concerned

[jane1]

style_emoticons/<#EMO_DIR#>/blink.gif Hi...hope your all well...

I need some advice...i have been dx with lupus....anyway..i have only been on plaquinal for two months...but ..dare i say that my "exhausted feeling" has really subsided...will this continue?...can i go back to work...will it all come back..i feel quite human at the moment...after the past year...what do i do???...i still have some joint pain..but livable..

looking forward to your reply....jane style_emoticons/<#EMO_DIR#>/foryou.gif style_emoticons/<#EMO_DIR#>/Thanx.gif

[Clare.T]

Hi jane

It is wonderful news that you are already feeling much better - I am really pleased for you !

Who can say what the future holds ? Enjoy your present well being to the full but make sure you don't overdo anything at all. Leading a balanced prioritised life with rest, sleep, sun avoidance, a well considered diet a reasonable amount of exercise, cultivating a leisure interest and stress reduction will stand you in very good stead and make flares less likely.

Self management is as important as medicinal therapy.

Use this break to cultivate this essential aspect of living with lupus. Start taking on a commitment or two and maybe a few hours a week voluntary work, to see how you cope, and to get a good idea of your real energy levels and stress endurance. Then if it's too much, not much harm is done.

Whether you can start paid work again depends on what work you did as much as anything else, but also whether you really need to , for financial reasons. Give it a few more months to make sure the disease is controlled, and stable.

I feel a cautious guarded approach is best. Walk, jump, run, fly, in that order.

All the best

Clare

[iris.phillips1]

style_emoticons/<#EMO_DIR#>/wavey.gif hi there jane,
my name is genette im 23 from warwick uk please to meet you style_emoticons/<#EMO_DIR#>/highfive.gif
i have sle and my lupus has effected my mobility, im so happy for you that you are feeling better but please because you feel better please dont push yourself cause you dont want to go backwards.
and as for work you dont know what the future holds so good luck style_emoticons/<#EMO_DIR#>/clover.gif i hope things turn out for you and its sounds like your husband is a star style_emoticons/<#EMO_DIR#>/rotfl.gif
hope to speak soon you take care
love genette style_emoticons/<#EMO_DIR#>/foryou.gif style_emoticons/<#EMO_DIR#>/goodvibes.gif style_emoticons/<#EMO_DIR#>/tongue.gif

[jane1]

style_emoticons/<#EMO_DIR#>/bigsmile.gif Hi there many thanx for your advice clare T and gennet style_emoticons/<#EMO_DIR#>/Thanx.gif

I do have a fantastic hubby..he thinks i should give it a go and see what happens...i just want to get back to being normal....but will i ever be..i dont have organ involvment..as yet. i do have probs walking sometimes and think i should use a electric chair when in tescos style_emoticons/<#EMO_DIR#>/goodvibes.gif I know we are luck enough to be able to survive on hubbys wages..and his firm is brill style_emoticons/<#EMO_DIR#>/ok.gif

I suppose i think im ok cos in not to tired...not a good reason is it really?...i have just forgotten how it felt to be tired free. style_emoticons/<#EMO_DIR#>/shrug.gif

I am concerned that i will go back down quickly if i go back to work..still in denial i suppose.. style_emoticons/<#EMO_DIR#>/wink.gif also..still stubborn..and i dont like to rely on anyone..

many thanx jane

style_emoticons/<#EMO_DIR#>/foryou.gif