new to chat room

[joyce21]

hi i am new to the chat room i have been living with lupus for 3 yrs now i have the lupus
that effects my organs /// my kiddney and my heart. it was really hard for me to talk about
it to someone who dnt have lupus it seems like they dnt understand .today is a bad day for me
not feeling myself but i keep it to myslef.. now i wont to talk about it. so hi my name is joyce
and i have lupus

[Pollyanna]

style_emoticons/<#EMO_DIR#>/flowers.gif Hi Joyce and welcome to the boards. I'm so glad you found us. This is a wonderful place for support and information. I suggest you read as much as you can on this site to help you understand the lupus. You'll be less worried when you understand.

style_emoticons/<#EMO_DIR#>/hugbetter.gif I'm sorry to hear that you aren't feeling well. We all have those days and it's never easy. At least here everyone understands. What meds are you on and what symptoms are particulary bothersome? I'm sure more people will pipe in to welcome you soon.

If you get a chance, come join us in the chatroom sometime. You can "talk" in real time there and the people are so nice.

Take care, feel better and keep posting! style_emoticons/<#EMO_DIR#>/wub.gif Pollyanna

[jkushmaul590]

Hi Joyce,

I'm Jamie welcome! I know exactly how you feel; I was diagnosed with lupus (sle) & fybromyalgia in September of 2002. No one in my family has it and I only have one person related to me who has anything similar (she has ra and was recently diagnosed with fybro, but she is my cousing and I haven't been in touch with her in five years). My husband and parents were supprotive, but they really couldn't relate. I had no healthe insurance and no way to afford meds or a doctor, i basically lived off of aleve and tylenol until about a month ago now I'm on a myriad of different meds. As i was perusing the internet I came upon this site last October in 2005. For three years I suffered alone with no one who could relate and then by God's grace I stumbled on to this lot ((((((hugs to all))))) & opening up, talking, venting, is a wonderful form of medicine. Just knowing you're not alone is great! Welcome, vent compain, get it all out, it feels good. Don't feel guilty ever, we all need help once in a while, some of us more often then others (I complain a lot, I'm a real whiner when I want to be). Sorry, to hear about your pain and problems, but always remember you're not alone Joyce.

Jamie style_emoticons/<#EMO_DIR#>/hide.gif

[iris.phillips1]

style_emoticons/<#EMO_DIR#>/wavey.gif hi there joyce,
its a pleasure to meet you style_emoticons/<#EMO_DIR#>/highfive.gif
my name is genette im 23 from warwick uk i have sle my lupus has effected my mobilityand i have other problems.
its good that you have come to this forum cause we are all nice and we are all here for eachother to talk to at anytime. style_emoticons/<#EMO_DIR#>/goodvibes.gif
you are always welome to talk to any of us anytime style_emoticons/<#EMO_DIR#>/hugbetter.gif i know it is hard to talk to peope that dont have lupus and yes most of them dont understand.
you have new friends now so please dont be on your own talk to us. we have a good live chat room to.
hope to hear of you real soon you take care
love genette style_emoticons/<#EMO_DIR#>/foryou.gif style_emoticons/<#EMO_DIR#>/foryou.gif

[bugsy]

<span style="color:#CC33CC"><span style="font-size:11pt;line-height:100%">Hiya Joyce style_emoticons/<#EMO_DIR#>/wavey.gif

WELCOME to this site, there are plenty of people here who would love to chat with you and yes we do understand how you feel. Sorry to hear that it as effected your kidneys and heart - that sucks.

Have you tried chat - its a great place to meet new friends - friends that truely understand where you are coming from and offer great support and advise

Good luck style_emoticons/<#EMO_DIR#>/clover.gif style_emoticons/<#EMO_DIR#>/clover.gif style_emoticons/<#EMO_DIR#>/clover.gif style_emoticons/<#EMO_DIR#>/clover.gif and hope to catch up with you soon in chat.

Take care XxX Jo XxX
</span></span>

[abcqueen]

hi everyone my name is Renee. I am new to this . not sure how I am feeling about all this. : style_emoticons/<#EMO_DIR#>/aww.gif style_emoticons/<#EMO_DIR#>/aww.gif

[Joandublin]

Hi Joyce style_emoticons/<#EMO_DIR#>/flowers.gif

Welcome to the site. I am sorry that Lupus has affected your organs and that you are feeling poorly today style_emoticons/<#EMO_DIR#>/aww.gif

This is certainly a place where you will be understood about Lupus. It is a great community here with wonderful, supportive members.

Tell us a little but more about yourself or ask any questions and someone will always be along to answer...

Luv n stuff
Joan style_emoticons/<#EMO_DIR#>/flowers.gif


Hi Renee also! style_emoticons/<#EMO_DIR#>/flowers.gif

You might like to start a 'thread' of your own in Introduce Yourself? Just click into that Forum and Select the button NEW TOPIC at the top right and then introduce yourself.

This is a great site. Everyone here was new to Lupus and new to this site once so we can all understand where you are with this right now. style_emoticons/<#EMO_DIR#>/hugbetter.gif

Looking forward to getting to know you better

Luv n stuff
Joan style_emoticons/<#EMO_DIR#>/flowers.gif

[joyce21]

<div class='quotetop'>QUOTE(abcqueen @ Jun 14 2006, 04:45 PM) Quoted post</div><div class='quotemain'>
hi everyone my name is Renee. I am new to this . not sure how I am feeling about all this. : style_emoticons/<#EMO_DIR#>/aww.gif style_emoticons/<#EMO_DIR#>/aww.gif
[/b][/quote]



Hi rene my name is joyce : it is ok i am new to all this to. you will be fine i am going to be
fine. you have to be strong and i know that is very hard to do. i use to cry everyday why me
and i feel it was me do to i have a big mouth and i can tell the world about lupus. a lot of my
friends did not know what lupus was til i got sick. they understand a little. now they dnt say joyce
you r so lazy now they know why i can get out the bed some days or even leave the house. rene i am
here for as long as you wont me to. it is good to talk about it. you will feel better i know. be strong we will
chat later have a good day and a better one tomrrow.