another rash

[mini]

I know that cold sometimes aggravate the Lupus. but tonite I noticed when I got back home and thawed out that I had a rash all over my legs and arms. just wondering if this has happened to anyone before. I see my doc on the 8th so will ask her about it as well. but it really puzzled me as I never heard of the cold doing this type of thing before.

[Lily]

Hi mini,

Can you describe the rash, did it look like this:

http://www.dermis.net/dermisroot/en/42784/diagnose.htm

love
Lily

[Jmaca]

I get this all the time in the winter. My doctor says it's benign and not to worry about. I will sometimes get it after getting out of the shower when it's wintertime. The difference between the warm shower and the cooler air sets it off.

It's annoying, but self-limiting. I get mine usually from the knees up to the top of my legs and on my upper arms. I'm OK as long as I'm outside, but when I come in, the rash appears, I scratch like mad for aobut 10-15 minutes, then the rash goes away and it's all over. My dr. said I could take antihistamine, but it's gone before the pills would start to work anyhow.

The one thing I've learned is to wear long underwear in the winter when I go outside. That cuts down those attacks.

[sheila t]

I also have this...I even got spots on my legs from it. I been told I have Vascultis/Raynuads and was told to wrap myself better when out.

I did a couple of years ago get it so bad. I got a ulcer on my leg (took 9 weeks to heal) and reading Lilys Link this can happen. THANKS FOR THE LINK LILY. I did get the Ulcer in the summer :(

So make sure You wrapped up when out. As the cold makes it worse.
I wear extra socks and even Thermal Tights under my trousers.

Hugs Sheila xxx

[helloos]

Lily - those were very good pictures.

I have to say that I too get this and I get on the back of my arms and my legs only.

I also can say that when I do get this, I have like a burning sensation/pain sensation/ sunburn feeling.

Does anyone else have that with the livedo? I know at the beginning that is what the doctor told me I had, he ran out of the room, got a book with a picture in it, and said this is you.

But I can say that I do get the feelings along with it, just curious if you do too.

[acard]

Hello,
I was just dx'd very casually at my last appt. I came here to this awesome site because I really was not sure of what I heard and lately it seems I am the last to know. Anyway, a wonderful fellow lupian gave me the exact one, I didn't hear clearly at the drs.:rolleyes: :rolleyes:

It was livedo reticularis for me and those pictures are very good.
Lily, thank you so much with always knowig where to look and then giving us all the info we need.

The wierd thing was I was looking something up at one those web med health sites and the previous post when asking you all about the wierd skin thing-well it was on their site. It was just suprising to see that.
Anyway I hope you all have a good day:)

[mini]

seems to be red and scatters all over my leg. I never really noticed it before. the ones on my arm itched for a bit but not for long, the ones on the inside of the elbow seemed to be more like hives. but the rest were red and slightly raised and scattered about in no order or fashion (but then what rash is in order or fashion?)

[Lily]

Hi Mini,

If you can take a picture of your rashes then it may be easier for the doc to see, especially if they fade in between visits. I had to do just that, I had a weird one pop up on my knee and my stomach once, that was in the height of summer. We do gets lots of strange rashes, all varying so its hard to say what it is. My doc never commented on what it might be, but he took the pics and they were certainly referred to many times during diagnosis.

Paula, I cant say my livedo burns or anything, but then its been there so long I wonder if I just disregard it mostly. When I'm flaring its much redder, my doc can guage how I am generally by its appearance. I get it on my thighs mostly and arms, but its more widespread these days, I can also get in on my stomach. Its inflammation of the small blood vessels closest to the surface of the skin (cutaneous vasculitis) and very very common in lupies. There are other explanations for it though, some people get the bluish discolouration, esp in cold weather, especially teenage girls for some reason.

love
Lily

[mini]

I was finally able to see the pics clearly (sometimes another computer is helpful in that). I know I have that type of rash fairly often, and never thought it to be associated, thanks for the info on it. i wish I was able to get a pic of the rash I do get, but do not have access to a camera at the moment. one of these days perhaps. thanks again for letting me know I am not totally crazy, now if I can just convince the docs of this.

[balla]

hi i have just looked at the pics that lilly posted and that is what me and my two daughters get it is to do with vascular problems...raynauds etc but my eldest daughter gets this real bad even when just standing,The doctors give you vasodilators for this problem.They are also going to do operation if it gets worse don't know what this involves but may stop her leg pain.

susan xx

[helloos]

I also wanted to add that I don't only get this in the winter time when cold.