Going Crazy

[tzookm]

[font=Arial Black] style_emoticons/<#EMO_DIR#>/hehe.gif I have some of the symptoms of SLE, real muscle aches, fatigue, irrational outbursts, C-reative protein is high and WBC is low. How do I progress with this? Any answers out there and thanks for letting me join your forum. It is a God sent.
Tess style_emoticons/<#EMO_DIR#>/Thanx.gif

[helloos]

Hi Tess and welcome to the site.

It is a very friendly place and a lot of support here.

If you think that you have symptoms of Lupus, you should see if you can see a rhemotologist that can do the appropriate testing for you for all auto immune diseases. Have you seen a doctor regarding your symptoms yet?

Is it yoru gp who has given you these test results?

Has anyone suggested auto immune disease to you?

Nice to meet you. http://i41.photobucket.com/albums/e291/ElenaSun/1.jpg

[tzookm]

<div class='quotetop'>QUOTE(helloos @ Jun 29 2006, 12:10 PM) Quoted post</div><div class='quotemain'>
Hi Tess and welcome to the site.

It is a very friendly place and a lot of support here.

If you think that you have symptoms of Lupus, you should see if you can see a rhemotologist that can do the appropriate testing for you for all auto immune diseases. Have you seen a doctor regarding your symptoms yet?

Is it yoru gp who has given you these test results?

Has anyone suggested auto immune disease to you?

Nice to meet you. http://i41.photobucket.com/albums/e291/ElenaSun/1.jpg
[/b][/quote]
style_emoticons/<#EMO_DIR#>/foryou.gif THANK YOU FOR YOUR COME BACK. i HAVE BEEN TO MY INTERNIST MANY TIMES ANDHE SAYS ALL MY SYMPTOMS ARE FROM LACK OF SLEEEP. I LIKE HIM VERY MUCH, BUT GEEEZ. AGAIN THANK YOU FOR THE WELCOME AND PLEASE DISREGARD THE CAPITALS. I KNOW THAT IS CALLED SHOUTING AND I AM NOT SHOUTING, NOT TODAY. IT IS A ONE OF THOSE BAD DAYS. THANKS AGAIN. style_emoticons/<#EMO_DIR#>/goodvibes.gif

[PennyPru]

Hi Tess, If you are going crazy, then I'm right there with you!!!! I was just Dxed with fibro and raynaud's a couple weeks ago. I had a positive ANA in NOvember, but they haven't tested my CRP or Sed rate yet. I'm new to this awesome group too. I'm 35 mother of two little girls, and married to my best friend who is convinced this is NOT SLE ... hopefully he's right. I live in North Carolina.

When I read your post you sounded JUST like me. I've had pyschotic episodes where my hubby has had to hold me down so I don't run out of the house. I have intense muscle pain and have imflammation all over my body. Indeed I believe I have fibro, but I wonder if something larger is causing it. I have migraines and pain in my spine that caused me to have a major pyscho panic attack, and also have weird bladder issues.

Unfortunately, autoimmune diseases are challenging to Dx, but not impossible. It often takes time for specialists to hone in on the exact root cause.

One beneficial thing you can do is read thru old posts here and learn from all the others who have worn our shoes and benefit from their painful and triumphant experiences. I've been reading the Lupus Book by Dr. Wallace. (NOt sure what others think about this book, but it's been really helpful to me.) I have NOT been Dxed with SLE but I have many symptoms and ACR criteria. I've also been in touch with the local chapter of the Lupus Foundation and talked with someone who has been really helpful.

Hang in there and know you are not going crazy. come up with a plan on how you can get to see the right specialists. I've got a team of doctors trying to piece this together and I'm trying to get on a waiting list (6 months) to see a lupologist.

Most important thing I've learned is I have to pace myself and my energy. I am normally the busiest bee in the hive, tearing a million miles an hour getting things done. Well, now I know I cannot and MUST not be that way any more. This is a tough shift for me b/c I define myself by all the things I do for others. Right now, I need others to help me.

Pamper yourself and try not to worry. Stay in the moment. Hope these ideas help.

((((((((((((((((((Tess))))))))))))))))
Love >|< Penny

[halfpintfl]

style_emoticons/<#EMO_DIR#>/wavey.gif Hi there, and a warm welcome to you and to this site.
I would say that your symptoms are vague right now, and that
you could fit into any number of autoimmune diseases. Start
keeping a type of a journal, not especially daily, but whenever
something new happens, write it down. by the time your next
appt comes, make a copy and at the end of the appt hand it to
him and say"this is for you to put into my file". You keep the origional
sheet. things like,new hurts, fevers, blisters, sick to stomache, you
know, anything out of the odinary. Good luck.


Be well and keeep posting. style_emoticons/<#EMO_DIR#>/cool.gif