collecting info

[jane1]

Hi...just thought id let you know that my gp has been checking all though my medical history...even ringing and asking abt if i had 'growing pains' as a child...when my migraines started...when and how many miscarriages iv had.....and really being interested...asking abt ulcers in my mouth...me worring abt going out shopping....:eek:.....UV lights making me feel ill.....these things i had mentioned before....but noone took any notice...so after all this time they are linking all bits and pieces together....she also wants to do a biopsy on my rash...:worried:....on my face...:eek: eek... i do already have a dx of lupus from london lupus centre...but gp wants to know whats going on and what to expect.....jane:)

[helloos]

Hi Jane.

That is really good that your gp is looking into things and wants to know what is going on and what to expect.

Now that is a good gp !

Glad to hear it and I hope that together they can help you feel better.

[wonderbug]

Hi jane,
Good luck with everything, im still on at my doctor to link all the things up...but oh no...he knows best!! Ive had a skin biopsy before...if you get the rashes on your chest, you can always ask them to do a biopsy in that part, as the small scar will be easyer to cover up with a necklace or scarf. mine turned out to be P.L.E. (polymorphic light eruption) and i found out the test can be done with u.v lights, shining them on the skin to provoke the rash a bit, rather than taking actual skin, so it may be worth asking about it.
Good luck, and let me know how you get on!
Beki.xx

[sheila t]

You have a good G.P There. I had skin biopies before. My last one was on my BUM...:eek: It needed only two small stitches afterwards. I also had them down on chest and neck before, The scars healed well. I been dx SLE LUPUS long term, IT it was to find out what type of Rashes I had. Mine were SCLE LUPUS...and DISCOID :eek:

Good luck

Sheila xxx

[jane1]

Hi...thank you all for your advice....:).......will they do a biopsy on my facial rash?....:worried:....also.....the uv lights in supermarket make me feel heady and sick..im not sure if it makes my butterfly worse...:hehe:...iv only had the butterfly rash for 3 odd months.....i shall keep u informed....:wink2:....jane

[Clare.T]

Hi Jane

It's wonderful that she is informing herself. LupusUK have a Handbook for GP's

You know you don't have to agree to any procedure ! Skin biopsies aren't usually done unless it is important to get a diagnosis & make treatment decisions because however minor a procedure it isn't pleasant and who wants stitches whatever on their face or additional sources of worry or discomfort.

Sometimes the specialist will have an academic interest sort of research or for some study he's doing.

With SLE the biopsy can be taken from exposed but unaffected skin like inner forearm and also from non exposed, unaffected skin like the buttock as in Sheila's case.

So I'd ask her nicely exactly what the point is.

Hugs
Clare

[sheila t]

MUST ADD I DID HAVE 28 BIG SORES ON MY BUTT AT THAT TIME, SO THEY HAD ALOT OF CHOICE....:( THEY NEEDED TO SEE IF IT WAS THE LUPUS THAT CAUSED THEM, WHICH IT WAS. I HAD TO WAIT A COUPLE OF WEEKS FOR THE RESULTS. I HAD THE SORES FOR 9 WEEKS. OUCH! A UP IN PRED FOR A WHILE DID THE TRICK

Sheila xxx