Missing Out

[mooks]

Hey I need to vent! I'm so down right now becuase I feel like I can't do anything and I know you guys understand how this feels! I just want to be normal! My friends are all taking a road trip to Bristol tonight for the weekend to stay with a mate at uni, and I was soooo excited about it and now I can't go because I can hardly move i'm so tired and everything hurts i'm in so much pain! I'm finding it hard to work a full day and havent even gone in today...so im never going to have a the career I want! I just feel like everything is going from bad to worse and I have no control over it. :worried: Sorry to be so depressing and selfish but I'm so sick of it I don't know what to do. xxxxxxxx

[Joz]

hello!im sorry you have had to miss out :( i know exactly how you feel, im 18 and live in Hythe which isnt far from you. A few weeks ago my friends were going to icon nightclub and i just felt so ill, tired and in pain that i couldnt go. Was so disappointed. always seems to happen when you've got something to look forward to doesnt it?im sure u will get a career, what are u studying for? ive just started a new job and hoping it wont be too much for me, its really hard so i know where your coming from. Hope your feeling more cheerful soon :hehe: your not alone xxx

[mooks]

hello sweety thanks for your reply its made me feel loads better that someone is in the same position as me! I am going to be a biomedical scientist, and at the moment i work at maidstone hospital in the pathology lab....still on first step of ladder but ive got an interview for medical lab assistant(next step up) on thurs but its in my lab and they know how ill ive been and how much time ive had off and without an official dx they probably think im just a skiver so i wont get it. xxxxxxxxxxxxxxxxx

[Joz]

i always think im the only one to :) good luck for thursday, im sure you will do great and ive always found that if your upfront and honest with people bout why you are ill they will be more forgiving, if your good at your job then im sure that lupus wont get in the way xxxx

[jude mack]

Hi Mooks

I sorry you had to miss out on your weekend, it seems to be the story of our lives. I am way older than you, but I still get very disappointed when I have to miss out on something fun, over time it has gotten a bit easier. :)

I wish you loads of luck for Thursday, and I'm sure if they know you are not well, even without a dx, they won't think you are a skiver. {not sure what that is} Take care of yourself and feel better.

Hugs Jude:flower2:

[helloos]

Hi there.

Good luck with your interview. Stay positive - you will do wonderful that day.

I understand about missing out. It is very depressing when you miss out on something that your mind wants to still do but the body doesn't. When this happens for me, I try to replace it with something else, like renting a good movie or something like that. It doesn't make up for it, but it helps rather than just staring out the window. I found myself plenty of days this summer laying down looking at everyone outside doing yard work, playing with their kids, etc. and enjoying the day, and there I was wrapped up in a blanket like I was 100 years old.

Keep your chin, better days ahead and many more years ahead to make up for it too.

[--Roisin--]

Hi, I really know how you feel! Im 19 and I know If I go on a night out with my friends ill pay for it for days after, or if I wear heels ill get terrible foot pain for ages after. I know you get angry sometimes and you think this isnt fair, all your friends can do what they want and not even think about it whereas you cant do what you want. There have been so many times when my friends r going out and they ask me to come and I really cant b bothered cos I know the next day i wont b able to walk or sometimes even by the end of the night ill find it hard. You need to have limits and know when not to push it, id say if your really in pain and tired etc then stay in because you will just make it worse by going out. But if your alright then id always say go out because even if u do get a tiny bit of pain you'll have a good time and you'll feel much better than u would if u had stayed in on ur own. Its really easy when ur ill to get into the habit of staying in and separating urself off from your friends.

[LittlePeanut]

Hey I need to vent! I'm so down right now becuase I feel like I can't do anything and I know you guys understand how this feels! I just want to be normal! My friends are all taking a road trip to Bristol tonight for the weekend to stay with a mate at uni, and I was soooo excited about it and now I can't go because I can hardly move i'm so tired and everything hurts i'm in so much pain! I'm finding it hard to work a full day and havent even gone in today...so im never going to have a the career I want! I just feel like everything is going from bad to worse and I have no control over it. :worried: Sorry to be so depressing and selfish but I'm so sick of it I don't know what to do. xxxxxxxx


Mooks, I know exactly how you feel. :( It's rough. I am always cancelling, so my friends have stopped inviting me. Even if I can't go, it's always nice to get invited and feel wanted. I hope you are feeling better soon. (and your hand too)

Lisa

[stefanie]

Hey

I know exactly how you feel because i've been feeling the same way lately. I am 22 and went to college for two years before my illness was so bad I couldn't then I thought a nice office job would be best but Nope couldn't do it. So here I am 22 and unable to do anything I too feel out of control with life.

A lot of my friends now do things and go places and I can't go wtih them because i'm sick and it bugs me in ways I cannot discribe. I gained 95 pounds from the predsione and even being with my boyfriend is tough because i feel as though he doesn't really love me the way he used to. I know he loves me but I'm questioning whether he's still in love with me.

Sorry I don't want to depress you I just want you to know that you are not alone in any way, that we all go through this and it's ok to say LUPUS SUCKS!!!!!!!!! And don't you worry you will finish school and you will get the career you want and be amazing at it. I myself am looking to go back to college so that I can hope to get a career that I want too! Always know that no matter what our disease says we can do it!!!

Take care and please feel free to PM me anytime even if you just need to vent. I understand.

Take care