starting uni...

[young butterfly]

hey everyone, :hehe: hope when ur reading this ur in the best of health. :)

im going to be starting uni in a few days and i just wanted some advice on how to cope with running around and everyfing. :blush:

ive been pretty inactive for the last 3 month after my last operation to reopen my hepatic vein due to a blood clot (have SLE with antiphospholipid syndrome and budd-chiari syndrome). so im a bit concerned about the impact that being on my feet for abt 6 hours will have on me. i dont really have any idea of what activities wear me out because some day im able to everyfing and other, well i cant manage nefing!recently i have been going for long walks to regain a bit of strenght but it a bit hit and miss as it depended on how im feeling.does neone no how to see tiredness pattern?;) should i be keeping a diary were i list my activities and my exhaustion levels? what i worried about is how this tiresness is going to affect me making friend. i no i will here and there but im just a bit concerned on that my tireness will take over and prevent me from making frnds as they wont no that i have SLE.:worried: any1 out the got some advice on how to conuteract this?

i developed a constant migraine like headaches all the time. it there wen i wake up and wen i sleep.....basically it there for wot seem like 24/7!!:eek: . i feel as if im the only person in the world wid this headache sometime, but fankfully i have the support of my family and i have faith in Almighty. i fink the headache is due to the fact that im a aneamic(but been prescibe iron supplements) and my sleep pattern. everyone alway tell me to get into a proberly sleep pattern, to which i reply try being on 14mg of prednislone and immunosuppresant:p ,lol!i try going to sleep say at 11 but i dont atually drift of till about 3ish....does ne1 have ne tip on falling asleep and saying asleep at human times.

fanks for reading this(i no i rabbled on and proberly confused you!!whoops!). :rolleyes: And it would mean a lot if u could help me....fanks

tk cr.....................byyyyyye!

[Edd]

Hi,

I was diagnosed a few weeks before I started uni (now going into 3rd year). I didn't cope too well because it was all new to me and I was trying to cope with feeling ill, new meds and a new lifestyle all at once.

All I can say is try to get involved in as much as possible but not at the expense of your health. If you're feeling bad just take time out and chill. A lot of the initial uni activities are centred around things like going to the pub with flatmates etc which is not too exhausting so don't worry too much! If you're living in uni accom (?) you'll have instant friends with no effort (assuming they dont drive you crazy!)

In general terms I would say don't despair if you don't make loads of good friends initially. I didn't get that involved early on because I was feeling pretty rough. I met loads of people to hang out with but didn't have any particularly 'good' friends, but over the last 2 years I have met loads of great people and now I have a great base of friends, so there is no rush.

Hope this helps.

[Joandublin]

Hi:)

What an exciting new chapter in your life! University!:) I am hoping that you enjoy every moment and get the very best out of the experience.

I think it is a very good idea to keep a diary of your activities and tiredness level. Its good for us to get to know our bodies and our limitations.

Have you spoken to your doctor about the sleep problems? I dont think that having such poor sleep is going to help you concentrate and enjoy University:worried: . I would make an appointment and talk to your doctor about it. There may be something that can be prescribed which will help you while you or on your current dose of prednisone. The only other alternative I can think of is to establish a regular bed time routine with relaxing music. I often find it helps me:)

Finally can I ask you, if you are replying, to write your post in standard english as many of our members have problems understanding 'text speak'.Thanks

Best of luck with the college!

Luv n stuff
Joan:rose:

[Sprinkly]

Hello,

This is my last semester for undergraduate studies, I will be graduating this x-mass with a B.A in Anthroplogy, Yahooohoooo. :sigh: :more: Currently, I am also registering for attending graduate school.. :yes:

Being dx with RA "bone deteriation", at an early age, and also lupus this past year. I have had experience with accomidating myself with my health of coping with the course requirments of work complition, and managing a social life. So, instead of trying to handle both unsuccessfuly, I have made a callender guide for daily course tasks, such as readings & papers due. While also writing what I felt like afterwords.. This procces has helped me a great deal during the following semester of course studies.. I could use my previous semester calender for stress levels vs. course requirments and grades recived, for extra curicular activities, such as attending a course outside study group outside of my normal tasks.. Over the course of the following semesters, my first semester indipendent status at this univ. grew into a small group of different people that I would run into from a previous class... And friendship would begin from that point on...

While attending univ. is great, the courses are the primary importance.. Then social groupings develop when the courses evolve over the semester into study groups.. :wink2:

Any questions, please ask... Have fun with the venture of true life.. :thumbs: :more:

[aliciakeke]

Hey I am sorry u are having so much trouble. But I do have some advice on sleeping. I too would lay in the bed all night it seemed trying to fall asleep, some nights I would lay awake all night. But I went to Wal-Mart and got some over the counter sleepaids and those worked like a charm. I think u should try them and if those dont work u should talk to ur dr and im sure they can prescribe some sleep aids like ambien or something. and I have a question, what exactly is uni?

[fenrus]

Well, in about a week and a half, it'll be the day where my Lupus put me in a coma state for 24hrs which forced me to take a break from school for pretty much the next year.

i too, experienced the constant headaches and exhaustion. standing or sitting for more than an hour would almost always result in a headache for me. the blood flowing through my body felt like glue, I questioned if my heart was working properly.

luckily, I did have the support of my family and I've taken almost a year off any major activites and mostly focusing on my health.

if you have the luxery of it, take that time off. take things slow. i'm 23, and I know a year feels like a lot of lost time. it is... but for your health, it's worth it. As they say, you can't appreciate good health until you don't have it.

don't just be lying in bed all day. really to try exercise. just start some long stretching, then walking, some light weights. eat healthy. i mean, really try to eat healthy. go to sleep early.

[mooks]

hey i have this really bad headache from the second i wake up like 24/7 too. it gets so bad i feel sick and cant look at bright light. Ive had it for like a month its horrible. So just to let you know that i know how you feel!! Anyway uni is going to be wicked and you'll muddle through im sure! xxxxxx