Dodgy life

[natfab15]

Hello

I havent typed on the messageboard for ages but thought i would today. I have been really ill for about a month. I got such bad joint pains that i couldent move at all and my face was so bad i couldent eat. I lost a stone in weight and got so upset that i started to have these wierd anxiety attack dream things which im still having. I mean having lupus isent great but i really do feel that im getting it really bad when i cant even walk. Ive been put on steroids now and i really hope they will work as im going back to uni in september after having to quit last year after getting so ill and dont think i have the heart to have to leave again. Im so motivated to do stuff and live a life and i cant do anything. I just have to sit around wasteing my life doing nothing. Im going to the doc tommoro so im gonna beg them to sort my steroids out. I dont ever wanna get that bad again. Its not very nice being a 19 year old with a comode and a wheelchair. :( I dont mind having lupus. I dont mind going bald. I dont mind having to have a carer. I just REALLY REALLY wanna be able to go back to uni and not have to leave. Im so bored. Im so bored that if i have to stay at home again then i dont see the point in being here. What life is it just laying around having your mum feed you cos u cant even move your arms cos it hurts so bad. If i were a horse someone would have shot me by now. Well its good to have a good moan.... Thanks for listening :)

Love Natalie xxxx

[MAMAJOE]

;) Hi Natalie You Poor Thing You Sound So Down I Know What You Mean Lupus Is Just Crap Eh! Living With It Sometimes Feels Like Not Living Cos We Are So Limited To What We Can Do. I Try To Make The Most Of The Better Days Which Is Still Crap But Thats The Only Way We Can Live With It.you Sound Such An Ambitous Girl And I Believe Where Theres A Will Theres A Way. Could'nt You Do Your Studies From Home On The Bad Days Like Open University Or Something? Is There Any Help Your Uni Can Offer With Home Tutoring When Your Bad? Lots Of People With Special Needs Get A Uni Education Look At Stephen Hawkins.
When I Read This Post You Touched My Heart, Cos Us Lupies Have To Stick Together, And I Know Where Your Coming From We Seem To Always Stuck Between A Rock And A Hard Place Eh! The Only Consolation Is That When You Go Through Something Like This You Become Strong! Well If Ever You Need A Friendly Ear Or(pc Ha Ha) Send Me A Personal Message And We Can Moan Together. I Am 44 With Sle And Not Been Treated Yet (long Story) But My Kids Are Your Age And I Can Relate To What Your Going Through Take Care, Stay Strong!
Mamajoe

"life May Not Be The Party We Hoped For, But While We Are Here We May As Well Dance"!

[happybluelupine]

Hello Natfab15,
I was diagnosed with lupus at 19. I have had lupus for 30 years now. Think positive and be patient for your medications to start working. I always corner my Doctor and ask "am I going to ever be in remission". The last lupus attack he said I would go into remission. Just hearing him say that made me fight even harder. It is difficult. Hang in there and you will be better. Make sure you go to a lupus specialist. Sometimes I think just the pure will to survive has kept me here. Do not give up.
Sincerely
hapblulupine

[fenrus]

I pretty much had to drop out from school when I had a severe Lupus attack back in October 2005. It took me like 2 months before I could stay standing without getting a headache in like 15 mins.

yeah, it does get boring. I pass most of my time by working out and strengthening my body and researching health. need to make sure my body is extra strong come September, cuz when I start working those 5hr sleep nights, I'll need my body extra strong so my Lupus won't get in my way.

[helloos]

Hi Natalie.

I am sorry to hear that you are going through all of this. I wish I could wave my magic wand and make it all go away. I really hope that your doctor can sort out your meds and things start to improve.

As said, we need to stick together. I am glad that you posted on here and know that prayers and hugs are being sent your way.

Keep your head, be positive that things will get better soon. I know it is easier said than done, but please try. Being positive does help.

http://i37.photobucket.com/albums/e81/gonekrazy4sure765/angel-saysthoughtsandprayers.jpg

[hattycat]

I know exactly how you feel.I'm 17, have 2 wheelchairs (1 manual and 1 electric), stairlift, high rise toilet seats and stuff to help me eat. I'm also worried about not being able to cope at uni as i'm due to start in oct '07.
I hate not being able to do everything everyone else can do...like move...but it helps to talk about it. If you ever need someone to talk to, I'll be glad to hear from you, either by private message, e-mail, msn...
It'll get better..

[hurley]

Natalie,

Don't you ever give up! Just by reading your post I know you are an awesome gal! You have a lot of obstacles to overcome but I know you can do it!!

One could say, "Well, you don't know me." But, yes I do! You are a brave and cool chickadee!!

I know I am not alone in saying:

YOU CAN DO IT!!:more:

Loves and hugs from Julie:)