Tracker
06-08-2006, 12:50 PM
Hi. I've been sufferring for several years with multiple symptoms. I was tested nine years ago for lupus and it was negative and that was that. Now a bad auto accident has dregded up a multitude of symptums. It has been two years and I suffer every second struggling to keep focus and the pain is on some days unbearable. I have recently been retested since the neurologist said that ms and lupus are very similar. I spent three days in the hospitol with partial paralysis on my left side. unfortunetly they cannot see what is causing the symptoms only what it is doing to my body..
I have been very confused and have been told it is a rare but severe type of migraine. The doc put me on blood thinners and a heart regulator and within weeks I brook out in the worst itchy rash of my life an then my joints got hard and almost to painful to move. I now have been on steroids for several weeks and now they test me for lupus. I don't care anymore what the diagnosis is .. Just give me one that they can treat. Frustrated is the best word to describe me..
I find out hopefully this week but as I feel like a medical anomally I do not hold a positive outlook on what they will find.
I know that I DON'T KNOW ANY OF YOU, But I found so much comfort the first moment that I looked at some of the discussions. I have done some research but have felt that everyone around me in my daily life looks at me like I am an alien. My joints swell and become so painful in just minutes that I feel redicullus. Ever since the last episode that landed me in the hospitol I feel drugged. The only thing working was the blood thinners and regulators and now I can't take those. I have had to put in my notice at my job which has sent me spirralling into a crazy depression, I just don't feel I am doing the job I should be. I am exhausted after just a few hours and my memmory is gone of all the important things I should know readily. I feel strongly that you all can relate to me in some way. I fear that if the blood work is negative that all the thousands of dollars have been for nothing.. I wish I could produce tears becuase I would cry.
I just lost my insurance do to my husband having to take a different job to help with the bills. He cannot stand the pain I am in and the fear that I am dying. I have fainted actually fainted while driving and then lay in my bed at home just feeling like the life was leaving me.. These past 2 years have been ****. Please tell me their is hope.
So far I have gathered that I should consult with a arthritic doctor. I see an orthepedic again on the 16th for an evaluation for further treatment, I hope he refers me. I also found that there is a lupus center in Washington.. Does anyone know if going their may help clear up the confusion? My brain has lesions and I have sufferred a minor stroke the problem is they cannot find the cause and I am onlly 33. I am scared, scared that I will not live to see my daughter graduate or my son master his skateboard. I used to be active and ride bikes, rock climb and the like and for years now the dizziness I suffer and the fear of hitting my head has kept my from doing those things. Now I am horribly anorexic looking and the shakes on top of it make me look as if I am addicted to crack. I am embarrassed to leave my house.
I could go on with all symptoms for pages. Just a couple more questions: Does lupus ever get better? Will I ever be able to do the things I used to? Can I just have my life back with medication..All advice wil be more than appreciated. I am desperate..
Thank you for your time
I have been very confused and have been told it is a rare but severe type of migraine. The doc put me on blood thinners and a heart regulator and within weeks I brook out in the worst itchy rash of my life an then my joints got hard and almost to painful to move. I now have been on steroids for several weeks and now they test me for lupus. I don't care anymore what the diagnosis is .. Just give me one that they can treat. Frustrated is the best word to describe me..
I find out hopefully this week but as I feel like a medical anomally I do not hold a positive outlook on what they will find.
I know that I DON'T KNOW ANY OF YOU, But I found so much comfort the first moment that I looked at some of the discussions. I have done some research but have felt that everyone around me in my daily life looks at me like I am an alien. My joints swell and become so painful in just minutes that I feel redicullus. Ever since the last episode that landed me in the hospitol I feel drugged. The only thing working was the blood thinners and regulators and now I can't take those. I have had to put in my notice at my job which has sent me spirralling into a crazy depression, I just don't feel I am doing the job I should be. I am exhausted after just a few hours and my memmory is gone of all the important things I should know readily. I feel strongly that you all can relate to me in some way. I fear that if the blood work is negative that all the thousands of dollars have been for nothing.. I wish I could produce tears becuase I would cry.
I just lost my insurance do to my husband having to take a different job to help with the bills. He cannot stand the pain I am in and the fear that I am dying. I have fainted actually fainted while driving and then lay in my bed at home just feeling like the life was leaving me.. These past 2 years have been ****. Please tell me their is hope.
So far I have gathered that I should consult with a arthritic doctor. I see an orthepedic again on the 16th for an evaluation for further treatment, I hope he refers me. I also found that there is a lupus center in Washington.. Does anyone know if going their may help clear up the confusion? My brain has lesions and I have sufferred a minor stroke the problem is they cannot find the cause and I am onlly 33. I am scared, scared that I will not live to see my daughter graduate or my son master his skateboard. I used to be active and ride bikes, rock climb and the like and for years now the dizziness I suffer and the fear of hitting my head has kept my from doing those things. Now I am horribly anorexic looking and the shakes on top of it make me look as if I am addicted to crack. I am embarrassed to leave my house.
I could go on with all symptoms for pages. Just a couple more questions: Does lupus ever get better? Will I ever be able to do the things I used to? Can I just have my life back with medication..All advice wil be more than appreciated. I am desperate..
Thank you for your time