am i flareing?

[jane1]

style_emoticons/<#EMO_DIR#>/crying.gif Hi..everyone...i was doing so well..having been DX and given plaquinel and asprin..i was getting ready to go back to work...now this week i feel so tearful..blisters in mouth..tired..headaches..confused..stressy..waking at night really sweating,i had stopped doing that style_emoticons/<#EMO_DIR#>/faint.gif ..would this be a start of a flare?...i felt so good two weeks ago..better than i had for many months?..what went wrong.. style_emoticons/<#EMO_DIR#>/crying.gif

can anyone of you helpful peeps give me some advice..many thanks...jane style_emoticons/<#EMO_DIR#>/foryou.gif style_emoticons/<#EMO_DIR#>/foryou.gif

[Clare.T]

Hi Jane

Yes, it could be the beginning of a flare or not even that, simply the way this disease notoriously comes and goes. It's one of the ways it is really sneaky and jumps up to bite you in the bum, just when you think all is going well

The unpredictability is one of the things we have to get used to and somehow accommodate into our lives. You've only been on the Plaquenil a few weeks I think ?
I wrote to you earlier
<div class='quotetop'>QUOTE</div><div class='quotemain'>

Yes you certainly can have a flare while on Plaquenil and especially likely in the early days. Plaquenil won't stop flares altogether if they are going to happen - it reduces them. All sorts of influences can bring flares - after last week's hot brilliant weather I am flaring.
Overdoing it can also bring a flare. Then there is the disease itself too which is notorious for waxing and waning for no obvious reason at all.

This is why I think talking of getting back to work is somewhat premature at this point.

It takes time to realise this disease is for life, not necessarily the symptoms and sufferings, simply the changes and adaptations which I think everybody has to make, to a greater or lesser extent.

[/b][/quote]

All the best ((((( Jane )))))

Clare

[lupy lulu]

Hi Jane,

one of the most difficult things to come to terms with about Lupus is its unpredictability.

One of the things that we all have to learn is that we cannot run before we can walk (frustrating i know !)

I hope that once the paquinel kicks in that things will be more stable for you.. i would seriously consider taking more time off work... at the end of the day the only person who can look after you is you !

Sending Love Lucy x style_emoticons/<#EMO_DIR#>/foryou.gif

[softball893]

Hi style_emoticons/<#EMO_DIR#>/smile.gif


I agree with Clare. It could be the start of a flare, or it could be lupus being active. My advice would be to check in with your rheumatologist, and let him know what is going on. It is better to be safe in that regards. I wish you well and good luck with your job! Let us know how you are doing.




Lots of love,

Liz style_emoticons/<#EMO_DIR#>/smile.gif

[lazylegs]

That is how some of my flares start Jane. I don't know if you are like me, but when I start feeling better I try to go back to my normal routine. Then bam, I am right back where I started. Just a thought. Hope you feel better soon.

Take care,
Lazylegs

[helloos]

I agree with the others. Perhaps you were stressed about getting back to work and worried, etc... and that could have made things worse and made it act up a bit more. Try to rest in between and find something to take your mind off things and hope it passes. I would call your rhemo too if you thing you should.

I hope you feel better !! !
http://i16.photobucket.com/albums/b22/Litebeyond/710_250x250.jpg

[raggedyann1]

Jane,

Since you just started plaquenil a few weeks ago it has not reached anywhere near its full potential yet. You may also have been overdoing it since you were feeling so much better. I know for me that when I start having decent days I all too often over do and end up with a mini-flare up. Learning to pace is one of the most challenging things with lupus. Even after living with the disease for many years I still forget to pace myself when I am feeling better.

I would call and check in with your doctor. When we are newly diagnosed our doctors are prepared for us to make several phone calls. Partly because the disease is not yet under control so new symptoms can pop up and we are getting to know our bodies better. Never take what we suggest here as the truth for you until your doctor verifies it. We are sharing what things were for us when similar things pop up.

Take care,
Karen

[jane1]

style_emoticons/<#EMO_DIR#>/ermm.gif Thank you all so much..i do think you many be right..doing too much too soon...im finding this pacing thing and trying to get back to normal is hard..i havent got to go back to lupus clinic till been on plaquinel for 3 months...next month.
Who was it that said its a lonley disease..how true..but style_emoticons/<#EMO_DIR#>/smile.gif thanks for your help and support..i have you all to turn too.....many thanks..

jane style_emoticons/<#EMO_DIR#>/foryou.gif style_emoticons/<#EMO_DIR#>/foryou.gif style_emoticons/<#EMO_DIR#>/foryou.gif