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MarthaP
04-25-2007, 06:31 PM
HI,

I was just wondering what job's everyone had and how they are coping with work?

I am working at an accountancy firm and am studying to become a chartered accountant. I'm half way through my qualification and before I found out I had lupus, it was going really well. Since my diagnosis, I just feel depressed and tired all the time and have no motivation to study - it's really getting me down.
My work is going ok - I don't really feel tired at work, it's more when i get home.

Elemc
04-25-2007, 06:46 PM
Hi Martha

I posted something on my personal experience on a thread called 'Quality of Life'. I know everyone is different though...

I you've got any questions or if I can be of any help please pm me.

Lesley

Pollyanna
04-25-2007, 10:36 PM
Hi Martha,

I'm retired on disablilty from the US Government. They "put me out to pasture" in 1995. It was due to lupus.

I cope by staying as active as I can tolerate and resting frequently.

Love, Pollyanna :love:

shelly21
04-25-2007, 10:42 PM
although i find work quite a struggle, i actually find that when i take off, i think more about my condition then if im at work-if ur at ur workplace, u kinda have to focus on the job at hand....

good luck
x

LyndaT
04-25-2007, 11:20 PM
I manage to hold down a full time job as an IT consultant, but find that if the pressure racks up for some reason I tend to flare a little. But all in all I manage to cope....thanks to my wonderful parents who do everything else for me.....


Lynda

LolaLola
04-26-2007, 01:55 PM
I can't work. I am so unpredictable and a liability. I am on Disability and very grateful for it, seeing the struggles some people have to get it!

I thoroughly admire those of you that still work, I barely cope with the most basic things like feeding the family and meeting their emotional needs, everything else is way overdue!
X Lola

PS I did manage 25 years work, so at least have my memories of being useful. lol

Raeann
04-26-2007, 03:07 PM
I use to work for a small business as a Admn Assist and a little phone sales, but I got laid off back in Nov of 06. Really it was a blessing because there was one lady that I worked with that caused me ALOT of stress the whole time I was there (6 yrs). I had only worked part time the last 1 1/2 yrs I was there and that helped a lot. I don't think I ever want to go back to an office setting. I have worked all my life since I was 19 am now almost 57, so I think I can take some time off. Hope you get your motivation back. After a day of working and trying to study I know it is hard. Good luck with all you are doing. Raeann:)

leesh
04-26-2007, 03:30 PM
Hi there! I work full-time as a library clerk and a busy city library. I also take 3 classes a semester and am in the process of starting a quilted purse business. My lupus is getting much worse right now and I"m finding it harder and harder to keep up. PLanning on giving up the full time job soon so i can focus on my school and business.

Becks
04-26-2007, 04:43 PM
Hi,

I work as a Team secretary in Central London. As well as Lupus I have arthritis in my hands, knees and feet. I have managed to get my company to give me special computer equipment (mouse, keyboard etc) which really helps me.

However like you I find I'm fine at work but when I get home I'm shattered! Commuting really takes it toll and sometimes it's all I can do to drag myself upstairs of an evening.

mooks
04-26-2007, 11:09 PM
hey...surprisingly im working as a waitress! i do 20 hours a week. this is purely down to having no choice as im not entitled to any help, ie disability, and i just cant survive unless i work. ive tried to get jobs that are alot less physically demanding but no one will employ me yet due to my lupus...im going to lie next time i find something! so am stuck working for my bf in his restaurant. its awful all my joints are so painful and my hands feel broken. it really sucks that most of us arent entitled to any help from the government even though we are too sick to work. yet people who have never worked a day in their lives and have 10 kids by the age of 17 can have as much help as they want!! sorry for the rant im quite depressed about it! i hope you can find some help or a nice relaxing job with people who understand about your illness. xxx

Marmalade
04-26-2007, 11:44 PM
I'm a minor university administrator. Actually I think if I didn't work, I'd sit at home and my joints would seize up so I need to keep going.

angie1
04-27-2007, 01:24 AM
Hi,
I am a teacher and currently am only on-call, therefore I can work when I want to. I just finished a year long full time contract and it really wore me out. I'm grateful to be able to pick and choose my days of work. Take care!

Angie

LupusCat50
04-27-2007, 01:25 AM
I'm a Human Resources Director at an acute care hospital with about 325 employees. My job is really stressful as I deal with discipline, suspensions, dismissals, grievances, interviewing, budgeting etc. In the past year, I've endured the loss of 2 siblings, one older and one younger, the placement of my mother in a nursing home with alzheimers. I've had a really difficult time. I've worked part time for several months and am just getting ready to return to work next week after 3 weeks off due to inflamation in my right knee due to bone spurs on my femur in the knee.

I've got SLE, fibro and OA. I've been working there for 23 years and am 52 years old. I keep debating with my physicians on whether to retire or not, I'm like Marmalade, I seize up when I'm not active, but the stress kills me at work. But, I guess I'll keep pluggin' along until I can't go anymore.

wingspirit
04-27-2007, 01:40 AM
Hi all

I really admire all of you. I wish i was able to go back to work. I really enjoyed working when i was able. I am retired now.

Keep up the good work all of you

Lou

Edith
04-27-2007, 06:00 AM
Hi Martha,

I am a CPA here in the United States, so I can really relate to what you are saying. I was through my schooling and had only been a CPA for about a year and a half when I got lupus. For the first year and a half of lupus it was just a struggle to keep going. I was quite stressed and de-motivated and depressed too. I finally decided I needed to have a break and was fortunately able to leave my old full time job and find part time work at a firm. Now I can rest some and work some and still have time to do things that are important to me because I have a little energy left over for things besides work. I think that was a great mood lifter for me, to be able to do something besides work. I will have to return to full time work soon (I have been part time about 5 months) but I think the break really helped. So don't beat yourself up about being de-motivated. I think it is a natural reaction to this big change in our lives. I wish you all the best in becoming a chartered accountant. Take good care of yourself and try to be patient with yourself. Becoming an accountant is a lot of work for anyone, regardless of whether they have lupus or not, so just remember that you are doing a lot!

:writing: This is as close as I could come to finding an accountant! Now all he needs is an adding machine!

rwb200
04-27-2007, 06:21 AM
My wife was a Insurance Agent in the US before she retired.
She had worked there for years and went from a Office Secretary to a agent but it just got to where it was to much.

Here is a bit of the Oronic. She was a Insurance Agent, Worked in a Independant Office so she wrote policies for many comapnies.
But she could not get Life or Health Insurance.
They could not find a company that would agree to write the policy.