has never grown back - but believe this was as I was not diagnosed for so long. I do still live in hope though and am sure yours will I will cross my fingers for you. If it is really worrying you you could go to a specialist who will check the folicles. If they are intact and don't show any signs of scarring it is really encouraging it will grow back.
I have noticed over years how many women actually suffer with hairloss - but it seems like a taboo subject where people are ashamed.
It is nice to hear you are up beat about it. It is very hard to be but I have got a lot more to live for than a stupid full head of hair!
I hope you soon regain your head of hair. I also noticed having mine highlighted made it more managable and seem thicker. Aparently it does not harm your hair at all - as the hair is not thin there is just something in the body that is attacking it.

Best of luck for your future health and happiness

Jodi

[just sar]

hello my name is sarah,
Im 23 and had lupus since i was 16 with your hair falling out this is normal
we dont want it to be but it does thin. Iam also a hair dresser and fine i cant
colour my hair either because it gets very itchy. My only help i can give you
is start using shampoos and conditioners with no soap in them only because
the soap sometimes is to hard on the hair making it easier to break and fall out
you have to be gentle. style_emoticons/<#EMO_DIR#>/bigsmile.gif also i know it hard and your being so brave
with the change but try not to stress, if Sam can look that good on sex and the city
im sure you could pull it off style_emoticons/<#EMO_DIR#>/thumbs-up.gif

[ducky_23]

hi. i am 24 and have had symptoms since about 18. i about 1/3-1/2 of my total hair in the first year after diagnosis- strangely enough it started growing back (full and thick) after i started cytoxan treatments...

the thing is that when the body undergoes stress that causes your hair to stop falling out, the signals don't stop right away- it can take up to 3 months for your body to recover from that initial stress which caused it to fall out. so give it time, make sure you are taking care of yourself and eating enough protein.

i hope things start to look up for you soon!
ducky

[roxie_P]

<span style="color:#FF99FF"><span style="font-size:14pt;line-height:100%">hi peeps am hairdresser too and and my hair has stared to thin loads ont he sides the most but yer its all normall in lupus and the best bit is it does come back

just look after what you got style_emoticons/<#EMO_DIR#>/biggrin.gif </span></span>

[cutiegirl132005]

<div class='quotetop'>QUOTE(natfab15 @ Apr 22 2006, 06:24 AM) Quoted post</div><div class='quotemain'>
Hello, me again!

Just thought id come on to chat about my hair. It started falling out a while ago after i had a really really really bad flaire up and so far hasent stopped falling out. I was hoping it was only falling out because of the flare up and would stop but it hasent yet. Im starting to get abit of a bald patch near the centre of my head but its only tiny yet and i can comb my hair to a side parting so... I was really upset at first and felt quite depressed as im going back to uni in september and itl be hard being around my friends with no hair..... byt now ive figured my hair sucks anyway!!!. Its alwasy got notts in it and is hard to control as its so curly, so if it does flal out im sure a wig will be much more styish then my hair. Like samantha on sex in the city, when she loses her hair to cancer. If it dosent fall out then its ok, il still have my hair anyway. So what the ****.... If not worrying about it anymore style_emoticons/<#EMO_DIR#>/smile.gif

P.S im going to support the marathon on sunday, and all the people running for Lupus!!!

Go Lupus Runners!!!!! style_emoticons/<#EMO_DIR#>/woohoo.gif
[/b][/quote]
hey i'm 14 and i'm losign my hair too its not so bad

[Zeee]

I'm 21 and my hair started thinning when i was around 18, It's been getting worse and worse, then I got hair extentions and omg it made it so much worse. Now it's extremely thin and short and I was quite depressed about it for a while, I now have a wig but it still makes me so sad to think that it's not my own hair. It's horrible and I miss my own hair. It sux to know that i cant to to amusement parks and stuff because of the wig cuz it would fly off on rides, and it's uncomfortable because i feel like it's gonna come off.
It's hard but it's either that or nothing. I really hope my hair grows back though. That's probably been one of the hardest part of having lupus.

[LWL2002]

Hi There.I have that same problem and have had it for some time now.I have a big share of my hair.Dont have much left and I still lose it...............Laura (LWL2002)
style_emoticons/<#EMO_DIR#>/biggrin.gif

[ASmallReminder]

I have the same problem, I dread washing my hair because it just depresses me more to pull the hair out of the drain. But I find using certain mouses helps cover up the bald patches and I take alot of vitamin e and that seems to be slowing the process down a little.

But still. It blows.