WEIGHT GAIN

[shezzle]

Hi everyone,
I was dx 5 years ago i weighed 8 1/2 stone then I now weigh 12 stone which is horrible. Iknow this is down to my steroids has anyone managed to loose alot of weight if so, how?
i have tried diets exersise is hard because my joints hurt.help me please

best wishes sherylx

[lupy lulu]

Hello Sheryl,

I also gained alot of weight due to prednisalone and pregnancy... it dosent do much for your self esteem does it? style_emoticons/<#EMO_DIR#>/sad.gif
I had a real bad flare and had to come down stairs on my bum as my knees and ankles hurt so much and i knew that the weight certainly wasent helping matters.

I was always under the impression that you could not lose weight while taking steriods but i knew that i had to try and do something so i joined slimming world and lost nearly 6 stone withing 18 months.
I managed this while been on 10mg of pred and also the odd steriod injection.

I can honestly say that i can now cope with the joint pain much better as i found carrying all the extra weight almost as debilitating as the disease.

I hope that you find something that works for you too.

Love Lucy x

[peonyprincess]

First of all..........what is a stone style_emoticons/<#EMO_DIR#>/huh.gif , other than something you might throw at someone that reall, really annoys you??? style_emoticons/<#EMO_DIR#>/laugh.gif

I too have gained weight. I question if the weight gain is because of the amount of medication that I take or what. I mean are there calories and fat grams in our pills????? Okay, I know probably not. It is probably because I have the inability to totally exercise like I used to do. I am no longer able to sprint down the street after the ice cream truck. I am able, however, to park my lawn chair in the middle of the street and wait for him to show up.

Seriously....can I be serious style_emoticons/<#EMO_DIR#>/huh.gif .....good question. Ummm, anyway, I have been fighting the extra pounds and I know that it is my own doing from lack of exercise and then the boredom of not being able to do what I used to do which brings on snacking. Geesh!!!! I am trying to stop lifting times to my mouth and am trying to lift my buttocks up and off the sofa and do a little more and hopefully by this time next year I will be able to see my toes. Okay, slight exaggeration there..........I can see my toes, but I would like to be able to see my knees again!!!!


Nancy

[iris.phillips1]

hello i soooooooooooooooooooooo know how you feel ive but on nearly 4 stones since i was dx with lupus 2 years ago i also carnt shift it cause i carnt exercise cause my mobility is poor and no atter what i eat i still put weight on.
your get there hun love genette xxx style_emoticons/<#EMO_DIR#>/flowers.gif style_emoticons/<#EMO_DIR#>/highfive.gif style_emoticons/<#EMO_DIR#>/wiggle.gif

[sweetpea_uk]

HI SHEZZLE,

I AM AWRAE OF HOW ANNOYING THE WEIGHT GAIN CAN BE...I FEEL TOTALLY THE SAME. WITHN THE LAST 2YRS I HAVE GONE FROM WEARING SIZE 18 TO SIZE 10!!!! NOW AM FLITERING BETWEEN 12-14. I TEND TO LOSE A LOT OF WEIGHT WHEN I HAVE A SERVERE FLARE-UP. ONCE I AM OVER IT MY EATING HABITS ARE TERRIBLE. SO I AM PARTIALLY TO BLAME. BUT WITH LUPUS U JUST CAN'T WIN. DUE TO THE NATURE OF THE ILLNESS, IT CAN BE SO HARD TO EXERCISE OR EVEN FIND THE MOTIVATION WHEN YOU ARE EXPERIENCING EXTREME FATIGUE. WHEN I CAME OUT OF HOSPITAL ONE TIME I COULDN'T GET THROUGH THE DAY WITHOUT HAVING A SIESTA. ALL THESE THINGS GET IN THE WAY OF TRYING TO LIVE AN HEALTHY LIFESTYLE.

I HAVE TRIED SLIMMING WORLD IN THE PAST, BUT FOUND IT TOO UPSETTING. I DID MANAGE TO LOSE 13 lbs BUT EVITABLY IT ALL WENT BACK ON AND MORE. MY WARBDROBE IS A NIGHTMARE THAT EVEN IF I PLAN TO GO OUT AND A I FEEL BLOATED AND FRUMPY I WILL NOT GO OUT. I FEEL THAT PEOLE ARE WATCHING ME. I SUPPOSE ITS ALL IN MY MIND BUT I THINK THE BEST THING TO DO IS TRY AND AVOID ALL THOSE DAMAGING FOODS AND ASK YOURSELF WHEN U FEEL TEMPTED, WHAT COULD BE AN ALTERNATIVE OPTION TO THIS? IS THERE AN HEALTHIER OPTION THAT WILL QUENCH MY APPEITIE???

GOOD LUCK
CHARMBRACLET

[kaesara]

Hello,
Wow this topic really hits home with me. I have never been a tiny person. I overate in my twenties and thirties and I was obese and had a weight loss operation known as a vertical banded gastroplasty , in other words the original stomach stapling procedure. I was estatic to lose 110 pounds in less than six months time.
The happiness was short lived when in 1988, not even a full yr after surgery I had two pills obstruct the small pouch that was now my stomach, leaving me seriously ill in the Hospital.Because there was an obstruction the surgery would never be effective for wt loss as the pouch was stretched terribly. Over the years I had digestive problems and would be in and out of the Hospital with them. The Doc would do this procedure called a EGD in which they pass a scope into the stomach to take a look around. Interestingly he didnt bother to tell me that during the procedure that a suture needle the curved ones had been dropped and had actually scarred itself into my stomach lining.

I was Diagnosed with Lupus in 1995 and later with gastroparesis and motility disorder of the colon. This lead to me seeing several Gastroenterologist and more of the EGD procedures. It was in 2004 that the Pictures slipped into my hands in some medical records and I learned this needle was in my stomach and not one Doctor had bothered to share that information with me. I wanted to have the Surgery repaired, have the eroded band that reinforced the pouch removed, have the suture needle removed, and the surgery repaired to produce wt loss. I have seen numerous Docs and none of them are willing to do the surgery .

I do not overeat now. I am on Prednisone, started on 80 mg this course back in January and I am now down to 20 mg of Pred per day now. I have found that the way I feel Physically I am not mobile. My energy levels are so low and I think the thing becomes a viscous cycle. I feel so bad so I move less, I move less and I gain weight, I gain weight and I can not move as well as I once did.... the the Cycle continues.

There have been many times I have cried talking to my Doctors about my weight issues. My Thyroid is underactive, I have a low metabolic rate, I dont have good mobility. When I was first diagnosed with SLE and right before I would lose weight ... and I remember once losing 19 pounds in a little over two weeks. MY Doc at the time was very concerned.

The problem now is that I am not only OBESE. I continue to gain weight on the steroids. I am so upset about this and I want to be able to get off of them. My current Doc says that I cant lose weight on the steroids. I cant get off the Steroids right now. My Doc started me on Imuran and if that works well for me then he will taper me off the Prednisone.

I am truly fearful as I see my weight as a Morbidity issue in itself. I dont want to go out. I have a very full round face from the Steroids.

This is something that eats at me everyday of my life. The truth is that I dont overeat 95 percent of the time. I actually order child portions when we have take out food.

I pray I am able to get off the Pred soon so that I can pursue weight loss more aggressively.

I feel for everyone dealing with the same issue. style_emoticons/<#EMO_DIR#>/hugbetter.gif

Sincerely,
Kaesara

[Deborah Rumbles]

Me too, The weight gain has been really bad started putting in weight 9 years ago at same time as dx I was 14 stone then, Now I am 18 stone due to steriods and un able to excercise and having really bad mobility.I am only 5 feet high so this weight is terrible for me. style_emoticons/<#EMO_DIR#>/crying.gif

[pauline1946]

may all the good forces be with you.
i went up to 315 lbs on steriods, and did'nt lose any of it
untill i was taken off them.
it's horrible ut seems to be part of fighting lupus.


huh they say one of the symptoms is lose of weight.

not one of mine

good luck, and much sucess in loosing the weight.

[Debbie28]

I also feel the same as alot of you going from a size 12/14 now to a size 18, this is probably one of the worst things I personally find hard to cope with, not being active and slimmer
I dream of being slimmer again..!!! it is a viscious circle, could do with doing alot more exercise, but my joints and feet wont allow it !! I have also given up smoking which has added to the problem, reaching for a biscuit instead of a cigarette !!
But I will keep trying and not going to give in !!


Good Luck

debbie style_emoticons/<#EMO_DIR#>/biggrin.gif

[lizzie1]

I've had a long record of weight gain/weight loss, and all the 'diets' that I've done worked for as long as you keep going to the meetings......an expensive business in itself.
I've started reading and following a book about the GI Diet.....and since March 13th have lost 19lbs, with no strenuous exercise other than strolling to school with my son, as I also find high impact exercise too painful on the joints.
I really would recommend this way of eating, I don't feel hungry so long as I follow it properly. And no weekly fees to pay to any slimming clubs either!!
If I can do it after a ten year battle with bulimia...(fully recovered thankfully)....then anyone can.

Good luck, I hope this helps!