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LilliesPad
06-09-2006, 07:49 AM
Hi Everyone,
I havent posted for a while now. I been through a bit of **** lately. Was hospitalized last week for severe stomach pain. My bloodpressure was also out of wack, was dehydrated and couldnt stop vomiting. style_emoticons/<#EMO_DIR#>/sick.gif
Ended up staying there for 4 days, 2 of which were spent with a tube down my nose into my stomach to pump out all the contents - couldnt have anything by mouth-not even water. Then the last 2 days were clear liquids and jello. After all the bloodwork, ct scan, exrays,etc. they said I have thickening at one end of the small intestine, dialating and inflammation of the intestine and an "obstruction" in the bowel. Not a blockage that they could see so no surgery (thank God) but the barium wouldnt move through and pooled in some spots. They sent me home with lots of laxatives, stool softeners and a strict high fiber diet.They were thinking maybe Chrones disease but I had a colonoscopy 2 days later and the gastro doc said he didnt think it was but he did a biopsy which the results arent back yet for so we'll see. But he did say the 3 bleeding ulcers have mostly healed and said the pain isnt from that. Anyway, I wasnt home even a week when the pain got so bad again I went to the urgent care department of the clinic where my GP practices. Luckily he was on call that night - he took more xrays and blood work and gave me a pain shot and sent me home. He wanted to hospitalize me again but I said no. I just am getting so frustrated and depressed lately. I still dont have a firm dx from my rheumy on the SLE - even though he and my GP both call it that when they do their patient notes at my visits. I guess my bloodwork isnt confirming it yet?? But now with all this stomach stuff going on possibly Crohns or maybe some other disease I will have to cope with too. My rheumy says stomach problems are common with Lupus but usually not the severe stomach pain - anyone have any experience with any of this? BTW my rheumy said at my last visit that I'm probably developing Sjogrens now too. He doesnt want to run the tests for it though until I'm past all the stomach probs.Sorry for ranting, and for the long post but I just feel so sick of it all. style_emoticons/<#EMO_DIR#>/tantrum.gif

whizzy35
06-09-2006, 11:27 AM
<span style="font-family:Comic Sans Ms"><span style="font-size:18pt;line-height:100%"><span style="color:#cc33cc size5"> style_emoticons/<#EMO_DIR#>/foryou.gif <span style="font-family:Comic Sans Ms"><span style="font-size:18pt;line-height:100%"><span style="color:#cc33cc size5"></span></span></span>Hi Lillie</span></span></span>

<span style="font-family:Comic Sans Ms">Sending you lots of love hugs and magic fairy dust to try and make you feel better. I'm sorry to hear you are having a hard time of late and I hope your tests help the doctors to do something which will help you.</span>

style_emoticons/<#EMO_DIR#>/hugbetter.gif As they say a problem shared is a problem halved. Perhaps not halved I suppose but at least here we have a place to where we can say how things really are without being judged.



Best of luck and try and keep you chin up.



Love and hugs

Whizzy

XOXoxoxox

sue90x
06-09-2006, 12:04 PM
Hi Lillie style_emoticons/<#EMO_DIR#>/hugbetter.gif
you've had/having a truly terrible time, I hope things start getting better for you soon
as soon as you feel better things won't seem so stacked against you. the whole disease is terrible its frightening when docs often don't seem to know what to do or how to talk to us patients, you're in my thoughts and prayers baby, hope you get some definate answers soon
((((take extra care))))
Suex style_emoticons/<#EMO_DIR#>/hugbetter.gif

lin
06-09-2006, 08:09 PM
so sorry you have been having a bad time of it lillie
((((((((((((((((((hugs)))))))))))))))))) Lin xxxx

LWL2002
06-09-2006, 08:21 PM
style_emoticons/<#EMO_DIR#>/foryou.gif Hi Lillie! Sorry to hear you are having a bad time.....Hang in there girl....Go for it ,......Cry all you want.....Its good for the sould..Take care....Laura (LWL2002) style_emoticons/<#EMO_DIR#>/flowers.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif

Lily
06-10-2006, 02:14 AM
<span style="font-family:Century Gothic"><span style="font-size:18pt;line-height:100%"><span style="color:#CC66CC">(((((((((((((((Lillie)))))))))))</span></span></span>

style_emoticons/<#EMO_DIR#>/sad.gif so sorry to hear you have been that unwell - sending gentle cyber hugs style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif and a wish that you start feeling better soon. Good luck with finding out exactly whats going on and wisdom to your docs in treating it.

love
Lily

LilliesPad
06-10-2006, 06:26 AM
Thanks so much to all of you for the replies of well wishes. Just hearing from you all makes me feel better. style_emoticons/<#EMO_DIR#>/Thanx.gif