Blue Badge Parking & DLA

[justjanineuk]

Hi every one,
Although I have not been diagnosed with Lupus I have many symptoms, the main one for me is being allergic to sunlight (very sensitive), Iam waiting for blood test results My question is .... has any one applied for a parking permit ? I have tried twice and been rejected as the do not see my condition as a mobility issue, I just wanted any feed back comments as I feeling so frustrated, Iam also applying for DLA has anyone had any results ?
cheers Janine

[josie378]

Hi Justjanineuk,

If you ring Motorbility/Disability/Carers in Blackpool,they should be able to give you more information on how to get a parking badge,I myself had to go through the process of claiming for disability and carers allowence before I could get one.
Hope this helps a little
Josie378

[sue90x]

Hi you can just scrape through the system with epilepsy which I have and unless I've had a seizure on the journey (I don't drive obviously) or have one getting out of the care then its not that relevant
I do have a physical disability from previous strokes but would qualify under rules for epilepsy alone.
Hoping this may help a little
the fact that you would suffer as a consequence of walking what can be a long way from parking would be and is an issue, I rekon you'd be a case for scrutiny but do try
Sue xx

[jane1]

:rolleyes:...hi...my daughter is disabled....we only got a blue badge because she has a mobility car...so highest care and mobility....hope this helps...jane

[Ann2]

Hi

You say your main problem is reaction to sunlight. Whilst I am not an expert Disability parking is related to how far you can walk without discomfort? You do not relate in your post if you have problems walking ? And basically that is what the parking permit is all about. I myself have had SLE for over 40 years, but it is my husband with his walking difficulties (due to osteoarthrithitis ans subsequequent knee replacements who qualifies for the blue badge).
I guess what I am trying to say here is that it is the symptoms of the disease and not the title that qualify you for the benefits. The same applies for DLA, it is how the complaint impinges on your daily life.
Best wishes

Annx

[justjanineuk]

Hi Ann
Many thanks for your comments, I am extremly allergic to UV I am unable to walk across a car park without an allergic reaction, Iam unable to hang my washing out, I have difficulties travelling in a car as the sun effects me through the windows, it really impacts on every day life and tasks that many take for granted. Iam waiting to get help filling in my DLA form its worth trying they can only say yes or no..........
Thanks Ann

Hi

You say your main problem is reaction to sunlight. Whilst I am not an expert Disability parking is related to how far you can walk without discomfort? You do not relate in your post if you have problems walking ? And basically that is what the parking permit is all about. I myself have had SLE for over 40 years, but it is my husband with his walking difficulties (due to osteoarthrithitis ans subsequequent knee replacements who qualifies for the blue badge).
I guess what I am trying to say here is that it is the symptoms of the disease and not the title that qualify you for the benefits. The same applies for DLA, it is how the complaint impinges on your daily life.
Best wishes

Annx

[Raglet]

hi there

in terms of the regulations where I live, you would not qualify for a parking permit. Which is no comment on whether or not you need one, just a comment on what the regulations say. Our regs relate to mobility, how far you can walk etc etc.

I think you will find it hard to argue that you are able to travel in a car with the associated uv exposure but not walk across a carpark. Again, this is no reflection on whether or not you NEED a permit, it's more that I think that you will find it difficult to meet the disability requirement as specified by the regulations

best of luck with it all

raglet

[RubyRed444]

I have applied twice now for DLA and been refused both times. I cannot get out of bed unaided or get in and out of the bath unaided. I fall down the stairs frequently, my joints are excruitiated with burning pain on all my movements most of the day..

The reason for not paying out any DLA top middle or bottom is that I can manage to go to the toilet by myself in the day time...

I am afraid its the luck of the draw with who isnt PMT on the day your form lands on your desk, as for me well at least I can keep myself tidy during toilet sessions I have a lot to be grateful for...its irrelevant aparently that I cant get out of bed or need help getting myself dressed...

I am happy to be alive so I guess there is always someone somewhere worse off than me...

Happy Days
RR

[JackTar]

Hi there justjanineuk,

I think, very sadly, that this is a bit of a 'Postcode Lottery' too! My Brother-in-law, who has recently been primarily diagnosed with Emphysema (through smoking, and his father suffered the same for the same reason) has just been granted DLA (I don't know at what rate), a Blue Badge and, his wife has been advised, he may be entitled to a car under the scheme. He had lost a lot of weight very rapidly, and it was suspected that he might have some type of cancer. This wasn't diagnosed, however. This has all happened in East London in slightly more than a year, and the result has even shocked my Brother-in-law and Sister-in-law.

Many years ago - during the 80s, when my 'bronchiectasis' was performing at its worst and I could hardly stand, let alone walk, I applied for DLA. I had lost a lot of weight (gone from about 13 stones down to about 8-and-a-bit stones in about 6 months); couldn't eat, was constantly coughing and had been in hospital a few times in short time to recover from bouts of pneumonia. The 'DLA doctor' who came to see me at home (on a particularly bad day), worked his magic and pulled a rabbit out of the hat...'Refusal Rabbit' I think it was called! Since that day, through the Bronchiectasis and then ten years later, the Lupus, I have motored on with just Incapacity Benefit as my side-kick. I did challenge the DLA decision: "fat chance" was the response.

We're just about to go the same route with my wife's Hypothyroidism...well, if you don't ask you don't get! Maybe in West Wales the authorities might be a little bit more sympathetic.

"You can but try", as the saying goes, and I sincerely hope that you succeed. GOOD LUCK!

Jack

[lin]

I dont think you will get it on sunlight alone really i dont, i have problems walking far, and lots of pain when waliking,hip and feet, dont get me wrong i have not tried either,
but what my sister was telling me, when trying to aply for someone old who does have breathing difficutlies , was told you have got to be able to not walk however far it was, nothing about sunlight,i dont hold much hope out

Lin xx

[hazel595]

Hi Janine
Their is certain criteria for being entitled to a Blue Badge and is not only for people who receive DLA as the Blue Badge is issued by the local Social Services Department of your local council. Therefore, even patients who do not receive DLA can apply to the local Social Service department for an application form.

Your local council then decides if you are eligible for a badge and their is no right of appeal against the decision if you not meet the eligibility conditions.

It is a scheme which provides a national arrangement of parking concessions for people with severe walking difficulties who either travel as drivers or passengers. It allows Badge holders to park close to their destination.

You can get a badge if you receive the higher rate of the mobility component of the Disability Living Allowance.
or You receive a War Pensions' Mobility Supplement.
or You use a motor vehicle supplied for disabled people by a Government Health Department.
or You are registered blind.
or You have a severe disability in both upper limbs, regularly drive a motor vehicle but cannot turn the steering wheel of a motor vehicle by hand even if that wheel is fitted with a turning knob.
or You have a permanent and substantial disability which means you are unable to walk or have very considerable difficulty in walking.

If you apply for the form and complete and do not have any of the above criteria you must agree to be willing to have a medical examination to determine the extent of your disability to support your application.

I hope this helps to clear any confusion between applying for DLA and a Blue Badge.