Roberta12
06-16-2006, 06:27 AM
Hello everyone,
Several of you have heard from me before . . . but here's the deal. . . my symptoms are still so frustrating! I have been diagnosed with UCTD but there seems to be so much more going on. I just saw my GP last week and she has referred me to a rheumatologist here in town (there are only two and you have to have a referral and even then it's a maybe as to whether they will accept you or not). At first, she said there was no way the rheumy would see me because my ana was only 1:160 (speckled) but when I told her my last one was 1:320 (speckled pattern) she said "that would make a difference!!!????" I did like so many have suggested here and wrote down my history for the past twenty years, family history and present symptoms too).
I have hives again (anyone else????) had them about seven years ago when I went through some things similar as all of this. I have a mitral valve prolapse (did show small amt fluid around my heart/7 yrs. ago)
my kidneys: (last two years) have had an elevated serum creatinine x's 1 and U/A's with several elevated BUN's and Creatinine and positive for Ketones. I get elongated white lesions in my mouth frequently which will ulcerate (have done this for years). The Brain fog - big time. Edema in feet and legs at times and I guess I could go on . . . but that's the major stuff.
By history diagnosed/had: GERD, gallbladder removal, IBS, Rosacea, Ebstein Barr/CFS, Cervical Cancer, WNV . . . . OKAY, anyway, the question is . . . . IS THIS JUST ME ??? . . . . I read the note from the rheumy (I've only seen twice) and his second set of notes basically said if my spinal tap came out okay (because my MRI and EEG were okay) that this would be a "strike" for a connective tissue disease???? Has anyone else had symptoms like this and an okay MRI and EEG?? . . . . . . I will probably get the tap when I see the rheumy here in town but if that's okay . . . I'm not sure what to do next . . . ANY advice would be greatly appreciated!! style_emoticons/<#EMO_DIR#>/crying.gif
style_emoticons/<#EMO_DIR#>/Thanx.gif Roberta
Several of you have heard from me before . . . but here's the deal. . . my symptoms are still so frustrating! I have been diagnosed with UCTD but there seems to be so much more going on. I just saw my GP last week and she has referred me to a rheumatologist here in town (there are only two and you have to have a referral and even then it's a maybe as to whether they will accept you or not). At first, she said there was no way the rheumy would see me because my ana was only 1:160 (speckled) but when I told her my last one was 1:320 (speckled pattern) she said "that would make a difference!!!????" I did like so many have suggested here and wrote down my history for the past twenty years, family history and present symptoms too).
I have hives again (anyone else????) had them about seven years ago when I went through some things similar as all of this. I have a mitral valve prolapse (did show small amt fluid around my heart/7 yrs. ago)
my kidneys: (last two years) have had an elevated serum creatinine x's 1 and U/A's with several elevated BUN's and Creatinine and positive for Ketones. I get elongated white lesions in my mouth frequently which will ulcerate (have done this for years). The Brain fog - big time. Edema in feet and legs at times and I guess I could go on . . . but that's the major stuff.
By history diagnosed/had: GERD, gallbladder removal, IBS, Rosacea, Ebstein Barr/CFS, Cervical Cancer, WNV . . . . OKAY, anyway, the question is . . . . IS THIS JUST ME ??? . . . . I read the note from the rheumy (I've only seen twice) and his second set of notes basically said if my spinal tap came out okay (because my MRI and EEG were okay) that this would be a "strike" for a connective tissue disease???? Has anyone else had symptoms like this and an okay MRI and EEG?? . . . . . . I will probably get the tap when I see the rheumy here in town but if that's okay . . . I'm not sure what to do next . . . ANY advice would be greatly appreciated!! style_emoticons/<#EMO_DIR#>/crying.gif
style_emoticons/<#EMO_DIR#>/Thanx.gif Roberta