btw did you know

[Raglet]

you have to have nice forms of lupus to post on this site and if you dont then you might as well go with the boiled cabbage

that sucks big time and iam very very sad now

raglet

[Clare.T]

Dear ((((((((((((( Raglet )))))))))))))))))

Yes most everything is pretty awful, dearest dearie, refraining from using all the B S& F words - but we try to look after our members including yourself, though you can't see it that way right now.

'Feel better soon' is quite inadequate

I sent you a PM

Love from Clare - and all your friends here except that many are tucked up in bed.

Later - we have spoken and here's the deal -when Intergalactic Star Ship Prednisone docks back on Earth you can decide if you want your original post put back on the forum.

Just let me know

Raglet I hope you are getting some rest now.

Clare

[Raglet]

spometimes when brains dont work then epoeple are still treying to say something even those it ssdoesnt make a lot of sense if that makes sense and everyone else thinks they know best but what is the harm in a little diference

when reali8ty gets sqewed people mostlovinglu thingk that they know best but even the most loving actcanmake others efeel invisibie even if that is not intentable. or whatever that word was meaning to be. ineeed to talk and connect even more that ever when i dont make a lot of sense coz behidn that is a terrified person. i ddnont care and never ever have if people think i am strange neurospychiatric is stragne lupupupus stucks big time i gradgually get better (stuffed full of steriods now so recovering but trying not to think about dinosaurs) i wonder why people need to be protected from me trying to talk when brain not working i feel sad have to admit if i have to hide my illness and am not going

doesth is mean i am like pus when i am sick and must be hidden coz i am not gib on hiding.

love you lots
raglet

no forget the pus i no that is not right it is very scarey not to be abcle to reacht he woerld and talk rporproperly s*#t i cam can talk when i try ubut the trying is hard

behind the lunatic is me shrieking for connecting and a hand to hold i am alwazys there butr people onlysee the crazy byt i acan onlytalk trhough the crazy person sometimes going in for cytoxan tomorrow but my daughter is aoone in crazy land sorry sometimes i just write whatever aother people say areound me coz i dont know who thinks what especially with dinosaurs.

ok i try and be sensible but i get reallytired doing that coz i have such a tiny part of my brain to hang on to right now and try and be me is a trreally big tojob

[sam101360]

Raglet:

I am here holding out my hands and open arms to you in cyber space. I don't care what you say, I love you for who you are, illness and all. You don't have to pretend be who you are not, be what you feel no matter if it is strong or scared and we will be here for you always.

I'm sending you cyber (((hugs))) and the warmest of thoughts to wrap your soul in love and support.

I wish I could be there to hug you in person, I LOVE YOU!

Stephanie

[frono]

Raglet,


I do hope you are feeling better soon. I'm sending a million ((((((((((((HUGS))))))))))) your way. I wish I could take this all away for you.


Love and Hugs,

Tiercy

[flutterbye]

((((Raglet)))) I think I understand, but don't have the words to say moe than to offer hugs (((Raglet)))

[Clare.T]

Very Dear Raglet

Thank you for this post letting us know what struggles you are going through.

<div class='quotetop'>QUOTE</div><div class='quotemain'>neurospychiatric is stragne lupupupus stucks big time i gradgually get better (stuffed full of steriods now so recovering but trying not to think about dinosaurs) i wonder why people need to be protected from me trying to talk when brain not working i feel sad have to admit if i have to hide my illness and am not going [/b][/quote]

I stretch out my hand to you and hope that all who read this will do the same.

You make a very good point and I will honour you by leaving it up. This post explains so much and is such heart breaking evidence of the tereible suffering this disease can bring.

It isn't always easy to know what's best to do as a moderator. I am sorry - the last thing on earth I would wish is to add to your suffering.

So ,here are my two hands to hold, two arms for embracing and a loving heart that goes out to you.

I wish I could stop crying.

Much love
Clare

[Joandublin]

Raglet style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif

Intergalactic Star Ship Prednisone or not.......your presence on these boards is always more than welcome......

You are very loved Raglet......because you are so easy to love.

This has been a terrible time for you. Let the people around you take care of you for now. Nobody expects you to be sensible all the time. Sometimes our brains dont work so well....that doesnt change the person we are inside.

You are in my thoughts
With much love
Joan style_emoticons/<#EMO_DIR#>/flowers.gif

[Raglet]

clare i love you modulating or not. Don't cry - imnot

raglet
xxx

[helloos]

Rags...

I can only say to you that since I have been on the boards that you have been very helpful despite what you are going through. Although I have not met you in person, I can tell that you are a VERY STRONG individual who keeps strutting along no matter what. You live your life to its best. You know how hard that is to do? Eveyrone says live your life like its your last. I still can't do it. I can only say that the one thing I think of with you and from reading all of your posts in the past, is that you do truly live your life to its fullest. You are always doing things for the kids, friends, being daring too ! Remember you said somewhere along the time that you daughter and friends voted you the best mom? Well, there you go. There are not many people in this world that can have the diffulties you have and yet have such a strong personality and still keep going and enjoying what you can. In my mind that is a person to admire. You are educated, kind, caring, loving, a great mom, friend and even when you can't hold your head up you are on here answering posts and giving advice. I was a little lost reading this post and I am not sure what you said or what you didn't say but I do know that it does not matter to me. If you have to vent, VENT. If you have difficulty saying something, oh well, try to anyway. That is who you are. Someone to be heard. You have always made yourself heard and don't stop now. Keep your chin up. We love you here and I personally admire you. So, you can say I have a friend from Massachusetts. If ever you need to talk or whatever you need, send me a message.

http://i21.photobucket.com/albums/b299/babiibonita142/5f8a1201.jpg

[specialk16]

((((RAGS)))) style_emoticons/<#EMO_DIR#>/foryou.gif

I wanted to give you a cyber hug. I know things are bad for you right now, but I wanted to let you know that I am praying for you.

Love and Hugs style_emoticons/<#EMO_DIR#>/wub.gif

[lupy lulu]

ALSO SENDING LOVE AND HUGS style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif

AND YOU DONT NEED ME TO TELL YOU THAT YOU ARE A VERY VALUED MEMBER ON THIS SITE !!

YOU ARE LOVED style_emoticons/<#EMO_DIR#>/wub.gif

LOVE LUCY X

[zara]

Hi Raglet,

It is an honor to have you on this site sharing with us. And yes, 'feel better soon' is very cliche but I hope that is what happens for you physically and with your spirits, whether it be through friends holding your hand or combination of meds that kick this thing in the butt or some spontaneous good fortune.

Take care. style_emoticons/<#EMO_DIR#>/coffee.gif

[Christine UK]

<span style="font-family:Comic Sans Ms"><span style="font-size:24pt;line-height:100%">
Hugs to both of you ...
Raglet for being you and such a wonderful person style_emoticons/<#EMO_DIR#>/foryou.gif

Clare...being a mod is something that is done out of the kindness of your heart...we know you mods are there to protect us and the boards....your doing just fine style_emoticons/<#EMO_DIR#>/foryou.gif </span></span>

[keebler]

<span style="font-family:Georgiasize3">Raglet, style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif
You are in my thoughts and prayers. Hang in there and take care of yourself.
Life isn't always easy but we lupies are tough.
style_emoticons/<#EMO_DIR#>/goodvibes.gif style_emoticons/<#EMO_DIR#>/goodvibes.gif
Keebler</span>

[lazylegs]

I'm all out of new brains so I am sending hugs instead. Hope you feel better soon.

Take care,
Lazylegs

[macfamily53]

Dear Raglet

One thing i know for sure is have always gotten so much out of you post since i came to this sight a year ago.You are a very intelligent person for sure like someone else said and very caring a wonderful personality to. Please hang in there or try to it has to get better for a person as wonderful as you. I will be praying for you for sure to feel better real soon.

CLARE being a mod is not an esy job to do at all and all volunteer for our safety. So dont be so hard on yourself hun. You are a super mod i think anyway. Both of you hang in there and take care.

Tammy style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/wub.gif

[SharonMV]

Dear Raglet,
I'm sorry things are so hard for you now. We're all here for you, no matter how you're feeling or speaking or thinking. I've been through the Lupus neuro-psych mill big time in the past & still have some problems. One of the most improtant things I've learned is that no matter what illness does to you, no matter how your life changes - you are still you. Hope you're better soon. Many hugs,
Sharon

[Lily]

(((((((((((((((((((((Raglet))))))))))))))))))))))) )

style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/wink.gif It's going to be ok style_emoticons/<#EMO_DIR#>/thumbs-up.gif

We are here for you no matter whats going on style_emoticons/<#EMO_DIR#>/smile.gif The landing pad is ready anytime you are but if you want to hover, well you hover as long as you feel like it alright!! Wish I could come straight over with some Twinings and choc truffles right now

style_emoticons/<#EMO_DIR#>/smile.gif

((((((((Raglet)))))

take care,

love
Lily

[Suzan]

<span style="font-size:12pt;line-height:100%"><span style="font-family:Comic Sans Ms">

Raglet

I have read many of your posts....and you are an "amazing woman". My most heartfelt well wishes ,
special prayers and ((((hugs)))) to help you past this bump in the long and winding road you travel.

I would like to add that your posts are so very helpful to your "fellow lupies" you are very much loved
and respected...you are a kind soul, indeed.

Fondly
Suzan style_emoticons/<#EMO_DIR#>/flowers.gif </span></span>

[pokey13]

Hang in there Raglet style_emoticons/<#EMO_DIR#>/hugbetter.gif

You have my hand to hold and everyones hand to hold on this site,,we Love you, I hope and pray the meds start to work for you soon .I know you must be so tired of being strong but you have to hang on,Your alwqys the one I look for on this site to help me get through my most difficult days,, I want you to know we are all here for you now.

Love~Angela

[LilliesPad]

Raglet,
You and a few others on the forum were the first names I saw when I first found this site. I also admire you and your courage and have learned alot from you. You are in my thoughts and prayers. I think you are an inspiration to all of us.

style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif

Sincerely,

[Pollyanna]

Loving hugs for you both. Raglet, just know that you are not alone and that you are loved. Clare, you do such a fabulous job and it sounds like Raglet understands you have to do your job and that you care more than words can say.

My love to you both, Pollyanna

[JoD]

<div class='quotetop'>QUOTE(Raglet @ Jun 22 2006, 11:40 AM) Quoted post</div><div class='quotemain'>
i ddnont care and never ever have if people think i am strange neurospychiatric is stragne lupupupus stucks big time i gradgually get better (stuffed full of steriods now so recovering but trying not to think about dinosaurs) [/b][/quote]

<span style="font-size:12pt;line-height:100%">Hugs Raglet style_emoticons/<#EMO_DIR#>/foryou.gif

Hope things look up for ou soon. You have a lot of people who care for you on this list, at home and at work. Take care of yourself.
Joanne
PS Dinosaurs are cool style_emoticons/<#EMO_DIR#>/cool.gif </span>