Painful BONES

[mooks]

Hey everyone here is another of my threads asking if anyone else gets this :D does anyone else get...bone pain? its mostly in my forearms and shins....feels like they're broken...exact same feeling...real deep painful ache in middle of bones....anyone else?? :D xxxxxxxxx

[erenae1974]

oh yes, you are not alone! I have often described it too that it feels as if something is broken. I get it in forearms, hands, knees, and feet mostly. I think people must think I'm crazy because how can something hurt that bad for a few days & then be gone!!! How can "nothing" hurt so bad?? Hugs to you for having to go through this pain...hang in there, hopefully something will get figured out so we don't have to suffer through that!

[Pollyanna]

Hi Mooks,

Yes, I get it in my feet while flaring. They feel like I'm walking on glass or like the bones are shattered. My hands also, but not as severely as my feet.

You're not alone!!

Love, Pollyanna

[mavis b sausage]

Yup, me too. Really horrible pain and a feeling that all the bones and things are sort of disconnected from each other, does that make any sense???? I feel rattly, like a broken clock or something.

[trapped]

hey i get bone pain too, in my wrists arms inc elbows and my feet. though my knee is worst - makes it really painful even to walk or lie a certain way.I someone presses on any bone in my body im in pain.

Im really glad other people have this as i was startin to think i was a freak.

ur not alone hugs
take care
sam

[Karin1]

Oh man, do I get bone pain!! In my forearms and shin bones. To even touch that bone with any pressure hurts. I've told my doc for years that I have bone pain. Response "your bones can't hurt". Well shoot, tell my bones that!

I know I've developed quite severe osteo from my lupus, and it has gotten worse since on prednisone, but I'm not sure if the Osteo can cause bone pain. More recently I've been told by my Rheumy that my bone pain is caused by my kidney disease from the lupus, but again he was not 100% sure.

So who knows...a lupie thing I guess.

[peonyprincess]

I suffer as well from that deep bone pain. No amount of heat or massage makes it go away, just a wonderful pain pill to dull the ache. I have also been told that bones don't hurt. Hmmmm, maybe I should just snap their bone in two and tell them that they are NOT feeling pain. My shins are the worse, with elbows and arms running a close second. At least with the elbows I can get them injected every couple of months and have some relief.


Nancy

[neongirl]

With me it is the bone in my thigh and the bone in my upper arm. some nights I am awake all night with the thigh bone pain. I agree, no amount of massage etc. helps:faint: :(

[mooks]

hey guys thanks for all your responses its reassuring to know im not the only one and also that this could be due to lupus. I will def mention it to my rheumy on tues! thanks guys...xxxxxxxxxxxxx

[sheila t]

I get the pain too, But I do have severe Osteoprosis, had 8 factures so far, so in my case I know its the Osteoprosis, but I have for years even now, get severe bone pain in my shins, even to touch.
Good luck with your appointment
Sheila xxx

[barbie74]

I also have the pain in my bones. Mine hits so fast that I tend to drop things. I know your pain.:(

Barbie

[prpleflwr]

Hi all,
I smypathize with all of you who goes through the bone pains, I too, go through with the pain, and it's true about no amount of massage can help. My pains are in my upper arms, thighs, knees, hands, and especially on my feet, top part, I try to explain to my doctor that it feels like someone had just hit my feet with a hammer....he just looked at me as I was a "nut". "Bones don't hurt", well, let me go get a hammer........
Sometimes I get so frustrated with these doctors.
I pray for everyone who are going through this "Lupus" to have some kind of relief in the pains we are all suffering from.
"hang in there" !!
Nilsa

[LuvSuperman]

Hi everyone I am new and just read this. I have severe pain in my bones and I was going to ask about this myself! But I really wanted to tell everyone that it is nonsense when they say bones can't hurt and not just cuz we KNOW. The pain recepters that make us feel pain are nociceptors and I researched and read that our bones have the most nociceptors of any organ! It's true sometimes when someone breaks a bone that the soft tissue injury is what hurts even more, but bones DO hurt. Also, there's that pharmaceutical commercial for something like cholesterol med? where the guy says side fx may include mild to moderate bone pain! And that's on TV. Sometimes I think that becuase the pain is so deep it may also be tendons which are very painful when inflamed. Get this - I was once told (but not by an MD) that organs can't hurt! Wanna tell that to anyone with gall or kidney stones? Appendicitis? It's too bad that some are so ignorant!:lol:

AmyBeth

[Ingleby]

Hello Everyone,

I have had bone pain since I was eight years old. Nowadays it is in my legs, from my knees down.

Have any of you tried ice, like a soft ice pack or even ice cubes in a baggy, if nothing else is around? This helps after a while, and even helps the burning or "pins and needles" kind of feeling too!

It comes back but there is joy to be found in the relief that, for me, the ice brings. I work hard to find relief from things that are not in a bottle of pills-like diving into hobbies or a good book, or putting on favorite music, anything to take my mind off what is happening inside.

The ice has also helped on head pain I get in the very back of my head that over-the-counters don't seem to help.

Just wanted to offer help-although I am no medical person, it's just things I tried when I felt "at the end of my rope"- to those of you who sound so similar. Could not believe how much the ice helps, once I got past feeling something so cold when already I was!

Does that make sense?-Ingleby.

[Weese]

Count me in on that pain. Doc told me it was tendonitis and mild carple tunnel. My elbows were killing me the most in the beginning. Before my diag of lupus they just kept telling me it was tennis elbow. I wore one of those bands around my arm for months with minimal results. Now my feet and ankles are worse after five months of plac. Lisa