Ok..This is Strange...Anyone???

[Karin1]

Hi All,

I've been suffering with a flare, terrible arthritis, extreme fatigue..ect.
Over the last two days something new that has me concerned. The right side of my body is being affected somehow. It started with small sensations on the top of my foot, where it felt like cotton, kind of like when your whole foot falls asleep. Then my whole leg. These sensations pass within 1-2 minutes, sometimes up to 20 minutes. Then last night, it was my right arm, the right side of my face, even my lips were numb. Starting out with the sensation that they weren't there, I looked down to check my hand, because it felt like it just wasn't there. I suffered alot of last night with pain and weakness in that arm, and off and on sensations of it going numb. Small tremors as well just on that side.

Now as I sit and write I remember about 10 days ago I went to my doctor complaining that I was suffering from muscle spasms, just on my right side, in my foot, my leg and had what felt like arthritis in my right elbow and wrist.

I know this description sounds very strange, but has me concerned a bit, and I wonder if anyone has experienced anything like this. This morning I still feel my right arm is weak, my hand is very strange because it almost at times doesn't feel like it is part of me. (weird to say I know) My right leg and foot also has a strange feeling about it.

Will stop writing now in fear of sounding completely nuts.

Karin

[zara]

You should go to the ER now.

[goats]

I agree with zara,this is not normal. call you doctor

[cath]

Hi Karin,

I agree with the others. This could be serious, and you should go to get it investigated today. It might possibly be a TIA or minor stroke, in which case the sooner it is diagnosed the better. You need to see a doctor to get assessed.

Hope you can manage to see someone soon,

Let us know how you are.

X C X

[bugsy]

Hiya Karin

I second what the others are telling you - you really need to go and seek medical advise on this, its not 'normal'.

I hope that it turns out to be nothing serious for you - please keep intouch and let us know how you get on.

Good luck :luck: Take care :hug: Jo :hug:

[halfpintfl]

:) Hi Karin, welcome, and no you do not sound nuts, as I have had these feelings myself. I told them to my Rheumy, and I had them on a list and told him to put that list into my folder, which he did. He told me to keep a record of them, how often they happen and where and IF they became to be too much, or too often, in his opinion, then he would refer me to a neurologist( great, just what I want>another doctor). So I came home, and figured I would be busy writing something every day, and NO!!!!, it didn't happen. That has been about three months ago, and it has only happened twice I think, since then. Not enough to have me make a big deal out of it. Yes, b/4 everyone jumps up and down on me, let me explain myself. Yes, what happened is not normal, and yes, you should make note of it, and the event should be called into your dr's nurse each time. Now comes the different part. We each have to make our own decisions, and I did not feel that I was having them often enough to call in another dr. We all could make very big events out of all of the many, many, things that happen to us lupies, we just have to pick and choose our battles carefully, and no one should be faulted for the battles that they choose. My best to you,I do hope you get the answers that you want and can deal with.:wink2:

[Karin1]

Hi All,

Thanks to everyone!! I'm going to see my doc today, and my Rheumy on the 8th. I haven't been able to get out of here with the snow storms, but hopefully this morning the roads will be cleared.

I will let you know what he says:-)

Karin

[jude mack]

Hi Karin

Good luck with your doctors appoinment, let us know how it goes. I hope you do make it there, I know what you mean about the snow storms, we're still snowed in. I'll be thinking of you.

Hugs Jude:)

[Michelle D.]

Hi Karin,

I hope you are able to find some answers. That is very scary when it happens, it's good to get into the doctor right away.
I have the same symptoms on my right side and had a TIA seizure.
Please keep us posted of how you are feeling and how your doctor visit went.

Wishing you the best,
Michelle D.

[BJE]

I have a friend who has the exact symptoms as you. I agree with the others to see your Dr. She did and found it to be seizures. Although she has a brother and aunt who has Lupus, she has not been tested. She encounters all of our usual symptoms, fatigue, achiness etc.

[Lily]

Good luck Karin, I hope the gp investigates this further for you. I also hope today you are feeling a little better :hugbetter:

Its scary when things like this happen during a flare, they can be a sign of a serious problem and you should always seek medical attention when symptoms like this occur. Having said that sometimes they appear once and dont persist which is indeed good news. The Rheumy will run a battery of tests should it be ongoing, lets hope its not.

Try and get some rest ((((((((Karin))))))) and let us know how you get along at your appt.

love
Lily

[Karin1]

Thanks everyone. I did finally make it into the dr. He's ordered an Ultrasound of my heart, and another for the corotid arteries. Ones booked for January, and one for March. Ugh the waits are insane.

Otherwise still suffering with this flare, its probably the longest and worst one I've had. Also when in for my appt, I had my pneumonia vaccination, and suffered an allergic reaction to it.

Feeling pretty miserable, and down. I've been on my newly added medication of imuran now for 6 weeks, still waiting to see some benifit from that.

Hope all is well.

Karin

[Lily]

(((((((Karin))))))))

Oh gosh that is a long wait for those tests :(

You see your Rheumy next week dont you? Hopefully he will have some more ideas and suggestions as to what might be going on, good luck and let us know how that goes.

What dose of Imuran are you on? I started low and didnt get any really positive effects until they raised the dose, this was done over several months of monitoring and seeing how much it was helping me, so it was a bit of a drawn out process.Once we hit the right dose, after a month I saw a little improvement, and more and more, so that I can say after 3 months I really knew it was helping. The entire process did take a while of trial and error though so hang in there :hugbetter:

love
Lily

[Karin1]

Hi Lily,

I'm on 100mg of the Imuran. Yes I see my Rheumy on Friday of next week, and I'm looking forward to that appointment. Since leaving work I'm not getting any better, I seem to be getting worse, with more frequent flares.

Seems I can go a day or two sometimes of feeling "ok", then back at another bought of something or other. Does anyone with Lupus ever go a good stretch between flares of feeling somewhat normal? Or does the extreme fatigue just always remain?

Take care, have a good day:-)

Karin

[Lily]

Hi Karin,

Does anyone with Lupus ever go a good stretch between flares of feeling somewhat normal? Or does the extreme fatigue just always remain?

I think for me anyway the extreme fatigue is always there, I will have bursts of energy at times but I've had to learn to balance that with extra rest to compensate. Otherwise its just a constant relentless cycle of doing something and falling into bed exhausted and then the cycle starts again.

Say for instance if I go shopping, thats about all I can do that day and I either have to rest when I come home i.e. nap, or I have to have a very easy next few days. If I dont the fatigue level remains very high and a flare ensues. Its hard to learn to pace ourselves. But these days with a bit better disease control I seem to be able to achieve much more in my good periods. I still cant go beserk though but at least I'm not down for the count for days after doing something simple like a trip to town.

It's individual but for many fatigue is something thats not that treatable but manageable by learning to pace ourselves. A huge adjustment in our lives though and for those around us :(

Good luck at the Rheumies :luck:

love
Lily

[Karin1]

Thanks Lily

((hugs)) you are so great!

Karin