more more and more tests

[angibabes32]

hi ya every one,
saturday 17th june, i got to see a new neuro surgeon, (dont know why i had to see a surgeon), he did all these touchy tests, tested my reflex's and yet again nothing happened on the right side of my body, he tested the left hand side and i couldnt stop laughing, hench nearly pee-ing my pants, literlary style_emoticons/<#EMO_DIR#>/hyper.gif . he seemed to be very thorough in testing me in and out, then he ordered for me to have a load more tests, i HAVE to have another mri scan on my head, (which a few of you know how i felt about the last one) i have begged for my friend to come with me again, so she has agreed, then he said he would like for me to have an ECO-CARDIGRAM .... an ECG... blood tests that consisted of, FULL BLOOD COUNT, ANA, BONE PROFILE, a few other small ones that i think we all have to have when we have our bloods done, then last of all he wanted me to have a test done for THROMBOPHILLIA, well this completely through me out, i rang my support friend who has been totally great with me keeping me calm and helping me not getting stressed out, i went over to her house and we looked up thrombophillia, wow, did it shock the **** out of me, it described me to a T , i tried not to get to worked up but silly old worry pot me,i got so worked up i finally broke down on my ex husband and cried my heart out, (he has been a great support through this), anyway, thrombophillia is a PROTIEN S DEFICIENCY, it lists loads of things in there, one including SLE, but the main thing that triggers it is a blood clot, so after reading this i am now understanding why he was asking if there was history of stroke's and heart problems in the family, when i said to my doctor that there was, he said the fit or funny attack as i nicknamed it, that happened nearly three months ago, in his return answer. he is now saying that there is a high chance that ive had a small TIA, so it has now scared the **** out of me, wondering if i do have a tiny blod clot running around my body or there is another risk of me having a stroke, minor or major, so after all these findings, i joined weight watchers, started to take more excercise, and sorting my life out, i never knew that a 33 year old could suffer a stroke, yes i have heard of it, but you all know the saying " IT WONT HAPPEN TO ME!!!! " well i NOW know it can

i have to wait for the rest of my tests as we all know the english waiting lists, they are as long as your arm, so now my attitude is to try and stay more positive and not sit around dwelling it what could be or what wont be, i will write more once i get the results through,

here is a final little laugh

i went to the hospital yesterday to get my bloods done, when i gave her the form she said " oh hang on i might not be able to do this," i asked why, " she answered that the thrombophillia tests cost a fortune and we have to limit what we are allowed to do," i thought hang on this is my health, i didnt ask for these tests to be done i was told they had to be done, anyway the lab agreed they could be done, but the reults can take up to 8 weeks to get back,

love and hugs to all
keep smiling as the day can only get better

angibabes style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif style_emoticons/<#EMO_DIR#>/hugbetter.gif [font=Comic Sans Ms][size=3][color=#CC66CC]

[alobreto]

Hi, Angi! style_emoticons/<#EMO_DIR#>/wink.gif
My goodness! It never ceases to amaze me some of the things we have to endure in order to get the appropriate diagnosis. style_emoticons/<#EMO_DIR#>/blink.gif

It sounds like this neuro doctor is a great detective on a par with good old Sherlock Holmes! style_emoticons/<#EMO_DIR#>/ohmy.gif He sounds like one to hang onto!

I'm so glad you were able to get the necessary testing done. It's too bad that money matters can be so intrusive. When it's your health, you want everything needed to be done. Hopefully, something will turn up and the mystery will be solved so you can get started on having it controlled.

Health matters are worrisome when you know what is wrong, but they can be even moreso when you don't know.

Hope you get some answers, finally!
Angela style_emoticons/<#EMO_DIR#>/smile.gif

[helloos]

I agree that your doc seems to be thorough. Just try to remember he is testing you for these things which is good. It does not mean you have them or will have a bloodcot or stroke. Try to think positive.

I was rushed to the hospital to have a test done because of out of breathness and my d dimer test came back positive which makes them think a clot and I was worried that they made me leave work and go all within an hour, and it was nothing.

So, if they thought present right now, you would not be waiting. Just try to think positive and if for some reason it turns out that you do have that, then the best thing is to catch it now. Try to take some comfort in that.

I know it is easier said than done, but the stress and worry only makes us worse, so if you can try at least to get it off your mind for now, enjoy it a little better.

Good luck with your testing and I will pray that all is ok for you.

[raggedyann1]

angi32,

I will be hoping that the doctor marked urgent on the forms for the mri and ecg so that the wait time is shorter than you expect. I am glad the lab is able to do all those tests for you. Find things to keep your mind busy during the day. When I first learned 3 years ago that I have scleroderma in addition to my lupus, ra and Fibro I really wigged out. I started reading everything I could on scleroderma and got even more upset. When I started calming down and living in just today it got much easier. I would suggest not doing on more research on the THROMBOPHILLIA till you have an appointment with him to hear the results.
I truly try and live one day at a time. If I start thinking ahead then I get totally overwhelmed with what "might" happen to me health wise. I have picked up some new hobbies that I enjoy doing and spend time here helping other people. I also spend time on a message board for my new hobby and continue learning new things everyday.

I know it won't be easy for the next week or two but you are on the right track.

Take care,
Karen

[Fishaholic]

Over the years I have been tested for many things, including TIAs, parkinsons, brain tumours, MS and various other nasty things. In the end, I didn't have them. Of course one or two of the things they suspected did turn out to be true (lupus for instance!).

However, after finding myself spending all my time worrying about what it would mean if I had Parkinsons, or a brain tumour, or whatever the "illness of the day" was, I decided I needed to change that. It is easier now as I have gone through it so many times. My motto is "don't worry until you have to". In other words I wait (or try to!) until I have a definite diagnosis before starting to worry about what it might mean.

Even when given a nasty diagnosis where lots of bad things *could* happen, I ask my doc what he or she thinks is likely to be the case for me personally. Statistics are all very well, but every person is different. After that, the motto as others have said is "take one day at a time". When I am able to do that, I feel much happier. But it isn't easy to stay in that frame of miind.

I'm sorry you're going through such a lot and have all those tests and possible problems. Try to hang in there and I hope the dx will turn out to be more benign than what they are suggesting right now.

Big hugs, Sarah. style_emoticons/<#EMO_DIR#>/hugbetter.gif