Frustrated

[redsox21]

I'm so frustrated with everything right now. My lupus just seems to be getting worse and on top of things had a bad fall at work last week. Badly bruised my back and reinjured the ligaments from the car accident I was in. My lupus was triggered from the car accident I was in back in Nov. I was hit head on by a drunk teenager going 95mph. Mircale that I survived. Think I had a guardian angel on my side. The hearing was finally held yesterday and I was able to testify but the kid basically got a slap on the wrist....only probation after causing two accidents, leaving the scene of two accidents, and two OUI. They said he has to pay me restitution but it probably won't be much. Because of him...I got lupus and he gets to go on living his life as if nothing happened. I'm just so angry and frustrated at the whole situation. My family doesn't understand or get what I'm going through. Because I've been in so much pain I've missed work and between doctor's visits and prescriptions I've spent over $200 in the past month. I'm going into debt because I can't afford my bills and copays. I've missed work too which hasn't helped. I think work is getting p***** at me because I've had to change my shift. I've been working the night shift but physcially can't do it anymore. My supervisor changed my shift last month but this month it was back to my original schedule. I tried talking to her about it today and got the feeling it might be an issue to change it in the future. I have a note from the doctor but the senior staff at work don't really understand what lupus is or how differently it affects people. Its so hard to explain lupus to people who don't have it. I feel like they think I'm crazy or lying about how I'm feeling. I feel like they think I'm using my lupus as an excuse to get out of work or get my shedule changed. I feel so alone right now. One of my biggest supports is my best friend Everlynne but she is in Kuwait right now. We were suppose to move in together before she got her orders to go over. Anyways sorry to vent...just had to get it off my chest. All these feelings were just building up inside. Had a little breakdown in the bathroom this morning. lol I just wish my life was back to normal. All this because a kid had to decide to drive drunk.

[T. A. Bossmeier]

Bless your heart Redsox21. Sorry you are having such a hard time of it. Life is just not fair is it?


I know what you mean about people at work thinking you are faking to get time off, maybe you ought to think about putting in for disability. It is a long and arduous undertaking but it can be done. Also you might want to look into the laws pertaining to handicapped persons and work. I think they probably have to by law make some considerations for you if your doctor says you can't do certain things.

I certainly hope that your meds will kick in and you will get to feeling better soon and then maybe life will now feel so hard for you.

You will find a lot of information right here on this site and you will find a lot of kind and caring people who will be glad to do what they can to help support you.

Welcome to the message boards, hope to see you in chat.

Wishing you better health, TAB

[Joandublin]

Hi Phebe

Everyone here understands the need to vent now and again. You have every reason to feel angry. Sometimes things just dont seem at all fair.

Have you an appointment coming up soon with your rheumy to talk about your Lupus? If things are getting worse it might be an idea to contact him/her?

I know it is easy to say 'don't stress', especially in your circumstances. However I am a great believer in Karma and what goes around comes around. Try and let some of the anger go. It honestly wont help at all and will probably only leave you feeling physically worse. I often find if I am really hacked off with someone or some thing, I go to my bedroom and put on some soothing chill-out music for 10-15 minutes. It really does take the edge off the stress and anger for me.

Anyway just wanted to stop by and offer my sympathy and support.

Luv n stuff
Joan

[helloos]

I vented the other day so no need to feel about it. The best thing sometimes is to let it out. I think that we all feel like people don't believe us one time or another. What you need to remember is, you know that it is real what you are going through, these people are not worth it if they tend not to understand or think you are lying, whether at the work place or not. Can your doctor be more specific with them maybe that will help if he adds some type of explanation and that your hours need to be changed to do your medical condition.

I know what you mean that they won't understand. I would feel that way too, but it is worth a try.

Hang in there and keep posting.