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MrWolf
10-05-2006, 11:34 AM
Hi, my name is Paul & was diagnosed with Systemic Lupus when I was 12 years old, although I remember getting "growing pains" earlier then that. I used to belong to the local Lupus group but did not have much involvment.
Have not been to good recently and just felt like talking to others in the same possition as myself.Forgive the spelling...:)

Donna Marie
10-05-2006, 01:15 PM
hello Paul/Mr Wolf:wavesmile:

Welcome to the site this site really is brilliant and we are all her to give you support, i call this site the oracle cos if i'm unsure about anything i post it here and somebody somewhere on this site knows what you're talking about!.

I hope you find us all useful.

and you know where we all are if you need us!! xxxx

TAKE CARE:kiss: :love:

XXXX

Angelheart
10-05-2006, 01:46 PM
Hi Paul
This site is fab!!! I joined yesterday loads and loads of info...
keep your chin up and think now is now but in half an hour or tommorrow it may well be different...You sound like a real positive soul and in my personal experience positive thoughts always save the day...I had a migraine at 3 this morning and believe me I had to dig deep to find some but its the only way for mexxx
Stay Strong and your daughter sounds lovely kids are great arent they??
Love
Michelle

Tom
10-05-2006, 09:43 PM
Welcome Paul, :wavey:

You came to the right place. If you have any questions just ask. :) Chat is a good place to talk to others in real time. Hope you feel better soon.

sjay66
10-06-2006, 04:16 PM
Welcome Paul hope you feel better. You have come to the right place, from my short experience with this support group it is very supportive of its members

oohloo
10-06-2006, 04:37 PM
Welcome Paul, you will find some lovely new friends here. I'm sorry you are not too good at the mo.
Hope to see you here and get that you get the support you are looking for.
We are quite close i live near Bognor.
Take good care
Lou.xxx

red24
10-06-2006, 05:00 PM
Welome Paul so glad you have came to this site. I have never found a site like this. Everyone is so kind and so informative about things I would have never known about.

I would love to find a Lupus support group in my area but there is none that I know of.

I look foward to more post from you and maybe find you in the chat room some time.

Your new friend,
Deanna

Douglas
10-08-2006, 03:21 AM
Welcome aboard. SLE was my diagnosis too though this interesting disease has so many different manifestations - all miserable - that we may have very different problems yet my bet is that they are all painful. Sorry you are having a rough patch. Hope it passes soon. I am rejoicing in not having any agonizing pain for over two weeks. It is a great break. The folks here are supportive and kind. And they all know what we are talking/complaining/
rejoicing about.
Pax,
Douglas+