Multiple Pulmonary Nodules/Scarring

[Tasha54]

Hello.

I'm new here. Great place!

I have been diagnosed with lupus for about 6 years now, with no organ involvement as of yet. (Muscles, tendons, skin and joints)

I recently had a chest cat scan which revealed multiple lung nodules and scarring on both lungs. They said my lupus could have caused this. Has anyone else encountered this? I could not find any connections between the two on the internet.

Thanks for your help.

[londongirl]

hi ya sarah:)

just read your post and sending you a big welcome to this site, sorry i cannot help you with what you are going through, but no doubt there will other members on here who will be able to help you:)

Glad you found us here, and posting sarah, so in the meantime as i said before a warm welcome, take care, will keep an eye out for your postings to see how you are getting on, ((((hugs))))) londongirl xx liz..:)

[sheila t]

http://i11.photobucket.com/albums/a167/Sheilatush/welcome/Welcomedoves.gif

I have had no problems with tthe lungs so unable to answer this for you. Hope someone else here can help.

Sheila :)

[Tasha54]

Thanks for the warm welcome!

I am hoping someone might even know where I can look to for information.

Thanks! :)

[Bullwinkle]

Tasha, I have nodules in my lungs and some scarring, however at the onset of all this (sle) I was diagnosed with pneumonia 3 times and finally got the right dx , which was PE (pulmonary embolism) in my lungs. My lungs were full of blood clots. At first they monitored the nodules and scarring very close. ct scans and x rays of lungs every 3 months. The last time the nodules were the same size, perhaps even smaller, so they'll only check them once a year.
It's unnerving at first, then other things took over so I'm not fixated on that part of me as much now.
Just make sure they take a look at them on a regular basis, at least every 6 months at first to see if they are growing. Hope this helps.

[Tasha54]

Hi Bullwinkle,

Thanks. I had pleurisy a number of years ago, maybe that caused some scarring, who knows.

I have to see a pulmonologist in a few weeks to set up the cat scan schedule you mentioned.

I was glad to hear that yours may actally be smaller now...I wonder what made them shrink? If they grow does that mean they are cancerous?:eek:
Well, I'll have lots of questions for this new doc!

Thanks for your input.