numbness???

[frono]

I have this weird sensation on the left side of my head, there is an area that is "almost numb". I can feel it, it just feels like my scalp is pulled to tight or something. I know I'm brushing my hair but I can barely feel the hairbrush. I would literally have beat myself upside the head (hehe, no pun intended) to feel much. This has been like this for going on 5-6 weeks now and it's just so weird.

Anyone else ever experience numbness like this?

TIA

Tiercy

[Paulin46]

Hi there,

I get tingling and sometimes numbness on one side of my head. It is caused by a migraine. You would be surprised how many different kinds of migraine there are. You should do a search and check it out.

[frono]

Pauline,

does it usually go on this long?

[Paulin46]

Oh yes, in a lupus flare it has, but you should see your doctor anyway. Dont' take my word for it!:wink2:

[frono]

Thanks Pauline.

I did start Topamax about a week after the numbness started, got tired of having these awful migrianes and mine are being brought on by, what else but the...(drum roll please) SUN! That seems to be a fairly common trigger though.

My migraines just seem to get weirder and weirder. The last one, I was completely blind in my right eye, so dizzy, I couldn't walk a straight line, and kept my head over the trash can waiting for my stomach to let loose, and my right side was numb and vibrated for hours. All that and the head excruciating head pain.

Okay, I'm done whining, I was hoping the topamax was my answer to all this.

[macfamily53]

Dear Tiercy

I wanted to say first of all that i am sorry you are having such an awful time with this and you do need to get some answers. I have never had the numbness but certainly had the migraines. You are far from whining as i see it anyway. It is called venting when dealing with so much with lupus then one more thing like this is frustrating and scarey i am sure. In here we know you are just venting as we need to do that with this Gosh awful disease we have to deal with everyday of our lives, So if it makes you feel better and hopefully you will get some answers also then you go right ahead thats what this is hear for and we are here for you also.I hope you get some answers real soon. Let us know what you find out please and if you are doing better also. take care

Tammy (((hugs))):)

[anitalew]

To my understanding (per neuro) topamax can make the numbness feeling or tingling worse. At one time I was taking this med but I had had the numbness and tingling before it so I can't really say if it was really any worse as I still have it. I also have numbness and tingling in other parts of my body so who knows. Anyway I was thinking if it continues to get worse I would call doc and say something about it.....there are other migraine meds u may be able to use.

Take care
Anita

[sheila t]

If you feeling no better or its getting worse, please go and get this checked out.
Big Hugs
Sheila xox

[Christine UK]

Yes i get this a lot....just another lupus symptom i was told x x

[sue90x]

Hi all
I get it an awful lot too not just my head, but everywhere, its one of a multidude of my neurological presentations, or as Christine says simply just yet another symptom of lupus - (which I apparantly don't have anymore)!
Sue x

[Ingleby]

Hello All,

As well I have the numbness-in both legs, generally. Sometimes between my shoulders or hands. It feels like it moves because it is not always in the same spot.

When it started I would take aspirin, tylenol, one of those.

Now I use a soft ice pack with a towel around it.

The ice pack works far better and sooner on the migrains too!

The numbness is like "pins and needles", such as sitting on a foot for too long.

This has been called "neuropathy" by a Neurologist I have.

A fair bit of info. can be found online - as usual, some is good info, some not so good.

I also have migrains most every day. I have to shut myself up in the dark and sometimes wear a sleep mask, but it goes again eventually. I have learned that it is best to simply wait for that moment when the pain and the fog lift. I have taught myself to meditate although I don't do it often or regularly, but it helps when the pain gets intense.

Does anyone see halos around objects or spots on the walls/ceiling during migrains?

Wishing everyone a moment of painless peace in each day, -Ingleby

[sue90x]

Hi,
Yes I do, but truly 'the headache' is there ALL of the time, most probably one of my first symptoms, my mum had me to the dentist, so many times, but it went no further, I like many wasn't diagnosed until it had done serious permenant damage, major CVA sutting the stable door after the horse had bolted so to speak, do you have APS as I do? my rheummy and neuro have both 'hinted' that 'the headache' is often very intense with APS to me. I've tried everything and nothing works.It often prevents me from sleeping too, I get multi-coloured zigzags, episodes like I'm looking through broken glass or kaildescope too and buzzing when I'm trying to focus through all this:rolleyes: I have had TIA'S and around 15 -20 mini strokes over the last 22 yrs since dx thats with anti-coagulant too.
my blood must be like tar!
if you've found something that works stick with it, and shout it from the rooftops for anyone else to try.
take care
Sue x

[MichelleAnn]

My last flare-up I started with the LUPUS MIGRAINE, or so that is what my Rheumy told me it was. I get the numbness on right side of face, cheek, ear, mouth, and I drule out the right corner of my mouth...becuase it is numb. My hearing and eyesite is effected....my head feels weird if I touch it or brush my hair...but the pain in the back of my head in the center and stiff neck that goes with it, the pain of my eyes being sucked out the back of my head....This scares me, it is different than anything I ever had and was new. The headache never goes away or if it does a short time...it is just severe at times. Sometimes it effects the entire right side of my body...then my pants on my legs feel strange as they rub my leg, etc....I drop everything with my right hand...it is not 100% numb but enough to cause strange feelings...I was told from my neuro that it is central nervous system....I am due for another MRI in December...it is ordered just a date is not set. I guess then I will see if it is just the LOOPY MIGRAINE or something more....

[Ingleby]

It's the headaches that bother me the most. The word "scare" feels harsh but when the pain comes full blast I do get worried. They did several mri's and found "non-specific" white spots on my brain that "they" (rheumy and neury) are not worried about. I changed the neurologist after she did a spinal tap that failed and left me bedridden for eight days, with the headache so bad I could not open my eyes or get out of bed without help! (Sorry for the Whine).

I then changed neurologists and this new one said "it is migrated pain". he did not say from where or that he could help. He said about the tremors "I don't know". And so I still have them and the numbness and the head pain too. It is above my neck in the middle of the back of my head. Like a searing pain as if someone is pulling my hair there.

I work hard at not dwelling on those things, although they are always there, waiting to be worried about. When the pains come I get the ice and find a darkened place to rest in, if I can. If not I play my piano and work myself hard (I am a private piano teacher). Sometimes this calms the worry, sometimes it does not. I do try not to dwell on the pains but when they are big this is a difficult task.

I know that doctors are there because they are smart and have medical degrees but they sure seem to not know a lot because they "can't find anything."

Thanks for listening.-Ingleby.

[Paulin46]

My last flare-up I started with the LUPUS MIGRAINE, or so that is what my Rheumy told me it was. I get the numbness on right side of face, cheek, ear, mouth, and I drule out the right corner of my mouth...becuase it is numb. My hearing and eyesite is effected....my head feels weird if I touch it or brush my hair...but the pain in the back of my head in the center and stiff neck that goes with it, the pain of my eyes being sucked out the back of my head....This scares me, it is different than anything I ever had and was new. The headache never goes away or if it does a short time...it is just severe at times. Sometimes it effects the entire right side of my body...then my pants on my legs feel strange as they rub my leg, etc....I drop everything with my right hand...it is not 100% numb but enough to cause strange feelings...I was told from my neuro that it is central nervous system....I am due for another MRI in December...it is ordered just a date is not set. I guess then I will see if it is just the LOOPY MIGRAINE or something more....


MichelleAnne, My symptoms are quite similar to yours. I had all the test years ago and they found nothing. I continue to live with it. I find that there are triggers.......sometimes it is a flare or something I am doing in my diet.

I really hope you can find something that helps.

[lazylegs]

Hi Frono,

Since you just started a new medication I would contact your doctor's office to let them know the symptom you are experiencing. It may just be a side effect of the medication but it may not.

Take care,
Lazylegs

[LupusCat50]

Frono,

The topamax could be the cause. I had been on it for a few months when I started to experience a numbness in my feet and legs. It just started out of nowhere. I told my rheumy about it at my next appointment and he grinned and said that it was the topamax and he took me off it.

My headaches seemed to get better and the numbness went away. Check with your doc to be sure.

:)