evie-f
04-25-2007, 12:28 PM
Hi everyone
I'm really not having a good few days :sad:
The CNS symptoms seem to have come back with a vengeance, my eye is hurting, my hands/feet numb and I have a tremor back in my right hand. I'm worried I'm going to have another TIA.
And I've not had pain in my joints this bad since after my son was born and I was really sick. I kneel done and the pain is sickening, and I remember that pain from last time. And both my hips are the worst right now. It feels like someone's beaten them with baseball bats and they're really bruised, although there is nothing visible. It feels like my mattress is stuffed with rocks and I just can't get comfortable, and when I do get to sleep, the pain just wakes me up again. And last night for the first time since I was so ill before, I was feverish too, and my face rash flared up. It really scares me because the last time I was ill like that it was because of nephritis and my kidneys were really badly effected.
It's like I've been used to minor flares and "grumblings" for 6 years now, and just kept telling myself that this one will go away soon too, but it just seems to be getting worse.
The rheumy appointment is still 4 weeks away, and I still haven't had a CT after it was cancelled last week (it has been "pencilled in" for this Friday, but it's not been confirmed yet) which also worries me.
I'm sorry to offload this all on you, but I guess I'm just having a really bad day and starting to feel quite scared about where this is going to end up, especially as I'm still not dx'd (apart from "non-lupus lupus" :rolleyes: )
Eve x
I'm really not having a good few days :sad:
The CNS symptoms seem to have come back with a vengeance, my eye is hurting, my hands/feet numb and I have a tremor back in my right hand. I'm worried I'm going to have another TIA.
And I've not had pain in my joints this bad since after my son was born and I was really sick. I kneel done and the pain is sickening, and I remember that pain from last time. And both my hips are the worst right now. It feels like someone's beaten them with baseball bats and they're really bruised, although there is nothing visible. It feels like my mattress is stuffed with rocks and I just can't get comfortable, and when I do get to sleep, the pain just wakes me up again. And last night for the first time since I was so ill before, I was feverish too, and my face rash flared up. It really scares me because the last time I was ill like that it was because of nephritis and my kidneys were really badly effected.
It's like I've been used to minor flares and "grumblings" for 6 years now, and just kept telling myself that this one will go away soon too, but it just seems to be getting worse.
The rheumy appointment is still 4 weeks away, and I still haven't had a CT after it was cancelled last week (it has been "pencilled in" for this Friday, but it's not been confirmed yet) which also worries me.
I'm sorry to offload this all on you, but I guess I'm just having a really bad day and starting to feel quite scared about where this is going to end up, especially as I'm still not dx'd (apart from "non-lupus lupus" :rolleyes: )
Eve x